• Guest, the forum is undergoing some upgrades and so the usual themes will be unavailable for a few days. In the meantime, you can use the forum like normal. We'd love to know what you think about the forum! Take the 2025 Survey »

Type 1 It's so unfair

V

VickyMitchell

Newbie
Hi,

Seeking support after a suboptimal HbA1c today.

Diagnosed with LADA 12 years ago. On Tslim pump with dexacom CGM for 2 years running novorapid.

My HbA1c was 65 today down from 88 last time. I was hoping for 48 or less. I am so gutted as I have been working so hard on my control. I only allow myself to eat once daily and then try to stick to a simple salad. I am in range 89% of the time and otherwise running low yet my HbA1c is still so high. I tolerate mild hypo's to avoid extra carbs and only treat when I am below 3. I also tried metformin as I am a fat type 1. It makes me feel awful and hasn't helped with my control. I have lost 18kg over the last 3months and was hoping I would be rewarded with a decent result.

Not sure what else I can do. I will cut out high carb salad foods such as tomatoes and beetroot. This will push me into keto territory which has to help. Any suggestions would really help- just wish my diabetes would be reasonable and reflect how hard I am working on it.
 
VickyMitchell said:
I am in range 89% of the time and otherwise running low yet my HbA1c is still so high.
Click to expand...
This seems odd. A hba1c of 65 us associated with an average blood glucose of about 10.3, so something seems to be off.
Have you double checked your Dexcom numbers occasionally with a fingerprick to see if the Dexcom is right?
 
There are several medical conditions which distort hba1c results, eg anaemia. But as @Antje77 suggested, I'd first do a few spot checks to see of your dexcom is reading accurately.

I generally find the dexcom guess at hba1c to be reasonable (via the clarity app). You could ask your clinic for a fructosamine test if you think the hba1c is inaccurate. What did they say about the disparity between the hba1c and the dexcom readings?

Edited to add
And welcome to the forums @VickyMitchell , I just noticed that this was your first post/thread.
 
Last edited:
Hi, welcome.

Well that really isn’t fair :( You are trying so hard and not achieving your goals, you deserve better results.

But! You are doing amazing! That’s a huge drop in numbers, massive weight loss! I think you are being hard on yourself, expecting too much.

You sound pretty amazing. Well done.
 
Back
Top