i have had 2 c peptide test both back with untraceable c peptide anyone else experience this

[louise rycroft]

i have had 2 c peptide test both back with untraceable c peptide anyone else experience this, i have been diagnosed as type 2 for 6 years but always concerns that i may be type 1

 

[Antje77]

i have had 2 c peptide test both back with untraceable c peptide anyone else experience this, i have been diagnosed as type 2 for 6 years but always concerns that i may be type 1

Hi @louise rycroft , welcome to the forum.

I suppose you've had the c-peptide tests because your doctor suspected T1 as well.
Low/undetectable c-peptide is usually not seen in T2's and very common in T1's.

Are you being treated by a GP or by an endo?
I see you're on insulin, what type(s) of insulin are you on, and is this treatment working well for you?

 

[louise rycroft]

hello

i am seeing both GP and Diabetic specialist i am on novo rapid 3 times a day and toujeo

 

[Melgar]

@louise rycroft I agree with @Antje77 , untraceable C-Peptides means you are producing very little, to no insulin. C-peptides are a by-product of insulin production. We cannot diagnose on the forum. What I would say is, in general, it takes a long time for the pancreas' beta cells to deplete in T2. 6 years is a very short time to see complete destruction of beta cells. I would very definitely push your Dr to re look at your diagnosis.

 

[EllieM]

i have had 2 c peptide test both back with untraceable c peptide anyone else experience this, i have been diagnosed as type 2 for 6 years but always concerns that i may be type 1

Well if you're not making any insulin of your own then it makes sense that you are on injections. Can I ask what sort of insulin regime you are on and whether you get a cgm on the nhs ? T1s qualify for better tech on the NHS so it may be worth pushing for a referral to an endocrinologist if you feel that a rediagnosis would be helpful.