Help a mum!

You poor thing Jaxx.

He'll be feeling tired, washed out, just generally awful and uncomfortable if what it's like for an adult is anything to go by. Not in pain though.

And you have time. These levels aren't good, but nothing is going to happen overnight. You need the help of your diabetes team though.

Good luck with being persistent and getting them to focus on him.

Hi, and hugs. I'm not T1 so can only give limited info. I would keep on at the health professionals because levels above 15 are not good. Have they told you about testing for ketones in the blood? I'm assuming babies are at risk for that like older kids and adults are.

Unfortunately, (as you will know) when someone has high BG they are more prone to infections, which increase the BG. It's a vicious cycle, that's why it's so important to get the BGs down.

Maybe a T1 can advise, but I thought it was possible/usual to get the BG down to a somewhat safe level after diagnosis before discharging the person from hospital? 19.8 seems way too high to just be coping with at home with Lantus. (To the T1s Could having a different insulin added, or switching completely help?

Don't be afraid to take him to A&E if he is really struggling, as they may be able to monitor him and give him meds that help, and it will show the diabetes team how hard things are for him. Even being on an IV drip can help a person feel better.

I would also keep an eye out for symptoms of meningitis... I don't know if that's a big issue in the UK but it is in NZ. The doctors here would always rather children of this age are brought in if they have possible signs of it, as better safe than sorry.

I hope things improve soon as it will be very tiring for both bubs and for you.

Please remember it's is temporary, bugs will come and go that's part of being a child, keep giving him lots of water to keep him hydrated and flush the nasties out, his headache could of been due to this. I take it your team has educated you in correction doses and checking for ketones ? If not call them straight away. What could be useful is getting a few apps on your phone, I've just started using Diaconnect which records results and doses taken, you can email this to your team to show them if you have concerns.

The best advice I can honestly give you is to read and learn as much as possible about type 1, it is over whelming to start with but with knowledge it becomes second nature and life will get a lot easier. Post any concerns on this forum and talk to others, you are definitely not alone and you sound like a lovely caring mum so well done for finding this forum and good luck x

I really feel for you, as a mum you just want to wrap them up and protect them. I have a daughter so have experienced lots of bugs etc with her and the thing I always remember is they do get better very quickly, so hopefully he should be fine soon. i"m glad you can test for ketones too that's very useful. In time it does get easier I promise, it sounds like your team is supporting you well. As a mum trust your intuition, although he can't say anything go with your gut feeling about how he is, this is most important tool as a mum and will tell you if he needs to see a doctor or not. Your doing a great job lovely x

Just keep an eye on his ketones. Have you got a ketones meter? And if/when he throws up, if ketones are high (? over 2?) just go to A&E and make sure it's not DKA.

Courage! They are very tough really, and you are on his case. Get backup from friends/family - worry like this is incredibly draining.

Jeez my sympathies go out to you. That is a very young age to be diagnosed. I know there are a couple of others on the forum that were diagnosed that young but it is unusual.

As the others have said it's the ketones you need to worry about so it is imperative that they are not allowed to get high as they are the dangerous things. Unfortunately with levels in the high teens he could be feeling thirsty, tired, stiff, lethargic and generally grumpy and run down amongst other things. He may also be off his food. If his levels are that high I would say not to be afraid to give him a one off injection of Novorapid just to try and bring them down a bit. He will obviously only require a small amount as he's only little but getting the levels down will help settle him down a bit as well.

Please keep coming back on here if you have questions because it is a great place for support and advice and often you can get a quicker and (dare I say it) better answer here than you can from the professionals. Lots of happy thoughts going to you and your son.

have you thought about a pump and CGM @Jaxx13 I know its hard to get your head around but maybe join some of the facebook groups as well as they are really fighting for the support children need #wearenotwaiting is trending quite a lot x

And yes highly likely he has a splitting headache and very dry mouth - I can only liken it to the worst hangover you can have

He may well be exceptionally tired and cranky will levels above 12.0. He may well be thirsty.

I feel for you enormously... It's so tough for a mum (or dad) and grandparents etc to cope with.

With levels above 12.0 it is sometimes best to try and keep children less active... (More so in older children and adults) Exercise with levels above 12.0 can cause levels to go higher.. But generally speaking with a level as hugh as 19.0 then we would be feeling too exhausted and cranky to do much!! Thirst and extra weeing would be on the list.