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Hi all

insujay

Newbie
Messages
3
Hello Diabetics , I have been a Type1 diabetic from the age of 9yrs, currently I am 49yrs of age.
During last year I finally administered my insulin using the pen as my old insulin was being discontinued and after some time of trialing different dosage levels it appears that I have now finally worked out a right dose for myself.
I have had during my years a somewhat awkward path as since my 16yrs I was diagnosed with a bone disorder named 'Kienbochs' which resulted in my right Lunate bone removed and a section of my wristbone which has been replaced with Titanium.
Aside also from the unfortunate fact of being run over twice (first pelvis broken) and the second time my ear was torn off although thankfully no lasting damage was done and I made a full recovery on both accounts.
Although, during May of 2015 I was diagnosed with an aggressive bladder cancer which was a grade3 and required A.S.A.P surgery although within 1 hour of leaving the urology dept in the hospital I unfortunately broke my ankle and so went into hospital where my ankle was operated on and again Titanium was constructed to hold my ankle together and then began the first of 3 surgerys on my bladder which resulted finally in my bladder being removed along with prostate and urethra and a neo-bladder being constructed from my bowel material hence giving me in place of my old bladder a bladder named a Neo-Bladder.
So far, it appears the cancer was all cut out and I feel extremely fortunate to still be here to write this as if I hadnt of had the last 9hr surgery and with being told when asked "What happens if I dont have the surgery to remove my bladder etc" the answer was "You will probably have at maximum 12 months to live" alas the surgery was done and (again) I am still here.
The question I have (if you dont mind) is that since the surgery I feel absolutely worn out and as somebody whom never really had a large appetite both before my last surgery and even more so since , it can be difficult in order to get my correct *grams intake *(I still base my foods on what I was told as a young diabetic ie; 1 large slice of bread is 10grams,1 apple 10grams,1 banana 10grams etc) and so I would like to ask if any members have any ideas on what foods to suggest to give myself the addequate grams in order to stay away from Hypoglaecemia's ..

ps; Thank you if you read this far and my very best regards and wishes to all of you, and a belated Happy new year, J
 
Hi and welcome, a couple of quick questions that may help people:
Are you on a basal/bolus regime where you take 1 or 2 injections for long lasting and fast-acting for each meal (and teh amount being dependent on what you eat) or are you on set injections each day.

If you are on basal/bolus then you should be able to eat as much or as little as you like and take the relevant insulin for it.

You may want to get the carbs and cals app or book to work out carbs, cos I think your values may be a little out, I think most slices of bread (medium to large) are 15-20 carbs, and only a small banana would be 10 carbs.
 
hi thanks for the reply. I am on set injections per day being;
Insuman comb25 solostar (morning) 32units
Humulin M3 kwikPen (eve) 28units

Apologies, I didnt go into specific details on the carb intake to size of bread,bananas etc and it was just to give a basic idea.
As previously mentioned after living with this type1 for 40yrs I wether right or wrong have never lived scrutinising each piece of food that I eat and it has always been near enough which my Hba1's can prove.
It is generally that I am looking to suggestions for meals aside from the more usual rice and pasta dishes which although beneficial can become somewhat mundane after a period of time.
 
The low carb high fat diet is usually promoted here but mainly done by those with T2 T1's can probably give you better suggestions for meals if you do not need to cut carbs
 

Hello there, Insujay. I must say we're more used to folks looking to trim down their eating, rather than what you're looking for yourself.

As you are in flixed doses of insulin, you do need to balance that eating (but of course you already know that all too well!). If you are constantly fighting to keep your numbers up, to avoid hypoland, would it be useful to have a discussion with your medical team about trimming down some of the insulin you are taking.

I guess that way you might not be heading for hypoland, but it might lead to you losing weight, if you're eating less.

Alternatively, it could be worthwhile having a chat with your team to explore using slow and fast acting insulins which would allow you more flexibiliuty with your food, on hungry and not hungry days.

As I'm not an insulin user, I'll tage my colleagues @Juicyj and @Jaylee who might have some ideas.
 
Hello @insujay welcome to the forum.

Wow you are on an old system for working carbs out, I remember that routine, do you still use the old "drink of milk and digestive biscuits" to deal with hypos

Anyway the way a number of us T1D deal with calculating carb / insulin ratio is 1 unit insulin to 10 grams of carbs. So, for example, you have a baked potato which is say 500 grams, thats 50 carb value so 5 units of insulin. There are there abouts, it's a rough guide as we all seem to deal with things differently.

Come wonder over to the Type 1 threads and join in the fun

Can't help with your insulins I'm afraid as I don't know them.
 
Thank you for the input and yes I will go to the Type1 threads as you kindly suggested.
I am currently away from home at present yet will endeavor to speak to my diabetic team upon my return. Once again, thank you and my best wishes.
 
Hi. Those are very unusual insulins for T1 i.e. fixed/mixed whereas the standard for T1s is Basal/Bolus where you choose your food and inject to match. It may be wroth you discussing reviewing your insulin regime and going Basal/Bolus to avoid the worry about food and hypos. BTW a banana is much more than 10gms and not a good fruit for us.
 
Hi @insujay ,

Welcome to the forum.

Looking at the regime you are on with the fixed mixed doses, it's pretty restricted with regards to meal (amount of carb) portion sizes. On what you can & even can't afford to eat meal timings are paramount & omitting a meal due to lack of hunger can be an issue too with fixed dosage regimes.

I've been T1 for 42 years & remember those days...

@Knikki don't knock milk & biscuits. Saved me many a time & never passed out. To quote Terminator, "old, but not obsolete."

@insujay , do you find yourself having to also "snack" (small meals) inbetween your main breakfast, lunch & evening meal..?

Do speak with your diabetic team.

Best wishes.
 
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