This is not going to be very helpful but I'll report it anyway. My wife had this some years ago (bad seizure to begin with, went away, then much worse some years later, couldn't move neck without agony), saw orthodopedic specialist (big name, now works with Team GB) who said options were (i) surgery (which he did not recommend) and (ii) 'it might gradually go away'. She saw a good chiropractor for the referred pain in arm. other physios (some good, some awful) and VERY slowly, incrementally, over 3 or 4 years, the pain went away. She's now fine, but still gets the odd twinge. And you and she are .. ahem ... similar age. I don't know whether this is good or bad news, or merely irrelevant. I wish I could be more helpful -- it is so horrible to see someone (either literally or via the forum) in such pain and feel so helpless. Take care and be kind to yourself.