Hello

Cathy1974

Member
Messages
21
Type of diabetes
LADA
I was diagnosed on 30th april, type 2.
Since diagnosis, I have been started on Metformin, then added Gliclazide. This had no effect on my BS, so was changed to Glimipiride. However, this has had no effect either.
On Weds, I am to email my GP with my figures for over the weekend, and if there has been no change (which there hasn't), she will start me on insulin.

My GP has also done a blood test...GAD. I think I am right in thinking this will show what my pancreas is doing GP thinks I could actually be slow onset type 1.

I just want something that will work and bring down my BS.
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
Hi Cathy and welcome to the forum :)
To help bring your BS down and generally look after your diabetes, try following the information in this advice which we give to new members. Ask all the questions you like and let us know how you get on.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS


Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
-------------------------------------------------------------------------------------------------------------------------------------------------------

Please sign our e-petition for free testing for all type 2's; here's the link:
http://www.diabetes.co.uk/petition/

Do get your friends and colleagues to sign as well.
 

hanadr

Expert
Messages
8,157
Dislikes
soaps on telly and people talking about the characters as if they were real.
Cathy
if oral medications are having no effect, it's a good chance you are T1.
However, you can help by reducing your carb intake. This might make you feel better until the doctor finds out what is actually going on. You are lucky to have an open minded doctor. Many never even think of T1 in adults until something dreadful happens.
Hana
 

Daibell

Master
Messages
12,653
Type of diabetes
LADA
Treatment type
Insulin
Hi. I agree with diet changes to keep the carbs down. You seem to have a really good GP; wish mine was as good. Doing a GAD test is excellent and will check-out whether you have anti-bodies present that would suggest late onset Type 1 (LADA). If so, then insulin is the only treatment. My GP added Sitagliptin which has helped me a bit beyond Glic and Met but if you are a Late T1 then it will not help
 

Cathy1974

Member
Messages
21
Type of diabetes
LADA
thankyou for your helpful replies ;)

I have tried cutting out/down on carbs, and it has made little difference.
I first started testing at the beginning of April, and was waking up at 10mmols. 4 weeks later, and I never go below 17mmols.
I have recognised that pasta, white bread and potatoes really push my BG up, so avoid them like the plague. But still, I find myself regularly above 20mmols...have been up to 28 on quite a few occasions, after eating food that I thought would be ok!

At the moment, it feels like a battle I am losing, so will be glad to get the results back and find out if I am indeed T1, or just a stubborn T2!
 

tree-peony

Well-Known Member
Messages
686
Hi Cathy,

My BG has takes AGES to even start showing signs of coming down, but I'm getting there slowly. Could you give us an idea of what you're eating? We may be able to help.
 

Defren

Well-Known Member
Messages
3,106
TP is right, if you could post a days food, we would be better placed to help you. Carbs are sneaky little blighters and hide in all manner of places you wouldn't think of.

Veg: Yes, there are carbs in veg, but usually very tiny amounts, choose veg that grows above ground as they have less than those grown underground.

Fruit: This is a very difficult one. Most of us can't tolerate banana's, grapes or melon. The best fruits are those ending in berry; strawberry, raspberry, blueberry etc. If you don't have a meter I strongly advise you to invest in one, and test.

Obvious carbs: Bread, pasta, rice, potato's and wheat. Cut them down, as far as you can. The bread most of us eat is Burgen soya and linseed as it has lower carbs, I still struggle with it, and make my own with flaxseed. Potato's, new are better than old, and a roast potato is possibly an even better choice as the fat slows the absorption of the carbs. Rice, the best one to try is basmatti rice, some T2's can tolerate it in small amounts. Pasta, try the tri coloured variety, again some can tolerate in small amounts. Eat and test is the only sure fire way to know.

Eat meat, fish, seafood, dairy and veg. Nuts are also good, as are seeds, but beware they are calorific. Stay away from the low fat variety and go for full fat options, much better for a diabetic. There are concerns the fat may push up cholesterol, but my experience of people here shows a low carb high fat diet sends cholesterol down not up.

You MUST invest in a meter, it's the most important thing in a diabetics arsenal. Some GP's will prescribe strips, others won't. It's a bit of a postcode lottery. I get them now, I didn't initially. I bought an SD codefree meter, you can get them on Amazon or ebay, and they are the cheapest strips, between £4.99-£6.99 for 50.

Good luck.
 

Cathy1974

Member
Messages
21
Type of diabetes
LADA
I have changed my bread to the Burgen Soya and linseed variety, I have new pots now, and even then I only have a tiny amount. I have not had rice since dx, I have been eating more meat, and bulking meals out with more veg...mainly broccoli, cauliflower and runner beans. I am not a big fruit eater, but have been having blueberries and strawberries. Haven't had mash, or baked potatoes, and am yet to try roast.
Been eating more nuts and cheese, more as a snack if i get peckish. Drink wise I only want water lately..cant' even bear the flavoured waters...find them far too sweet.
Haven't had any sweets, chocolates etc....
I have been exercising more...walking more briskly, and for longer.

I am currently using the SD Codefree, but I am being sent an Accu-chek meter, and my GP is prescribing the strips. Its quite bizarre really as when I went for my first appointment about all this, the GP told me not to bother testing. Good job I didn't listen, because it has shown that my levels are getting worse rather than better.
I have a friend who is T1, and she has advised me what to eat, and what to avoid, and I am at a loss as to what else I could do to try and improve my situation.
 

tree-peony

Well-Known Member
Messages
686
Hi again Cathy. I can only tolerate 2 tiny Jersey Royals at a meal, and the occasional slice of Burgen. My BG actually went up for a while when I increased the Metformin as well. I'm still a long way off normal levels, and have had a bad weekend away working that has frankly been a nightmare. I'm a month ahead of you and I'm still seeing 14s and 15s most days. An hour on the Xtrainer is the only thing that really brings my levels down and even then it's still a long slow job.
 

Cathy1974

Member
Messages
21
Type of diabetes
LADA
tree-peony said:
Hi again Cathy. I can only tolerate 2 tiny Jersey Royals at a meal, and the occasional slice of Burgen. My BG actually went up for a while when I increased the Metformin as well. I'm still a long way off normal levels, and have had a bad weekend away working that has frankly been a nightmare. I'm a month ahead of you and I'm still seeing 14s and 15s most days. An hour on the Xtrainer is the only thing that really brings my levels down and even then it's still a long slow job.


I only have about 3 pots...which for me is a huge reduction!
I don't eat bread everyday...I find it quite boring!
My BG's are never below 17, and are generally 22-23 in the evening/at bedtime. My triglycerides are rather high too...15, and the GP is eager to get my levels lowered. It doesn't seem to matter what exercise I do, it doesn't lower below 17. It gets very disheartening to see the BG remaining high...
 

tree-peony

Well-Known Member
Messages
686
It IS disheartening and tbh I don't know if I'll manage it, but I will keep trying. I have a graph that shows me that the trend really IS going down, it's just happening slowly. I try and take it a day at a time. Have you tried doing something a bit more energetic? I really have to work up a sweat for it to do any good!
 

Ali H

Well-Known Member
Messages
790
Type of diabetes
Type 2
Treatment type
Insulin
Cathy if you have type 1 or LADA all the low carbing and exercise in the world won't help. It can also be very dangerous to exercise with high blood sugar levels as you can push them higher. This in turn can lead to ketoacidosis. Please seek urgent medical advice before you go down this avenue.

I sympathise with you greatly, I am nearing the end of loads of tests and my GP and endo suspect LADA so I know how you feel. Just gimme the insulin I say! Most Type 2s on here use exercise and low carbing to good effect, it helps a Type 1 use less insulin once on an insulin regime. But if you aren't producing your own insulin it won't have much effect.

Ali
 

Cathy1974

Member
Messages
21
Type of diabetes
LADA
I had heard somehwere that you should exercise if your BG's were high...but i have people giving me different opinions as to what is classed as high...

I will be glad to find out once and for all what type I really am, even if it does mean ending up on insulin.

To be honest, I don't think any of the changes I have made has made much difference...
 

Ali H

Well-Known Member
Messages
790
Type of diabetes
Type 2
Treatment type
Insulin
http://www.brist.plus.com/whathyper.htm

You are reporting levels in the twenties in which case you need to push for proper diagnosis pronto. Most advice is not to exercise if readings are above mid teens. If you have rising numbers despite lowering carbs and upping exercise something is not right.

Ali
 

Cathy1974

Member
Messages
21
Type of diabetes
LADA
Thanks for that....very interesting! Its a catch 22 isn't it!

I have just emailed my GP all my readings, so hopefully, over the next few days, I might get some answers
 

Ali H

Well-Known Member
Messages
790
Type of diabetes
Type 2
Treatment type
Insulin
It is isn't it. The general advice to cut carbs and up exercise works for type 2 but if you are producing little or no insulin of your own that is why your levels are just going up and up. The last thing you want to do is exercise and for your liver to push out sugar that can only go into your blood stream and not be taken up by the cells due to the lack of insulin. You will just feel more and more poorly and weak.

I have had thyroid and cortisol tests done for which I must get the results this week when the Docs are back. They want to try Victoza which seems to be something they are doing with suspected type 1.5s as another member on here has been put on that too. Failing that, then insulin. I am sick to death of the side effects of running high not least the constant feeling of being drunk after meals no matter what the carb content or exercise done.

Don't let your Doc slack, keep on at them and make sure they know what symptoms you are getting and how they are affecting you and that you need it resolved pronto.

Good luck, hope it is all resolved soon.

Ali
 

Cathy1974

Member
Messages
21
Type of diabetes
LADA
Fingers crossed you get good results back that give you some answers.
At dx, my GP suggested she might try me on Byetta...good for weightloss :) But since I have been recording consistantly high readings, she seems to have changed her mind and is now saying straight to insulin. I am of course, expecting this to change...they never seem to stick to the one thing they say!

I am sick of the constant tiredness, and the nauseous feeling I get when I am very high. The frequent loo trips in the night is beginning to get me down too!
I am lucky in that my GP seems to be very on the ball, and isn't prepared to let thing stay as they are, so hopefully....will soon be on the right track.

Good luck for your results xx
 

Ali H

Well-Known Member
Messages
790
Type of diabetes
Type 2
Treatment type
Insulin
Thanks, good luck to you too. I have had cystitis all weekend, course no Docs til tomorrow so fended off with cystopurin and cranberry etc. had enough of high sugar side effects now. Grrrrrr.

Ali