Hi @Diddlydill , welcome to the forum.Hello
I have a son who is 29 in October. He has Down's Syndrome, Type 1 Diabetes (dx aged 10) and Coeliacs disease (age 11). He has very recently moved into a Supported Living service 15 or so miles away. We have been working on this for years as hubby is now 70 and I am 63 (and have Parkinson’s disease). We thought we would have horrendous problems with M accepting the transition but that bit has gone amazingly well. However I am horrified to be told by the Care team that they cannot share M's blood glucose readings without his permission!!! It has always been acknowledged that whilst staff are on a steep learning curve we would have to work closely together until they are up to speed and have some experience under their belt. They refused to share bloods and decided that M did not have capacity to consent to this sharing of personal information and so we now need a Best Interest meeting to see if it is in M’s Best Interest to share his bloods with us. HELLO. I sent them an email saying we consider that they are endangering M's health and we hold them fully responsible if anything happens and low and behold they have suddenly agreed to send us his bloods 3 times a week. But they added that if we give them advice to change anything about his regime they cannot act on it because we are not medical professionals!!
Has any parent had experience of managing type 1 in a Supported Living service when the young person has learning difficulties and cannot manage the diabetes on his own?
Any advice gratefully received.
Diddlyd
Hello
I have a son who is 29 in October. He has Down's Syndrome, Type 1 Diabetes (dx aged 10) and Coeliacs disease (age 11). He has very recently moved into a Supported Living service 15 or so miles away. We have been working on this for years as hubby is now 70 and I am 63 (and have Parkinson’s disease). We thought we would have horrendous problems with M accepting the transition but that bit has gone amazingly well. However I am horrified to be told by the Care team that they cannot share M's blood glucose readings without his permission!!! It has always been acknowledged that whilst staff are on a steep learning curve we would have to work closely together until they are up to speed and have some experience under their belt. They refused to share bloods and decided that M did not have capacity to consent to this sharing of personal information and so we now need a Best Interest meeting to see if it is in M’s Best Interest to share his bloods with us. HELLO. I sent them an email saying we consider that they are endangering M's health and we hold them fully responsible if anything happens and low and behold they have suddenly agreed to send us his bloods 3 times a week. But they added that if we give them advice to change anything about his regime they cannot act on it because we are not medical professionals!!
Has any parent had experience of managing type 1 in a Supported Living service when the young person has learning difficulties and cannot manage the diabetes on his own?
Any advice gratefully received.
Diddlyd
Leigh EllisThis thread will hopefully let us to get to know one another better and allow us to see which users we might share similarities with. I've listed a set of questions below that you can answer to tell us more about yourself. By no means do you have to answer all of them, and if you feel like adding further information, feel free.
- Include a photo here if you wish to.
- What is your name?
- How old are you?
- Are you male or female?
- Which country are you from?
- Which city/area do you live in?
- Are you religious?
- Pick three words to describe your personality.
- Do you have any pets?
- Microsoft or Apple?
- Which sport(s) (if any) do you like/play?
- Do you get angry easily?
- Do you have any tattoos or piercings? If so, where?
- List your five favourite musicians/bands.
- What would you say your favourite music genre is?
- What is your favourite flag?
- Ever gone camping?
- Ever been in love?
- Ever used fake tan?
- Which countries have you visited?
- Favourite city?
- List your five favourite TV programmes.
- List your five favourite films.
- Are you wealthy?
- Do you work? If so, as what?
- List the subjects you study/have studied.
- What do you like most about yourself?
- What do you like least about yourself?
Have fun!
Hello I'm Shankar, 39, Male. Type 2. Looking forward to learn from and conyribute to the community.This thread will hopefully let us to get to know one another better and allow us to see which users we might share similarities with. I've listed a set of questions below that you can answer to tell us more about yourself. By no means do you have to answer all of them, and if you feel like adding further information, feel free.
- Include a photo here if you wish to.
- What is your name?
- How old are you?
- Are you male or female?
- Which country are you from?
- Which city/area do you live in?
- Are you religious?
- Pick three words to describe your personality.
- Do you have any pets?
- Microsoft or Apple?
- Which sport(s) (if any) do you like/play?
- Do you get angry easily?
- Do you have any tattoos or piercings? If so, where?
- List your five favourite musicians/bands.
- What would you say your favourite music genre is?
- What is your favourite flag?
- Ever gone camping?
- Ever been in love?
- Ever used fake tan?
- Which countries have you visited?
- Favourite city?
- List your five favourite TV programmes.
- List your five favourite films.
- Are you wealthy?
- Do you work? If so, as what?
- List the subjects you study/have studied.
- What do you like most about yourself?
- What do you like least about yourself?
Have fun!
This thread will hopefully let us to get to know one another better and allow us to see which users we might share similarities with. I've listed a set of questions below that you can answer to tell us more about yourself. By no means do you have to answer all of them, and if you feel like adding further information, feel free.
- Include a photo here if you wish to.
- What is your name? Stuart
- How old are you? 46
- Are you male or female? Male
- Which country are you from? UK
- Which city/area do you live in? East Sussex
- Are you religious? No
- Pick three words to describe your personality. Sarcastic, helpful, friendly
- Do you have any pets? None
- Microsoft or Apple? Microsoft
- Which sport(s) (if any) do you like/play? None
- Do you get angry easily? Yes
- Do you have any tattoos or piercings? If so, where? Ear (left)
- List your five favourite musicians/bands. Queen, Mike Oldfield
- What would you say your favourite music genre is? Miscellaneous
- What is your favourite flag? None
- Ever gone camping? Yes
- Ever been in love? Yes
- Ever used fake tan? No
- Which countries have you visited? Australia, U. S. A., Wales
- Favourite city? Sydney
- List your five favourite TV programmes. Bake off, QI,
- List your five favourite films. The Green Mile, Sister Act 1&2, Pride, Priscilla Queen of the Desert, Too Wong Foo, Kinky Boots
- Are you wealthy? No
- Do you work? If so, as what? No
- List the subjects you study/have studied. N/A
- What do you like most about yourself? Nothing Really
- What do you like least about yourself? All my illnesses
Have fun!
name? Lakshmi Narayanan (He/Him)This thread will hopefully let us to get to know one another better and allow us to see which users we might share similarities with. I've listed a set of questions below that you can answer to tell us more about yourself. By no means do you have to answer all of them, and if you feel like adding further information, feel free.
- Include a photo here if you wish to.
- What is your name?
- How old are you?
- Are you male or female?
- Which country are you from?
- Which city/area do you live in?
- Are you religious?
- Pick three words to describe your personality.
- Do you have any pets?
- Microsoft or Apple?
- Which sport(s) (if any) do you like/play?
- Do you get angry easily?
- Do you have any tattoos or piercings? If so, where?
- List your five favourite musicians/bands.
- What would you say your favourite music genre is?
- What is your favourite flag?
- Ever gone camping?
- Ever been in love?
- Ever used fake tan?
- Which countries have you visited?
- Favourite city?
- List your five favourite TV programmes.
- List your five favourite films.
- Are you wealthy?
- Do you work? If so, as what?
- List the subjects you study/have studied.
- What do you like most about yourself?
- What do you like least about yourself?
Have fun!
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