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Help please

Don66

Active Member
Hi all ive just been diagnosed with diabetes last week . I am so overwelmed with all the info advise etc .. my dr is referring me to a diabetic specialist at the hospital. My sugars are so high its been in the 20s lowest its been is 16 and thats in the morning. By lunch time it goes up again. Im now on 3 different meds to see if it will help. Ive been signed off work until i can get it sorted . So frustrating for me as i always eat healthy not been over weight . I have cut out prossessed food anything with sugar . I have lost more weight and look ill but feel fine in myself . My big issue is im going away on the 19th Oct for 2 weeks with close friends to Cambodia and Vietnam . Its a holiday we have planned for ages ago i just want to cry if i cant go .
 
Hello and welcome @Don66 I am tagging @daisy1 for our new members information.

As you've mentioned that your struggling to get your blood glucose levels down then it would be worth asking your GP/consultant for a C-Peptide test to check for antibodies which are present in a type 1 diagnosis, if your current medication is unsuccessful in bringing down your blood glucose levels then insulin will be the best way of controlling them, it's getting your levels down into a 'normal' range which is important. Not sure when you're booked in to see the diabetic specialist but try and get this brought forward so you can get to the bottom of this before you go away, so you are ok to travel.
 
@Don66

Hello Don66 and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hello and welcome @Don66 I am tagging @daisy1 for our new members information.

As you've mentioned that your struggling to get your blood glucose levels down then it would be worth asking your GP/consultant for a C-Peptide test to check for antibodies which are present in a type 1 diagnosis, if your current medication is unsuccessful in bringing down your blood glucose levels then insulin will be the best way of controlling them, it's getting your levels down to into a 'normal' range which is important. Not sure when you're booked in to see the diabetic specialist but try and get this brought forward so you can get to the bottom of this before you go away, so you are ok to travel.
Thank you so much for your reply x
 
My big issue is im going away on the 19th Oct for 2 weeks with close friends to Cambodia and Vietnam .

If the dx is confirmed as T2, it's unlikely to interfere at all with the holiday, other than that cutting down/omitting rice and noodles (which are, needless to say fairly ubiquitous in Asia) wouldn't be a bad bet.

If, though, it's rediagnosed as T1, you'd be on insulin pretty much straight away and that's more of an issue. You'd be surprised at the number of posts where docs just can't make their minds up whether it's T1 or T2. If it's T1, insulin is required. It takes a bit of getting used to. If you take too much, it drops blood sugar to below 4, called a hypo. That can be sorted easily with some sugar, but they can be frightening experiences when you're unfamiliar with them. So, a trip to Asia isn't at all out of the question if it's T1, but you should spend a lot of time discussing with your doc/dsn how heat, travel, different foods etc will impact on your insulin dosing and how to treat hypos.

Like I say, it might not be T1 at all, but just mentioning it as a possibility as we've seen this business of docs changing their minds so many times.

If T1, you'd need to mention it to your travel insurers. The premium tends not to be affected unless there are complications which is highly unlikely at this stage.

I'd certainly be asking for the referral to be brought forward. I don't know how long you've been experiencing weight loss. If it's accompanied by excessive drinking and urination, that would be pointing in the direction of T1, and the problem is it can accelerate pretty quickly to a condition called dka, diabetic ketoacidosis, which is fatal without emergency treatment. You don't want that happening abroad.

PS: Asia's brilliant, but if you need a bit of peace and quiet, the Foreign Correspondent's Club on the banks of the Mekong in Phnom Penh is wonderfully civilised!
 
If the dx is confirmed as T2, it's unlikely to interfere at all with the holiday, other than that cutting down/omitting rice and noodles (which are, needless to say fairly ubiquitous in Asia) wouldn't be a bad bet.

If, though, it's rediagnosed as T1, you'd be on insulin pretty much straight away and that's more of an issue. You'd be surprised at the number of posts where docs just can't make their minds up whether it's T1 or T2. If it's T1, insulin is required. It takes a bit of getting used to. If you take too much, it drops blood sugar to below 4, called a hypo. That can be sorted easily with some sugar, but they can be frightening experiences when you're unfamiliar with them. So, a trip to Asia isn't at all out of the question if it's T1, but you should spend a lot of time discussing with your doc/dsn how heat, travel, different foods etc will impact on your insulin dosing and how to treat hypos.

Like I say, it might not be T1 at all, but just mentioning it as a possibility as we've seen this business of docs changing their minds so many times.

If T1, you'd need to mention it to your travel insurers. The premium tends not to be affected unless there are complications which is highly unlikely at this stage.

I'd certainly be asking for the referral to be brought forward. I don't know how long you've been experiencing weight loss. If it's accompanied by excessive drinking and urination, that would be pointing in the direction of T1, and the problem is it can accelerate pretty quickly to a condition called dka, diabetic ketoacidosis, which is fatal without emergency treatment. You don't want that happening abroad.

PS: Asia's brilliant, but if you need a bit of peace and quiet, the Foreign Correspondent's Club on the banks of the Mekong in Phnom Penh is wonderfully civilised!
That is so helpful thank you x
 
Hi. T1 (LADA) sounds possible. If so, going onto insulin earlier rather than later can be better than having certain tablets as I did. Your doctor may prescribe something like Gliclazide to help stimulate the pancreas for a while before insulin. There are two tests for Late onset T1 (LADA) i.e. GAD antibody test and c-peptide to check your insulin output. High sugars and losing weight when already slim are strong pointers.
 
If T1, you'd need to mention it to your travel insurers. The premium tends not to be affected unless there are complications which is highly unlikely at this stage.
Welcome to the forum @Don66.
You do need to disclose any pre-existing medical conditions to your insurers, as non-disclosure could invalidate any claim. I have to tell mine I'm T2. My premiums are a bit higher but I have other long term conditions too.
I agree with the others that you should ask for further tests as it does sound like you may be Type 1. Doctors often assume that diabetics are T2 if they are diagnosed as adults.
 
Hi all ive just been diagnosed with diabetes last week . I am so overwelmed with all the info advise etc .. my dr is referring me to a diabetic specialist at the hospital. My sugars are so high its been in the 20s lowest its been is 16 and thats in the morning. By lunch time it goes up again. Im now on 3 different meds to see if it will help. Ive been signed off work until i can get it sorted . So frustrating for me as i always eat healthy not been over weight . I have cut out prossessed food anything with sugar . I have lost more weight and look ill but feel fine in myself . My big issue is im going away on the 19th Oct for 2 weeks with close friends to Cambodia and Vietnam . Its a holiday we have planned for ages ago i just want to cry if i cant go .

Hi I’m Lisa, I’ve not been diagnosed yet, I’m between two fasting blood tests at the moment. The first bloods they took were 6.6 they assumed I hadn’t fasted for that one, but I had. They’ve taken another lot fasting ones the same as last time and am waiting for those to come back. I’m driving. Myself mad googling everything I did in the run up to that test to see if I put my blood sugars up by accident. I’m very overweight and was warned five months ago to change my life by a gym instructor. I’m hoping this blood test is a glip. I really
hope you make that holiday.
 
Hello and Welcome Don66 ! I was diagnosed a little over 2 months ago and have found this forum immensely useful and also excellent for the morale. Have a wonderful trip and I send you best wishes that everything works out very well.
 
Hi @Don66, You have beautiful children !! I agree with @Diabell. Just a suggestion, not professional advice or opinion.
See if your GP will order these tests (GAD antibodies and C-peptide) given your high BSLs etc. She/he should be able to order it and do not be fobbed off by some excuse like let the specialist order it. Time is precious and so is your health. It may prompt him/her to order these tests by mentioning that you have heard that at high sugars ketones can occur. (if one's own insulin is in short supply fat is broken down to help meet energy requirements and ketones form as a breakdown production. Ketones can make one sick and one of the reasons to work out whether you are insulin requiring sooner rather than later).
So the afore-mentioned tests may give some clarification of your diabetes status., sooner rather than later.
I think it would be unwise to venture overseas with the BSLs you are recording and without a definite diagnosis and adequate treatment. Again just my view as a diabetic. Best Wishes for s speedy resolution, diagnosis and treatment.
 
Sorry to add more woe but if you are under investigation for a condition your travel insurance may be invalid, or will almost certainly exclude that condition at the very least. Possibly diabetes is enough to declare (which you are obliged to) but if you can’t answer the follow up questions then you may have a problem. Please don’t go without being sure you’re covered just in case it’s T1 and something happens as a result of an incomplete assessment/treatment plan
 
I would strongly suggest seeing your specialist to figure out what type you’re going to be before you do anything drastic, like leave the country. I have a friend in a local pump group who was told she was diabetic before she went on a trip to a more rural country, and still went on the trip. During the trip she got incredibly ill. Flew back home and her diabetes concern became a specific t1 diabetes and she wound up doing some time in the hospital.

I hope you can get it figured out ahead of your trip abroad. But if you can’t, consider not pushing things.
 
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