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I just can't understand what's happening

bridiesmum

bridiesmum

Member
Messages
12
Type of diabetes
Other
Treatment type
Other
I posted on Saturday that I had had blood tests taken last Friday because I was becoming so unwell after taking any form of sugar or carbs. My husband suffers with hypoglycemia so I decided to test my blood with his kit before and after eating. I decided to do this because, after eating a jacket potato with grated cheese, I became immediately sluggish, I was slurring my words and I had to lay on the sofa because I felt unwell. I tested my blood sugar and it was 13.8 only going down to 12.5 an hour later. I have had an increased thirst and more frequent urination and, more importantly, Diabetes runs in my family. I tested for 3 days on a normal diet and each time my blood sugars spiked after having carbs.

I have just phoned for my blood tests and they said "clear - no further action". I was so confused so my husband just read about post bariatric hyperglycemia. I had a gastric bypass 2 years ago and lost 5 stone but ever since the bypass I felt unwell eating pasta, rice or potato. Even though I could not each much (my husband dispairs at the amount I eat) the weight came back on. Now I read that the post bariatric hyperglycemia makes you store sugar. It answers so many questions but I am so confused now. I have telephoned the bariatric secretary and she is looking how to get me referred to the endrochronologist (sp?). My husband is the opposite, he suffers with hypoglycaemia and has to have medication with each meal or he has a hypo.

Yesterday I had a carb free day and had no problems at all. Does all this sound crazy to you?

Just as an afternote, I have felt fine all morning but just had a coffee made with milk. Immediately after drinking it my reading is 9.7. Any advice please
 
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Do you know what the actual tests were and the actual results .. not the "clear-no action" which as about as much use as a chocolate teapot...
 
I agree with @bulkbiker you need to ask for a print out of your test results so you can see for yourself what your results were. Too often we are told "all clear, no action" or "fine" when we are anything but, or at the very least we are teetering on the edge of not being fine. Please ask for one.
 
How soon after eating carbs did you test?
It is usual to test 2 hours after meals.
 
helensaramay said:
How soon after eating carbs did you test?
It is usual to test 2 hours after meals.
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I test as soon as i feel unwell. Feeling unwell doesn't really describe how i feel, i actually feel b****y awful. My heart races, I feel an increased pressure in my head, I feel like i have weights tying my legs down with each step and I sound drunk. Confusion is also a problem, not being able to find the right words to say. My blood spikes really high and then I test an hour later, usually showing only 1pt drop from my spike. I have asked for a call back from the diabetic nurse and also from the bariatric team. Something is so wrong. Have found quite a few articles on the web that they are discovering lots of cases of hypoglycemic and hyperglycemic attacks in post gastric bypass patients. I drink one hot milk drink a day because I hate eating now because of the effects suffered afterwards. At least a glass of milk gives me some protein. Other than that my husband tries to make me eat and gets totally frustrated when I eat maybe a quarter of what he puts on a small plate.
 
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bridiesmum said:
Any advice please
Click to expand...

I would suggest seeing a GP as soon as possible. Write a list of the symptoms to present to your GP. If you were to use something like WebMD and input your symptoms you'd get a long list of possibilities (slurred speech and fatigue alone gave 88 possible causes) which is why you would be better off seeing your GP who would ask the right questions to narrow down the possibilities.

Don't forget that members of this forum cannot give advise whereas your GP can.

I'm sure that having had a gastric bypass your bariatric team will have given you the correct advise to get the right number of calories and vitamins despite reduced volume, so your better half need not be so concerned.
 
Yeah a gastric bypass is a situation that doesn't really come up on these boards so I'd let your treating physicians handle this not me and my fellow forum friends. Good luck!
 
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bridiesmum said:
I test as soon as i feel unwell. Feeling unwell doesn't really describe how i feel, i actually feel bloody awful. My heart races, I feel an increased pressure in my head, I feel like i have weights tying my legs down with each step and I sound drunk. Confusion is also a problem, not being able to find the right words to say. My blood spikes really high and then I test an hour later, usually showing only 1pt drop from my spike. I have asked for a call back from the diabetic nurse and also from the bariatric team. Something is so wrong. Have found quite a few articles on the web that they are discovering lots of cases of hypoglycemic and hyperglycemic attacks in post gastric bypass patients. I drink one hot milk drink a day because I hate eating now because of the effects suffered afterwards. At least a glass of milk gives me some protein. Other than that my husband tries to make me eat and gets totally frustrated when I eat maybe a quarter of what he puts on a small plate.
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Bariatric surgery is designed to reduce your stomachs capacity.
This is what you have.

Yes your diet formation needs to change.

My only concern is your testing irratically.
You need to test with some space for comparison.... to the last test results.
You must test 2hrs after food. None diabetics rise on a carby meal.

However if you've been assigned an endocologist he/she will do more in depth testst

Ultimately diet may have to change to suit what YOUR body needs.

Well done for your weight loss with your major op. Was it a full bypass?

Many have regained their weight :(
 
Thanks for all your replies, I really appreciate the time you have taken to answer my queries. Gastric bypass isn't an easy way out. I have never been well since having it. I learnt early that i couldn't tolerate rice or pasta and mashed potato. To eat them made me ill straight away. I have now become almost phobic about food and dread the time when i have to eat and that is under the watchful eye of my husband. We have since discovered that a number of bariatric patients are suffering from hypoglycemic and hyperglycemic episodes. Those having hyperglycemic turns are also found to store the excess sugar, hence gain weight. I don't know how some people force large portions of food into themselves after the surgery because one spoon too much for me and I end up being violently sick. I have my meals on a side plate. My husband suffers from hypoglycemic episodes and is as skinny as a rake now after his bypass. He was 23 stone when he started. As per my introduction, I also have blood cancer and am on daily chemotherapy medication and lots of pain meds which can be blamed for weight gain so I put it down to that. I absolutely hate eating food, pure and simple and the worse I am getting with these horrible episodes of dizziness, slurred speech and chronic tiredness, the more i don't want to eat. The endrochronologist's secretary phoned me today and said I need to be referred by my GP so, as my GP runs a phone assessment service first, I am waiting for his call to set the ball rolling. All I know is I cannot go on the way I am. Sorry for the long post.
 
bridiesmum said:
Thanks for all your replies, I really appreciate the time you have taken to answer my queries. Gastric bypass isn't an easy way out. I have never been well since having it. I learnt early that i couldn't tolerate rice or pasta and mashed potato. To eat them made me ill straight away. I have now become almost phobic about food and dread the time when i have to eat and that is under the watchful eye of my husband. We have since discovered that a number of bariatric patients are suffering from hypoglycemic and hyperglycemic episodes. Those having hyperglycemic turns are also found to store the excess sugar, hence gain weight. I don't know how some people force large portions of food into themselves after the surgery because one spoon too much for me and I end up being violently sick. I have my meals on a side plate. My husband suffers from hypoglycemic episodes and is as skinny as a rake now after his bypass. He was 23 stone when he started. As per my introduction, I also have blood cancer and am on daily chemotherapy medication and lots of pain meds which can be blamed for weight gain so I put it down to that. I absolutely hate eating food, pure and simple and the worse I am getting with these horrible episodes of dizziness, slurred speech and chronic tiredness, the more i don't want to eat. The endrochronologist's secretary phoned me today and said I need to be referred by my GP so, as my GP runs a phone assessment service first, I am waiting for his call to set the ball rolling. All I know is I cannot go on the way I am. Sorry for the long post.
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@bridiesmum I'm due for my bypass this year.
Huge amounts of patients readd the weight.

Because?
They stretch their stomach and eat foods which are high in calories.
You are still not officially diabetic then? GP aware you feel you could be diabetic?
Did you say your hba1c said not diabetic?

I think a diagnosis will be the first point of call. Don't panic whatever the diagnosis. We are still here.

Food wise.
You need to accept you are responsible for giving your new body what it needs. New needs.
New needs that you are far more than capable of providing, than you think.

All our bodies are different. Your new one too. It isn't the same as your hubbies before op nor after.

Start accepting your body and feed it the away it needs to be.
Not the way you or your dietician says it should be.
It's telling you what it can accept. Listen to your new body. Please.

Get your info out which you were given preop. Remember how you felt and your mindset then. Nothing has changed. Just your whole digestive system.
Give it like a new baby. Small small amounts.
Are you able at exercise? Partner too?

Psychologists are getting the job to iron out our new body old overeating mindset.
That overeating you... Has gone. Let it go.Forever!!!
 
Hey bridiesmum, sorry to hear of your plight......especially with the chemotherapy, it does a horrible number on your digestive tract, and if someone hasn't experienced like you and me, then they don't really get the full picture....I wonder if you were able to make a shake if it would be palatable....can you tolerate a bit of yogurt with a bit of fruit like a few raspberries and maybe a few walnuts thrown in with coconut milk or almond milk? Oddly, I found grape juice was my go to after chemo treatments!! Does fish like salmon or tuna sit well with you? I would encourage you to quit eating carbs that you know make you feel horrible - think of yourself as allergic to them! It really isn't serving you any benefit to put yourself through that and testing....except to upset you further......

I would encourage you like everyone else has, to seek medical help/intervention. Be sure you write everything down as it is too easy to forget what you want to address when actually face to face! Hang in there as "this too shall pass" and you need to concentrate on conquering your cancer and when able, deal with other issues. (And tell the Hubby to chill - you don't need his anxiety on top of everything else!! He's doing it out of love, but it's time to change tactics - just to be there for you!!)

Let us know how you get on! Keep posting if it helps you to get it out of your system! (No pun intended:)) Blessings/L
 
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