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I think I'm misdiagnosed as type 1 (may be actually type 2)

Discussion in 'Ask A Question' started by Muskogee, Jan 12, 2021.

  1. Muskogee

    Muskogee · Newbie

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    I got labelled with type 1 diabetes diagnosis 2 years ago. But I don't know if it fits right, since I don't need insulin.

    At diagnosis:

    25 years old
    BMI 22
    Lowish c pep
    Antibodies found (GAD)
    High ketones
    A1C: 106

    I was active gym x3/ week and cycled every day and training for running.

    My diet was average vegetarian diet (not much processed foods, but I didn't shy away from the high carb rice and potatoes etc).

    After diagnosis:

    I switched to strict keto diet right after. I do less weights at the gym and more cardio exercise these days and have progressively lost about 6kg over 2 years (BMI now 19). My insulin needs dropped off rapidly within 3 months of diagnosis and then tapered off more slowly until now I'm at the point where I don't need any insulin and my A1c is 29.

    It seems like diet and weight loss were key for me lowering my BG and I also don't need insulin.

    So I think I could be type 2 not type 1.

    Could the anti body result be a false positive?
  2. AlfonsoJones

    AlfonsoJones · Member

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    If you’ve stopped taking insulin and you’re not in hospital then you’re own pancreas must still be functioning to some degree... sounds likely that there’s a downwards trajectory though like a honeymoon period. What are your glucose readings? Confirm- you’re taking no insulin at all?
  3. Rokaab

    Rokaab Type 1 · Well-Known Member

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    It could be LADA - which means the destruction of your beta-cells happens slower, but it does happen in the end.
    I believe there are a number of people with LADA on these forums who have had long honeymoon periods using keto.
    My understanding is that LADA is slow onset Type 1 - I would think low C-peptide results and positive antibodies would mean T1 or LADA - but obviously I'm no doctor
    • Agree Agree x 2
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