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Message: <blockquote data-quote="Pipp" data-source="post: 2762770" data-attributes="member: 100904">Hi [USER=598486]@electrolyte[/USER] , your situation seems quite rare, in that you have a mast cell disorder, Ehlers-Danlos  and also, possibly, Reactive  hypoglycaemia. As someone with a mast cell disorder myself, you have my sympathy. All difficult to control, and not very well understood, generally.What sort of treatment do you have for the MCAS? Do you see a consultant regularly? How did you cope being an athlete, with Ehlers Danlos? Sorry for all the questions. It is just that generally I believe most members will not have heard of these conditions. Even the RH is quite unusual here. Though we do have a few members, and a sub forum.I do think using a CGM is a good idea. I am not sure how a consultant, or indeed more than one would manage all conditions in one patient, as would be difficult to determine which of the condition’s symptoms would take precedence when trying to provide relief.</blockquote>

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