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Is it peripheral neuropathy or not?

mysorian

Well-Known Member
Messages
52
Type of diabetes
Treatment type
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I have not been able to ascertain and am trying to find some answers. In 1997 I was diagnosed as a pre-diabetic with borderline Cholesterol issues. I was given some medication (they were Lipitor and Januvia as far as I can remember). I only took one dose and decided to try to make lifestyle changes as the medicines did not go well with me. Unfortunately, the diagnosis is based on a drop of blood in the doctor's office once in six months which is not enough.

I stayed on without taking medication and in 2012 We moved to Honolulu, Hawaii. Having retired I had more time to look at my health issues. The family doctor looked at me regularly every six months. The lipid profile was at the permissible standard USA levels, but the Glucose always came in slightly higher to put me for HbA1C in the range of 6.7%. It was always flagged as being high. However, my healthcare provider believed I did not need medication. I did not take any and I am not taking any.

Things came to a head when I suffered a heart attack in 2022. The attending cardiovascular doctor informed me that two of my arteries are blocked with one of them being severe. The same day he placed two stents. I am under observation and I visit the cardiologist once in four months. So far, It appears I am doing well. I take Lipitor (Atorvastatin), Clopidogrel, Losartan, low-dose aspirin, and Metoprolol) every day.

Even before the heart attack, several foot-related problems presented themselves. One day, getting off the chair to take a break from my computer, I felt a very funny feeling. It was as if I was standing on Jello pads. It was scary and I consulted the orthopedic doctor who had treated some knee problems earlier. He took X-rays, and CT scan to localize the problem and he did not find any. He suggested physiotherapy which I went through for 6 weeks. It sorts of got slightly better, but the foot problem did not completely disappear. I have tried other ways to find a solution. I have used IR irradiation, Shiatsu, consulting a podiatrist, etc. But the problem lingers.

Recently for the past three days, I have been measuring my Glucose on a CGM (FreeStyle Libre) sensor. I would like any help in understanding peripheral neuropathy. It is my guesss that I may have this condition.
 
Hi mysorian and welcome. One of the rules of this forum is that we can't diagnose or attempt to diagnose. So I can't and won't tell you whether you have peripheral neuropathy or not. That said,. I can tell you what my own experience is.

Before formal diagnosis while my A1c was somewhere in the mid 40s (I didn't know it was raised, but that's another story) I developed very painful "pinprick" and burning sensations in my feet. Worse in the evening, and worst of all overnight, often preventing sleep.

This persisted until I reduced my BGs following diagnosis four or five years later. It's now a mild tingle that couldn't be described as pain.

Other people describe a painless "numb" neuropathy - Bilous and Donnelly (Handbook of Diabetes, used by the NHS) say that sensory loss is most evident, although they don't seem to have a great deal of hard information: they say for example that prevalence of painful symptoms varies from 3% to 20% (huge variation), that the "natural history of painful neuropathy is unclear" and "the risk factors for painful neuropathy are ill-defined". They don't seem to be interested in non-painful neuropathy at all. Not a great deal of help.

There's a bit more here: https://www.diabetes.co.uk/diabetes-complications/diabetes-neuropathy.html

Best of luck
 
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