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Headaches

lorna_fletcher

lorna_fletcher

Active Member
Messages
35
Type of diabetes
Type 1
Treatment type
Insulin
Does any one get really sore heads if there BSL are high? I’ve just been diagnosed with type 1 so my sugars are high just now until I manage diet & insulin but my headaches are unbearable
 
hi there @lorna_fletcher

that is a pretty common side affect of high BG's ..............it is also something i have suffered from when rebounding from a hypo...........

how are you doing generally ? do you feel you have a good care team ? are you speaking regularly with your DSN ?

in the next few months you want to ask about going on a carb counting course ( if you haven't already )

do keep posting ...there is a good T1D community on here for any questions you might have.

himtoo
x
 
himtoo said:
hi there @lorna_fletcher

that is a pretty common side affect of high BG's ..............it is also something i have suffered from when rebounding from a hypo...........

how are you doing generally ? do you feel you have a good care team ? are you speaking regularly with your DSN ?

in the next few months you want to ask about going on a carb counting course ( if you haven't already )

do keep posting ...there is a good T1D community on here for any questions you might have.

himtoo
x
Click to expand...

Hi,

Oh really, thank god don’t want another thing wrong with me lmao.

Yeah I’m doing ok with it all and finding my feet with everything, I’m meeting with my dsn weekly just now but that’s the only contact I have with them.
 
DM me if you feel you want some assistance with anything .:)

hypos dont always give me a post hypo headache....but sometimes as BG rises back into the 4's and 5's i have been know to get a bad head.....thankfully not very often !!!
 
I was told (diagnosed last september) that I might get headaches when high, I didn't, but apparently it is normal.

Lorna it is probably not my place to try and give anyone advice as I am barely any better at this than you are but I wish someone had said this to me nine months ago.

Lots of people will give you advice (me included now!) and some of that advice will be great and some of it will be wrong. Some people will give you advice, and you might later find they have blood sugar results you might not want to have yourself. Some people will tell you to do one thing and then someone will come along and say something totally different. If you try to follow all the advice you get, on this forum and in other places, you will end up running in circles, and it is really awful. Just be aware that it is totally possible for the people you are talking to not to know what they're doing.

I could tell you lots of things I did but that would just be one more person telling you what to do.

The only thing I would say is that a lot, really a LOT of people will say "you can eat what you like as long as you take the insulin for it" and that may be true for some people. For those people, "what they like" might just be really low carb stuff anyway. But if you are ending up really high all the time then look at what you're eating because some stuff is way easier to deal with than others. I think a lot of people say that because they really want it to be true, and maybe it is for some people, but I think it might be really dodgy advice that can get people in trouble.

I hope that helps.
 
NoKindOfSusie said:
I was told (diagnosed last september) that I might get headaches when high, I didn't, but apparently it is normal.

Lorna it is probably not my place to try and give anyone advice as I am barely any better at this than you are but I wish someone had said this to me nine months ago.

Lots of people will give you advice (me included now!) and some of that advice will be great and some of it will be wrong. Some people will give you advice, and you might later find they have blood sugar results you might not want to have yourself. Some people will tell you to do one thing and then someone will come along and say something totally different. If you try to follow all the advice you get, on this forum and in other places, you will end up running in circles, and it is really awful. Just be aware that it is totally possible for the people you are talking to not to know what they're doing.

I could tell you lots of things I did but that would just be one more person telling you what to do.

The only thing I would say is that a lot, really a LOT of people will say "you can eat what you like as long as you take the insulin for it" and that may be true for some people. For those people, "what they like" might just be really low carb stuff anyway. But if you are ending up really high all the time then look at what you're eating because some stuff is way easier to deal with than others. I think a lot of people say that because they really want it to be true, and maybe it is for some people, but I think it might be really dodgy advice that can get people in trouble.

I hope that helps.
Click to expand...

A lot of people want to deal with learning about dealing with their current eating habits before thinking about more changes to food as well...

Lorna, you will learn what insulin and foods react with your body... You will be your own expert for your body...

Just make sure you have plenty of test strips and a good log book where you can record insulin, grams ate of carbs, what the food was, and your insulin.

Consultants/nurses are specialists but we become the experts. You will become that expert, but jyst make sure your are logging everything down inckuding lie ins, or exercise etc.. these can impact as much as food.

Glad you found the forum... xx
 
donnellysdogs said:
A lot of people want to deal with learning about dealing with their current eating habits before thinking about more changes to food as well...
Click to expand...
Is that a complicated way of saying that people shouldn't change what they're eating?

Isn't that really risk advice that could affect someone's health? Are you completely sure?
 
NoKindOfSusie said:
Is that a complicated way of saying that people shouldn't change what they're eating?

Isn't that really risk advice that could affect someone's health? Are you completely sure?
Click to expand...


No, not saying that at all but hospitals give advice and carb couning on "general" foods... ie tgeir cereals.

For a new person to diabetes T1 then having too many changes in life and monitoring can really put newbies at odds with hospitals and they are the ones that are dealing on a one to one person at appointments and would have extra presure put on them by having possibly to state why they are not following suggestions by hospital. If hospitals suggest diet changes, then to me, a new person to T1 needs to prioritise learning around carb counting, testing. And finding out for themselves what changes they want to make according to their lifestyle and eating. If then they want to adapt and research better lifestyle of eating fine but, to me the priority immediiately is to work with hospital teams to gain knowledge of carb counting, changing ratios, correcting and avoiding hypos.
 
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donnellysdogs said:
No, not saying that at all but hospitals give advice and carb couning on "general" foods... ie tgeir cereals.

For a new person to diabetes T1 then having too many changes in life and monitoring can really put newbies at odds with hospitals and they are the ones that are dealing on a one to one person at appointments and would have extra presure put on them by having possibly to state why they are not following suggestions by hospital. If hospitals suggest diet changes, then to me, a new person to T1 needs to prioritise learning around carb counting, testing. And finding out for themselves what changes they want to make according to their lifestyle and eating. If then they want to adapt and research better lifestyle of eating fine but, to me the priority immediiately is to work with hospital teams to gain knowledge of carb counting, changing ratios, correcting and avoiding hypos.
Click to expand...
I'm not quite sure what you're saying, you seem to be putting it in "trying to be nice" language which is possibly not helping.

Really it isn't about what changes people "want to make," the changes I personally want to make are none at all thanks, but we don't really have that choice do we?

This is what I mean by giving people advice that they should just do what they like and it is not very helpful.
 
NoKindOfSusie said:
I'm not quite sure what you're saying, you seem to be putting it in "trying to be nice" language which is possibly not helping.

Really it isn't about what changes people "want to make," the changes I personally want to make are none at all thanks, but we don't really have that choice do we

This is what I mean by giving people advice that they should just do what they like and it is not very helpful.
Click to expand...

Its not about having to mamde changes at all.... this can follow as and when. But making too many changes at once is not good.

The priority here is that t the OP works wiith team to learn about OP's insulin regime, insulin, ratiios, correction and their lfestyle (they could be a marathon runner or avid cyclist/sporty person) i before overloading with more changes around etfoods. Once carb counting and fdstig 2 houyrs aftee bolusing etc and recording good detaiils, then further adjustmentts could be made.
Obviously if someone is eating/drinking pure sugar drinks/constant takeaways, biscuits, cakes etc then even hosputals would give basic advice about better option....

We are all individuals... not everybody has a budget to immediately change foods and some persons may have other factors in their lives too around heaalth, education, shifts, sports etc.
 
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donnellysdogs said:
Its not about having to mamde changes at all.... this can follow as and when. But making too many changes at once is not good.

The priority here is that t the OP works wiith team to learn about OP's insulin regime, insulin, ratiios, correction and their lfestyle (they could be a marathon runner or avid cyclist/sporty person) i before overloading with more changes around etfoods. Once carb counting and fdstig 2 houyrs aftee bolusing etc and recording good detaiils, then further adjustmentts could be made.
Obviously if someone is eating/drinking pure sugar drinks/constant takeaways, biscuits, cakes etc then even hosputals would give basic advice about better option....

We are all individuals... not everybody has a budget to immediately change foods and some persons may have other factors in their lives too around heaalth, education, shifts, sports etc.
Click to expand...
I had all those factors, especially running, that all went away in a second. I am not made of money I share a flat but it seemed like a good idea to do whatever I could to fix the problem as much as possible.

I would never tell anyone not to make too many changes, that is just an excuse for not doing anything. I'd say make the changes that are most likely to help avoid problems. You can't make it nice, don't try.
 
Headaches are a common symptom of high blood sugar, and a rarer symptom of low blood sugar. It can also indicate rapidly changing blood sugars, or stress from the worry of dealing with all of this :)

I used to get bad headaches, caused by severe vitamin D deficiency - this is quite common in diabetics and it's worth getting checked if you are experiencing headaches even when your blood sugars are normal.
 
NoKindOfSusie said:
I had all those factors, especially running, that all went away in a second. I am not made of money I share a flat but it seemed like a good idea to do whatever I could to fix the problem as much as possible.

I would never tell anyone not to make too many changes, that is just an excuse for not doing anything. I'd say make the changes that are most likely to help avoid problems. You can't make it nice, don't try.
Click to expand...

You have your way, its not the only way.

Back to headaches..
 
NoKindOfSusie said:
I was told (diagnosed last september) that I might get headaches when high, I didn't, but apparently it is normal.

Lorna it is probably not my place to try and give anyone advice as I am barely any better at this than you are but I wish someone had said this to me nine months ago.

Lots of people will give you advice (me included now!) and some of that advice will be great and some of it will be wrong. Some people will give you advice, and you might later find they have blood sugar results you might not want to have yourself. Some people will tell you to do one thing and then someone will come along and say something totally different. If you try to follow all the advice you get, on this forum and in other places, you will end up running in circles, and it is really awful. Just be aware that it is totally possible for the people you are talking to not to know what they're doing.

I could tell you lots of things I did but that would just be one more person telling you what to do.

The only thing I would say is that a lot, really a LOT of people will say "you can eat what you like as long as you take the insulin for it" and that may be true for some people. For those people, "what they like" might just be really low carb stuff anyway. But if you are ending up really high all the time then look at what you're eating because some stuff is way easier to deal with than others. I think a lot of people say that because they really want it to be true, and maybe it is for some people, but I think it might be really dodgy advice that can get people in trouble.

I hope that helps.
Click to expand...

Thank you x
 
phdiabetic said:
Headaches are a common symptom of high blood sugar, and a rarer symptom of low blood sugar. It can also indicate rapidly changing blood sugars, or stress from the worry of dealing with all of this :)

I used to get bad headaches, caused by severe vitamin D deficiency - this is quite common in diabetics and it's worth getting checked if you are experiencing headaches even when your blood sugars are normal.
Click to expand...

I think it may be the stress aswell all this information at one time can’t take it it x
 
Only if they're really high do I seem to get headaches (>20) as a symptom.
 
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