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Help Required

M

mkzp123

Active Member
Messages
37
Type of diabetes
Type 1
Treatment type
Insulin
This is my first post so any help will be appreciated
I am the parent of a lovely 5 year old son who was diagnosed with type one diabetes in February this year.
He has adapted to the changes in his life really well however it was very hard to accept that he will have this condition for the rest of his life for me and my partner

The issue I have is that his blood glucose levels recently have been between 15 to 18 over the last four days quite often - prior to this he was averaging 6 to 8 for the last few months which we were really happy with

He has 4 units of lantus in the evening & the ratio for his meals differ from 0.5 or 0.75 per 10 grams after meals 3 times a day

HIs diet has not changed and his routine is still same in the means of exercise what a normal five-year-old would do.

We have no idea why this is and are really getting stressed out as to why his blood glucose is so high all of a sudden

He has a slight cold but when the check his blood ketones all seems to be fine

Thanks
 
It could be that he is coming out of his honeymoon period. He may have still been producing some insulin, but now has stopped. This happened to me about 3 months after I was diagnosed.

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Hi, my son gas recently been diagnosed with type 1 diabetes. (only 3 weeks) he is 10 and doing quite well already doing hus own injections. I'm having real difficulties getting him to eat breakfast and most days he's not eating until lunch, I'm at a loss as to what to do any suggestions?
Many thanks
 
Hi

We find cereal works a treat
I would suggest try breads or cereala

Will have to trial & error with different types of foods

I know its difficult especially when you know your child is not having food but am sure he will start eating soon

Hope this helps
 
Thanks for that, I think it's going to take a while!! I've even given him a chicken sandwich this morning it's his favourite but he still couldn't eat it. He said he's hungry but when he has food he just can't eat it :-( x
 
Hello both,

My daughter was diagnosed when she was also 5, just over a year ago now.
I know that when she only seems outwardly to have a slight cold, it kicks her levels about all over the place and they seem to take ages to come back down.

Also, she went through a period were she was starving but just couldn't face food - even her favourite things.

I know it's not much help really to either question but in our case it certainly has passed, just takes time. Keep heart.

x


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Exactly what Just Laura said! Colds, changes in routine, stress and lots of other things can affect sugar levels unfortunately. I used to find weekends a nightmare just because I was doing something different. I always thought diabetes must be most different for young children, but now I think it's probably more difficult for the parents. There is a hell of a lot to learn about diabetes, but I believe knowledge is power. Take it slow and it will get easier.
 
Thanks for the advice

It really helps to find kind people like yourselves giving us advice

Don't know where I would be without this forum in all honesty as Google searches usually find the most negative and scary results
 
Don't know if it's any help to you but have a look in the 'Type 1' part of the forum.

It's not all relevant (yet) to our littlies but I've learned a hell of a lot and there's some lovely people who give fab advice from their many years of experience.

Some other Mums post on there as well from time to time.

x



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sounds like he has just come out of the honeymoon period. Tell his diabetic specialist and they will adjust his insulin.
 
Hi, firstly, well done for handling everything so well in such a short time! My 9 year old is type 1 and it can be a real struggle at times to keep their blood glucose level in check - the slightest thing can send their levels one way or another. The most important thing is not to blame yourself - doubt in your ability to deal with his condition will not help anyone!

Every person with type 1 is different, what may affect one person badly, may not affect another.

Ive found taking my son off bread has helped, as soon as bread goes in his mouth the carbs start entering the blood stream, his bg goes charging up and the insulin cant get on top of it. (You become more resiliant to insulin the higher your reading is). We have gone on cracker bread instead.

When my lad goes high for a few days, I cut out the fast acting carbs, go low carb for a few days, increase the protein intake and see how it goes. Usuaĺly it works well and allows us to get back to normal (keep a close eye on ketones if you try this). Also because his bloods have been high for a few days, he might start to feel hypo at a slightly higher level than normal.

I find a food diary really helps at times like this, it will help you identify if there are any foods that affect your son more than others.

It's nearly impossible to keep a child's readings level - bugs, exercise, stress, the weather, growth hormones etc, will all affect them. Just keep calm, if your son knows you are stressing about it, it could stress him and that's not what you want - these highs and lows will happen, they are bound to. Try to stay calm, I'm sure all the parents of a type 1 child have been where you are.

Claire x
 
Best thing is to use this as a learning opportunity and not to beat urself up about higher levels for a few days.

However, saying that, as parents you should be given the knowledge how to lower these levels... Ie 1 unit more basal n try for 48 hours before increasing or decreasing etc.

You should also be advised that levels over 12 may need a bit more insulin as a corrective dose...

Please contact your dsn, they MUST tell you how to adjust basals n bolus especially for holidays and weekends whenthey are not available...


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