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Type 2 Inviting Input!

I think you're my pain twin!

Funny story about Tramadol and vitamin D deficiency...

Just before my diagnosis, I found what turned out to be a huge abscess on my chest (well, boob, but they've long since blurred their boundaries) which burst (like a volcano), and I figured I should get a doc to look at it. Anyway, couldn't get into the surgery for a couple of days, by which time, the hellish thing had pretty much emptied itself so no further action was needed.

Doc gave me antibiotics and, while I was there (I find it super-hard to align my stars enough to get to the surgery) I figured I'd renew my omeprazole and tramadol prescriptions. I use, maybe, 4 or 5 tramadol a month, but it's one of those drugs that you might not need for ages, but when you're in that particular kind of post-numb recovery, it's the ONLY thing that works (I'm certain you know what I mean).

Anyway. Filled the scripts, got home, sorted Euan, made food blah blah - by the time I could just rest I was shattered, through and through. Then remembered I hadn't taken my antibiotics, grabbed the box, threw one back, fell asleep. Grand.

The next day, woke up after a shockingly restful night of sleep, took another antibiotic, had breakfast, felt fabulous went on with my day. By the time Euan went to bed, I was emailing my "boss" (used to be my boss, now just a wonderful friend, but she hates being called "Boss", so, naturally, I call her that constantly) about this incredible antibiotic I was on and how rapid my improvement had been.

Took me 2 days to realise what you've already figured out: the Flucloxacillin course was untouched in my medicine drawer and half of my Tramadol prescription was gone.

The doc today was kind enough to listen to my reason for needing a top up without smirking even a little bit. And when I'd finished, she printed something off her computer, circled a number in red and said, "And that's why we need to get your vitamin D levels up."

Re: Pain management and The Fiendish Opiates
I saw in your sig what you're taking them for (Edit: I'm sorry, that sounded cold upon rereading. Quite simply, I have no way to relate to what you've been through and survived, so my mind made no attempt to. I am, however, a little bit in awe of you and how positive you are, and that you're still making yourself available to others for help and advice, even after all that sh*t. More power to you.).

There was about a 4 month period when I relied on tramadol to function at all. It became such a part of my existence that I named my routine "The Sucker Punch" (my double-blocked kidneys (apart from almost killing me by causing Sepsis) were opened by urethral stents which wandered about for a month. One ended up coiled in my bladder, the other one tangled in my kidney). This was liquid paracetamol and soluble asprin, offset from each other by about 30 minutes, with a tramadol chaser. The overall effect was - after about 40 minutes - a sudden and incredible complete relief of my pain which was accompanied by 30 minutes of clear-mindedness and then doo-lally daydreams while I fell asleep for 3 hours until the pain woke me and it all started over.

Heh. Not what I was intending to say, but I'll leave it for you anyway!

For 2 days of the week, I would come off my Sucker Punch and rely solely upon paracetamol and ibuprofen (utterly ineffective). I'd take phenergan to make me drowsy enough to fall - and stay - asleep (it's a first-generation anti-histamine, so non-addictive, and with powerful "Don't Operate Heavy Machinery" side-effects. I love the stuff).

I would put myself through this on a weekly basis because I was (and remain) utterly terrified of either dependancy or addiction. I understand if it's too personal a question for an open post on a public forum, but how do you manage that side of it?
 
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I think you're my pain twin!

Funny story about Tramadol and vitamin D deficiency...

Just before my diagnosis, I found what turned out to be a huge abscess on my chest (well, boob, but they've long since blurred their boundaries) which burst (like a volcano), and I figured I should get a doc to look at it. Anyway, couldn't get into the surgery for a couple of days, by which time, the hellish thing had pretty much emptied itself so no further action was needed.

Doc gave me antibiotics and, while I was there (I find it super-hard to align my stars enough to get to the surgery) I figured I'd renew my omeprazole and tramadol prescriptions. I use, maybe, 4 or 5 tramadol a month, but it's one of those drugs that you mind not need for ages, but when you're in that particular kind of post-numb recovery, it's the ONLY thing that works (I'm certain you know what I mean).

Anyway. Filled the scripts, got home, sorted Euan, made food blah blah - by the time I could just rest I was shattered, through and through. Then remembered I hadn't taken my antibiotics, grabbed the box, threw one back, fell asleep. Grand.

The next day, woke up after a shockingly restful night of sleep, took another antibiotic, had breakfast, felt fabulous went on with my day. By the time Euan went to bed, I was emailing my "boss" (used to be my boss, now just a wonderful friend, but she hates being called "Boss", so, naturally, I call her that constantly) about this incredible antibiotic I was on and how rapid my improvement had been.

Took me 2 days to realise what you've already figured out: the Flucloxacillin course was untouched in my medicine drawer and half of my Tramadol prescription was gone.

The doc today was kind enough to listen to my reason for needing a top up without smirking even a little bit. And when I'd finished, she printed something off her computer, circled a number in red and said, "And that's why we need to get your vitamin D levels up."
Wow, so easily done. It's scary how easy.

I'm writing down the time I'm taking my 2x50mg tramadol to not exceed them. I have a little book and pen next to them in prescription cupboard.
Scaringly I'm taking 100mg x 4times a day. I occasionally take 100mgx3 but when I do I don't sleep well and get up like a stiff with rigor mortis. Agony then til 6 tablets back in system.
I know I need to try and reduce them but I was originally prescribed them as 1or2 4 times a day but not to exceed dose. They only work once been in system regularly for me.
I can walk with these, otherwise I'm in too much pain to walk....at all.
 
Honestly, struggling a little over the weekend. I went low-carb before I really had a houseful of appropriate food (my last shop was low-fat, not low-carb), I'm out of test strips and the replacement ones I ordered are slow to arrive, the new drug (Jardiance) is proving to be a rocky ride and, to top it all off, I got my period last night - and it's an absolute rager.

I figure if I can get through this, to calmer waters, I'll be fine. Need the groceries and test strips to arrive. And to stop peeing...

My newly-rediscovered sunny disposition is being tested!

How are you, @ickihun ?
 
A belated welcome @SockFiddler . I am not in your position at all but wonder if you know anyone who has a 'bodyblade' that you could try. It is a long stick that was designed by an American physiotherapist to help his patients who were wheelchair bound to exercise whatever muscles were still working for them. Have a look on youtube search bodyblade and there is a routine at the bottom of the page for using the blade sitting. I suggest that you try one if possible before you order because of the shape it is expensive to return. It is not as effective as walking, the muscle groups used are not as big, but it is useful to make a start, to keep toned and it takes up very little room. The online facebook group is also very supportive.

Your Euan sounds a wonderful child, although I am sure he has his moments, they all do! If he has a special rapport with the nurse ask her to explain to him in simple terms about the T2 if you are not confident doing it yourself. Children take on board as much as they can, if you are not panicked then they tend not to be either. You might find that he really likes your 'special mashes', cauliflower or broccoli with butter and cheese. I remember as a child eating tomato soup from my father's dish but I didn't like it from my own! He will probably keep a closer eye on your diet than you would like.

Best wishes
 
Honestly, struggling a little over the weekend. I went low-carb before I really had a houseful of appropriate food (my last shop was low-fat, not low-carb), I'm out of test strips and the replacement ones I ordered are slow to arrive, the new drug (Jardiance) is proving to be a rocky ride and, to top it all off, I got my period last night - and it's an absolute rager.

I figure if I can get through this, to calmer waters, I'll be fine. Need the groceries and test strips to arrive. And to stop peeing...

My newly-rediscovered sunny disposition is being tested!

How are you, @ickihun ?
Just back from Asthma clinic and told I'm overdosing on my reliever. Also kidneys complaining and liver complaining via test results but probables due to all my tablets/meds.
Vit c just insufficient not deficient so pleased about that.

I'm back in 4wks for another review.
I have a lovely nurse. She is a gem.

I'm off to bed as shattered. I wish I had more energy and stamina.
4yr old sleeping after pre-school booster inj.
I wish I could keep my eyes open more! Ha ha

Maybe I'm overdosed on inhalers so once I relax it I may be more energetic? Fingers crossed. ;)

Ps we got 'I've been brave at the doctors today' sticker. Ha ha
 
Aaaw @ickihun much love and hugs <3 Get well soon, you x I spent the morning staring at a grapefruit that I couldn't bring myself to eat and then sleeping for 3 hours. Now I'm due another Glucopee...

Thanks for the welcome, @Phoenix55 !

The body blade sounds like an interesting idea - I'll look for one in a moment. At least if I can tone my arms and upper body it's not all lost, eh?

Euan is a special boy - not just mum talk! He got a lot out of the nurse appointment and, since then, is slowly getting more fascinated by what I'm eating. Today's shopping is the first proper low-carb shop I've done and it's pretty much all meat and veggies. I'm curious to see how he reacts to it :)
 
Hello. I dont know if this is the place to post this I am a techno nightmare. I have been a type 2 for about 7 yrs. I am on metformin 1000mg SR. I moved doctors just over 2 yrs ago ergo a new diabetic nurse. I will admit that she and I do not get on. My wife now comes to all my appointments. my last 2 HbA1c test were 44 and 40 ( ihave due to personal reasons been on a very strict diet ie 1800 cals a day. cut alcohol down to 2 untis a month. She seems hell bent on taking me off of the Met. I have told her that without my HbA1c would be higher (this after taking advice from this helpline and the diabetic nurse in the local city hospital. I have been taken off of the tablets on 4 previous occasions, and all tho i stuck to my diet at the time about 2100 cals perday my BG went up to daily reading of 10 + I had major surgery during one of these spells and due to infection ended up back in hospital for 19 days with a major infection. This same thing has happened to my father and 2 other family members. I have had heart problems as have all my relatives. I have told her all this and all i get "well its mine and the doctors decision not yours" I was so down in the dumps last time she had a go that i came off of the met. for 4 days I was ill and my wife was furious as I had not told anyone. After all this my Question is has anyone else had simillar and/or am I doing the right thing. Thanks for reading a long rant.
 
He @justaguy and welcome to the forum!

If you plug your last HbA1c readings (44 and 40) into the chart on this page:

http://www.diabetes.co.uk/what-is-hba1c.html

You'll see that your 44 is just inside the diabetic range, and your 40 is just under it - congratulations! Your hard work is paying off! I'm still sorry to read of the other trials you've been through, but certainly, your hard work on your diet has made a difference to your illness.

It does sound like your diabetic nurse is a bit of a battleaxe but, I suspect, she wants to reduce / remove your Metformin because your HbA1c readings are looking so positive. Is there anyone else you can talk to for clarification and guidance? Not knowing your medical history (or being able to understand it if I did!) there might be complicating factors that influence the decision. Maybe your family doctor can offer you some support and information about this?

As for "the right thing", only you can really know that. There's lots of information here, lots of stories and examples of people managing their T2 in different ways. My advice would be to clue up and then to figure out what works for you. If you can find a way to control your illness, not make other health concerns worse AND stop your wife from yelling at you, it seems you will have struck upon "the right thing" for you.

Much luck and love - and confidence: the numbers are moving in the right direction!

Sock x
 
He @justaguy and welcome to the forum!

If you plug your last HbA1c readings (44 and 40) into the chart on this page:

http://www.diabetes.co.uk/what-is-hba1c.html

You'll see that your 44 is just inside the diabetic range, and your 40 is just under it - congratulations! Your hard work is paying off! I'm still sorry to read of the other trials you've been through, but certainly, your hard work on your diet has made a difference to your illness.

It does sound like your diabetic nurse is a bit of a battleaxe but, I suspect, she wants to reduce / remove your Metformin because your HbA1c readings are looking so positive. Is there anyone else you can talk to for clarification and guidance? Not knowing your medical history (or being able to understand it if I did!) there might be complicating factors that influence the decision. Maybe your family doctor can offer you some support and information about this?

As for "the right thing", only you can really know that. There's lots of information here, lots of stories and examples of people managing their T2 in different ways. My advice would be to clue up and then to figure out what works for you. If you can find a way to control your illness, not make other health concerns worse AND stop your wife from yelling at you, it seems you will have struck upon "the right thing" for you.

Much luck and love - and confidence: the numbers are moving in the right direction!

Sock x
hello and thanks for the response.

I have various medical problems/conditions. One reason I want to stay on the Met. Is that I have had a heart attack, its a family thing. I find excercise very diffuclt, as I am currently awaiting 2 joint replacement operations, again another reason i would like the comfort of the Met. Having had many many infections when my BS were all over the place. My wife worked out over the last few years I have spent an extra 29 days in hospital due to infections, after surgery ( that shocked me).

I also feel the Met. is helping with my weight loss, call it a security blanket but we all need one sometimes. The reason for the weight loss is that 1) I felt I must help myself and 2) I got fed up with the snide remarks of the said nurse. after some reasearch I am led to beleive that stopping the Met. might put my reading up to 53+, as I said been taken off of meds before and it took many months to regulate my BS. A process I dont want to got through again. Why should I ? Being a bit millitant there lol.

Once again thanks for the support.
 
Do whatever's best for you, @justaguy though I'm sorry to read more about your health issues. I can't speak to your issues (or the impact of Met upon your health) at all, but what I can say is that there's a variety of people here, many of whom have managed to control their illness - even push it into remission - with diet alone, including those with other (serious) health complications, those who can't exercise or move easily and those who, like you, had various medical security blankets.

You said you're on a strict diet - I'm wondering how you feel about carbs and whether they're encouraged or limited in your diet. Lots of us have seen immediate (within a week) improvement in our general health by limiting how many carbs we eat, and there are many incredible stories here (just look at people's forum sigs!) of people who have significantly changed their outcomes by eating a low carb diet.

I'm not pushing you to consider anything you're not ready to do. Merely saying that there's a lot of experience, advice and support available here if you do want to try a different approach for a while to see how it floats.
 
Hello. I dont know if this is the place to post this I am a techno nightmare. I have been a type 2 for about 7 yrs. I am on metformin 1000mg SR. I moved doctors just over 2 yrs ago ergo a new diabetic nurse. I will admit that she and I do not get on. My wife now comes to all my appointments. my last 2 HbA1c test were 44 and 40 ( ihave due to personal reasons been on a very strict diet ie 1800 cals a day. cut alcohol down to 2 untis a month. She seems hell bent on taking me off of the Met. I have told her that without my HbA1c would be higher (this after taking advice from this helpline and the diabetic nurse in the local city hospital. I have been taken off of the tablets on 4 previous occasions, and all tho i stuck to my diet at the time about 2100 cals perday my BG went up to daily reading of 10 + I had major surgery during one of these spells and due to infection ended up back in hospital for 19 days with a major infection. This same thing has happened to my father and 2 other family members. I have had heart problems as have all my relatives. I have told her all this and all i get "well its mine and the doctors decision not yours" I was so down in the dumps last time she had a go that i came off of the met. for 4 days I was ill and my wife was furious as I had not told anyone. After all this my Question is has anyone else had simillar and/or am I doing the right thing. Thanks for reading a long rant.

It's actually not her decision.
It is the doctors though.
But with discussion with you, to ensure you're receiving the treatment you need.
I had a similar, but more pleasant conversation, when my nurse suggested coming off the metformin. Like you, I didn't want to, so we agreed it was better to stay on it.
So yes, definitely stay on it if you want to, and if she is difficult, speak to the doctor.
 
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