hyperinsulinaemic hypoglycaemia

[tooner9]

hi all ive finally got a diagnosis its only taken two years


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[Brunneria]

Congrats on making it to the diagnosis line!

So what are their suggestions regarding treatment, diet, lifestyle and medication? Have they told you what to expect?

And didn't we have someone else posting recently on the RH board with the same diagnosis? Hopefully you can compare notes and experiences.

 

[Quietmindstitcher_]

Me! I have hyperinsulinaemic hypoglycaemia and reactive hypoglycaemia. How are you Tooner9?


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[Alicki]

May I ask how you got to the diagnosis!?


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[toonerwife]

they have started me on 50mg of arcabose they are gonna start me on octreotide injections in a couple of weeks.diet wise same as before keep well away from carbs.i have to go careful with every day to day stuff like exercise and stuff as it could trigger an episode.
i had a OGTT at james cook hispital


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[Lamont D]

they have started me on 50mg of arcabose they are gonna start me on octreotide injections in a couple of weeks.diet wise same as before keep well away from carbs.i have to go careful with every day to day stuff like exercise and stuff as it could trigger an episode.
i had a OGTT at james cook hispital


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As I've already said it's good to get (at last) your diagnosis. Hopefully you will be feeling the benefits of your new lifestyle without them nasty carbs! (They are evil aren't they?)
A couple of questions tho. Regarding your OGTT.
How high and how quickly did you spike?
And when did you hypo?

Wishing you well.

 

[toonerwife]

i spiked about an hour n half in and dropped like a rocket around the two hr marker


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[Lamont D]

i spiked about an hour n half in and dropped like a rocket around the two hr marker


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Wow! That is quick!

And interesting.

Did you feel it coming on and how did they treat the hypo?

Just being nosey!!!!

 

[toonerwife]

yes i knew it was comming on
they treated the hypo by glucose sachets


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[Lamont D]

yes i knew it was comming on
they treated the hypo by glucose sachets


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Did you have residual effects off the glucose sachets?

Thanks for answering.

 

[toonerwife]

yes i had another hypo a couple of hrs after the sachets


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[Lamont D]

yes i had another hypo a couple of hrs after the sachets


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That's why I would not have glucose or any form of sugar after a hypo.
I would only have something like one plain rich tea biscuit and a cuppa to slowly raise my bloods back to normal. I had the same experience after my first OGTT and for a test that lasted five hours, I was there for twelve because of recurring hypos.
Make sure you tell them next time if you have another OGTT.
Being weird with the excessive insulin, we shouldn't invite our pancreas to go mad afterwards!
Always make sure that you have something low carb as a small meal after you get back to normal levels.
Bloody hospital protocols!
Don't they know about hyperinsulinaemia and RH?


Obviously not!

Hope you are ok!

 

[toonerwife]

i did have a cup of tea and a
biscuit after the glucose sachets then had a hypo whilst waiting for a taxi to take me home


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[Lamont D]

i did have a cup of tea and a
biscuit after the glucose sachets then had a hypo whilst waiting for a taxi to take me home


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But it was the glucose that would have given you the hyper then hypo, probably not the biscuit and the cuppa.
You should not have had the glucose after your first hypo! It is standard treatment in hospitals to treat hypos with glucose.!
It isn't for us weirdos!
It is probably one of your triggers, like me, that gives you the excessive insulin.
Bet you felt awful for days after?

 

[toonerwife]

just for the rest of that day was ok the day after ta x


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[Lamont D]

That's good!

Keep well, keep in touch with how things are going!

Best wishes.

 

[toonerwife]

will do x


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[toonerwife]

hi all im back

 

[Brunneria]

will do x


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Good to see you!
How are things going?

 

[toonerwife]

not great am just ****** off with the hosp