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Hi everyone...

killtothis

killtothis

Member
Messages
11
Type of diabetes
Type 1
Treatment type
Insulin
Just thought I'd sign up and say hello after lurking the site for a while, I've got some great tips from reading since I was first diagnosed just over a year ago after having a partial pancreatectomy (freys procedure) to try and cure my chronic pancreatitis (birth defect) anyway that operation left me insulin dependent. Sadly the pain continued (having to take high doses of morphine daily) and I've recently had a total pancreatectomy and islet cell transplant, cheeky buggers took my spleen while I was there!
Anyway I'm recovering now and aren't in the pain I was before the op, I have a nasty scar across my whole stomach though and the muscles are still quite painful! but I'm getting there and have significantly dropped my pain relief.

TLDR: I have no pancreas, spleen or gall bladder, take insulin, hoping I can find some people to connect/talk with :)
 
Wow!

Got anything left in there?

Welcome,

Somebody, will have similar experiences but as you have been lurking, why not join in with some of the threads.
 
I have my lungs and kidneys! (unless they took one while they were there lol) I have a bit of cirrhosis on my liver though so I won't count that :)
Funny story actually, just after my op I went for a scan and the technician wasn't aware they'd took my spleen too (she thought only my pancreas) I could see she was getting twitchy while she was moving the ?probe? (ultrasound) she left the room and phoned my consultant, she visited my room and we shared a laugh about that.
I'm going to start jumping into some threads asap :)

edit: Just checking out your blog entries, I've never heard of Late Reactive Hypoglycaemia
 
killtothis said:
I have my lungs and kidneys! (unless they took one while they were there lol) I have a bit of cirrhosis on my liver though so I won't count that :)
Funny story actually, just after my op I went for a scan and the technician wasn't aware they'd took my spleen too (she thought only my pancreas) I could see she was getting twitchy while she was moving the ?probe? (ultrasound) she left the room and phoned my consultant, she visited my room and we shared a laugh about that.
I'm going to start jumping into some threads asap :)

edit: Just checking out your blog entries, I've never heard of Late Reactive Hypoglycaemia
Click to expand...
Nor had my docs, (lots of them), until my consultant diagnosed me.

With your troubles, there must be a blog or two, worth writing!
 
Thanks Sue.

EDIT: Nosher I've just read your first blog, I know how you must have felt, nothing scarier than your own doctors not having a clue, been there done that.
 
killtothis said:
Thanks Sue.

EDIT: Nosher I've just read your first blog, I know how you must have felt, nothing scarier than your own doctors not having a clue, been there done that.
Click to expand...

It's the feeling that you know that something else is going on and they don't believe you.

For example.

Can you recommend something for why I'm not sleeping?

The locum, replied, "yeah! Lose weight!"

Not realising that I'd been on a diet for years! (Recommended by my docs!)

I replied, I've been trying for years and it's not working!

I didn't wait for a reply.
 
Kind of had the same issue after my Freys procedure, I was still in agony and pretty much the week after I left the hospital I knew it hadn't worked, Kept being told by consultants that there was no reason I should be in pain due to what they had removed, requested a CT scan (joys of private health care) found that there was more inflammation and damage (calsification?).
After it was taken out he told me that it was the worst case he'd seen, and they struggled to cut into it (to extract the islets) as it was so hard (I guess organs are meant to be squishy lol)
 
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