Hi my 6 year old son was diagnosed with t1 in 2012 he was on 5 injections a day and was doing fine but I felt like he was missing out on a lot of things that he would not have to miss out on with pump so I spoke to him about the pump and explained every to him and he thought about it for a good while and decided he wanted and he became more and more excited and today he was given weeks trial with the pump which will only deliver water so for the first week he will also need his 5 a day injections. Thing is he hates it and keeps crying saying it hurts and he wants it off I don't know what to do for the best he generally hates it but I know it will be much better for him in the long term PLEASE help!! What would other t1 parents do
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Help!! I don't know What to do for the best :D
- Thread starter emma0803
- Start Date
Just stumbled on your post. I'm not a parent nor a pump user, but I am curious - what type of things was he missing out on?
He clearly hasn't taken to the pump, so maybe now isn't the right time for him.
He clearly hasn't taken to the pump, so maybe now isn't the right time for him.
dancer
Well-Known Member
If the cannula hurts it is either in the wrong site or it is the wrong type of cannula for your son.
My cousin's son started on the pump when he was about your son's age and thinks it's much better than MDI (he no longer has to inject before lunch was the big plus!)
You should contact the DSN, tell her about the pain and ask for a new/different cannula to be fitted (assuming you don't have spares at home.)
Good luck!
My cousin's son started on the pump when he was about your son's age and thinks it's much better than MDI (he no longer has to inject before lunch was the big plus!)
You should contact the DSN, tell her about the pain and ask for a new/different cannula to be fitted (assuming you don't have spares at home.)
Good luck!
donnellysdogs
Master
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- 13,233
- Location
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- Type of diabetes
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- People that can't listen to other people's opinions.
People that can't say sorry.
There Re also different cannulas.. Flexible ones or stainless steel.
Also the cannula length is important too. I'm lean and 6mm much better for me. ( I am an adult-at least majority of the time!!)
Like dancer says above... Especially when actually with insulin pumping through... My saying "if it hurts, it won't work" if a set hurts it needs to be put in elsewhere as it will inevitably mean insulin will not get delivered properly.
A set should not hurt. Actually wearing the pump should not hurt. Unless he's wearing on his waistband and bending over a lot, then it could be uncomfortable, but unlikely.
Also the cannula length is important too. I'm lean and 6mm much better for me. ( I am an adult-at least majority of the time!!)
Like dancer says above... Especially when actually with insulin pumping through... My saying "if it hurts, it won't work" if a set hurts it needs to be put in elsewhere as it will inevitably mean insulin will not get delivered properly.
A set should not hurt. Actually wearing the pump should not hurt. Unless he's wearing on his waistband and bending over a lot, then it could be uncomfortable, but unlikely.
My son was diagnosed aged 5 in 2009 and like you everything I read led me to believe a pump was his best option for a healthy easy life going forward into the future, my son had other ideas and was not keen to try it until last year and his healthcare team would not consider putting him onto a pump unless he was keen to have one. He tried one for a week with saline in October last year and thought it was great and the pure idea of no more injections made him sure he wanted a pump. the process of getting one took till this july and he started on his pump on the 10/7/14,
I can quite honestly say our experience so far has not been good, its like having a new born baby again with the pump alarm going off every hour into the night if his levels are over 14 (caused by first a cold then the hot weather and bubbles forming in the pump and now we think hes having a growth spurt) we play around with the basal rates with the help of the dsn constantly and think we have it sussed as we will have 3 good days then it all goes haywire again, we are all exhausted (pre the pump we only needed to nighty test if he has been hypo or over 12 in the day or ill - now its regularly bed time , midnight and 3am ) and instead of the pump giving him extra freedom I feel like its tied him more to me as i'm the only person he will let do his cannulars ect. I'm dreading his return to school and how we are going to arrange for the best care for him as its far more labour intensive than when he was on mdi (and far more worrying if you get it wrong!)
All along we said we would try the pump for 6 months before deciding if it was for him but if you were to ask me right now I would be very tempted to send it back and try again when hes old enough to at least insert the cannulars and prime the pump alone ect.
sorry if this wasn't what you wanted to hear but I think people said it gets easier after the first 3 months and after talking to my new pump friends I don't think it does I just think you become accustomed to this new way of life!
I can quite honestly say our experience so far has not been good, its like having a new born baby again with the pump alarm going off every hour into the night if his levels are over 14 (caused by first a cold then the hot weather and bubbles forming in the pump and now we think hes having a growth spurt) we play around with the basal rates with the help of the dsn constantly and think we have it sussed as we will have 3 good days then it all goes haywire again, we are all exhausted (pre the pump we only needed to nighty test if he has been hypo or over 12 in the day or ill - now its regularly bed time , midnight and 3am ) and instead of the pump giving him extra freedom I feel like its tied him more to me as i'm the only person he will let do his cannulars ect. I'm dreading his return to school and how we are going to arrange for the best care for him as its far more labour intensive than when he was on mdi (and far more worrying if you get it wrong!)
All along we said we would try the pump for 6 months before deciding if it was for him but if you were to ask me right now I would be very tempted to send it back and try again when hes old enough to at least insert the cannulars and prime the pump alone ect.
sorry if this wasn't what you wanted to hear but I think people said it gets easier after the first 3 months and after talking to my new pump friends I don't think it does I just think you become accustomed to this new way of life!
donnellysdogs
Master
- Messages
- 13,233
- Location
- Northampton
- Type of diabetes
- Type 1
- Treatment type
- Pump
- Dislikes
- People that can't listen to other people's opinions.
People that can't say sorry.
I have been friends with a lady with a daughter on a pump for over 3 years now.
We met via this website because I PM's her when she was in despair. We then started talking by phone, by email and txt. We have never met. I would call her one of my most trusted friends, despite never meeting. Initially we would speak pretty much every night, and change pump settings or just chat.
However, I think her daughter was about 8 when she went on the pump. It was hard for mum and daughter, but they stuck at it. We still remain in contact, and it is quite spooky sometimes as when we have occlusions, we text each other as invariably the other pump user (her daughter) will get one the next day or so, if I have had one and vice versa.
I think at times Mum found it **** frustrating not being able to get hold of nurses, nurses giving wrong info such as.... If high then change the basal on the actual hour of that high test..... And of course having to get up at night. However, I think she also recognised that the daughter was given DLA payments and Mum saw this as a sort of allowance for having to do a little bit extra than a "normal" mum has to do. I know the hba1c results have been greatly improved from the pump, and that is proof for mum that the extra needed in the first place was worth it. Am now in touch regularly with another young lady from the website, again.. never met but have a buddy system and friendship virtually that is wonderful for support, fun and just friendship and support.
I won't give names, but the past 4 years my pump has brought me great joy from the lady that helped me so much, to going on and helping a mum and child to another younger lady.
I know parents struggle, and young children, but just saying that I think your child and yourselves can find a way through start up with pumps. It is **** hard, but there are some great success stories from parents here... I think one parent has 2 young children on pumps,, this was back quite a while ago though....
Give a lot of thought to longterm benefits of a pump...speak or get in contact with others before throwing the towel in...
I was very lucky to "virtually" meet this lady. For any help I have given her in her early days it has been a wonderful experience of friendship that she has returned to me. We still remain wonderful friends today.
Some hospitals offer a "buddy" scheme nowadays, I know my own CCG are looking at this scheme and diabetic volunteers.
I just wanted to relay that it is hard for children and parents. I have no children,but recognised a parent at the time in despair. All the advice given to the mum was given on a basis of "this is what I would do".....
The NHS nurses aren't available 24/7 and boy, at some points it's **** frustrating. I too had a lovely virtual, phone call lady from this website that helped me enormously with my pump when I started and through some incredibly tough times personally. I will never forget the love, friendship and support she gave to me.again, we never met. Just from this website.
Sent from the Diabetes Forum App
We met via this website because I PM's her when she was in despair. We then started talking by phone, by email and txt. We have never met. I would call her one of my most trusted friends, despite never meeting. Initially we would speak pretty much every night, and change pump settings or just chat.
However, I think her daughter was about 8 when she went on the pump. It was hard for mum and daughter, but they stuck at it. We still remain in contact, and it is quite spooky sometimes as when we have occlusions, we text each other as invariably the other pump user (her daughter) will get one the next day or so, if I have had one and vice versa.
I think at times Mum found it **** frustrating not being able to get hold of nurses, nurses giving wrong info such as.... If high then change the basal on the actual hour of that high test..... And of course having to get up at night. However, I think she also recognised that the daughter was given DLA payments and Mum saw this as a sort of allowance for having to do a little bit extra than a "normal" mum has to do. I know the hba1c results have been greatly improved from the pump, and that is proof for mum that the extra needed in the first place was worth it. Am now in touch regularly with another young lady from the website, again.. never met but have a buddy system and friendship virtually that is wonderful for support, fun and just friendship and support.
I won't give names, but the past 4 years my pump has brought me great joy from the lady that helped me so much, to going on and helping a mum and child to another younger lady.
I know parents struggle, and young children, but just saying that I think your child and yourselves can find a way through start up with pumps. It is **** hard, but there are some great success stories from parents here... I think one parent has 2 young children on pumps,, this was back quite a while ago though....
Give a lot of thought to longterm benefits of a pump...speak or get in contact with others before throwing the towel in...
I was very lucky to "virtually" meet this lady. For any help I have given her in her early days it has been a wonderful experience of friendship that she has returned to me. We still remain wonderful friends today.
Some hospitals offer a "buddy" scheme nowadays, I know my own CCG are looking at this scheme and diabetic volunteers.
I just wanted to relay that it is hard for children and parents. I have no children,but recognised a parent at the time in despair. All the advice given to the mum was given on a basis of "this is what I would do".....
The NHS nurses aren't available 24/7 and boy, at some points it's **** frustrating. I too had a lovely virtual, phone call lady from this website that helped me enormously with my pump when I started and through some incredibly tough times personally. I will never forget the love, friendship and support she gave to me.again, we never met. Just from this website.
Sent from the Diabetes Forum App
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