Joint Pain

[Dudette1]

My levels are controlled, but it’s definitely as though My muscles are aching in the calf’s and thighs on my legs. Driving me crazy. Definitely something I’m going to talk to the doctor about.

 

[SomeBloke]

I finally managed to get hold of my Diabetic Nurse. Well, she got hold of me. Typical, she tried calling me and left me a voicemail the moment I was away from my phone!

Anyway, I'd misplaced the contact E-Mail (having no luck with their phone number), but recently managed to get hold of them, and air my concerns over there.

In the voicemail, she told me that the Toujeo and Novo Rapid do not cause side effects of muscle and joint pain that I've been suffering, and advised to speak to my GP.

Considering I already have, and all test results (blood tests, scans, etc.) have all come back as normal, I'm still somewhat stumped.

 

[Antje77]

In the voicemail, she told me that the Toujeo and Novo Rapid do not cause side effects of muscle and joint pain

Toujeo is insulin glargine, and muscle/joint pain is a known side effect of this insulin.
Toujeo is a relatively new variety of the glargine family so it may well be there isn't so mucht data on it. But in the end, it's the same kind of insulin with minor alterations so I'd expect the same side effects can occur.

 

[Lynnzhealth]

Hi,

Been a lurker for a while, but new to join.

I was diagnosed with LADA in June of this year, after being misdiagnosed with Type 2 Diabetes from January 2018.

After; diet, exercise, Metformin, Gliclazide and Sitagliptin, I am now primarily taking Insulin and Metformin to control my levels.

Throughout this tenure (and potentially for longer), I seem to be experiencing joint pain around my hips and down the back of both of my legs, and wonder if this is connected with my LADA at all?

I have occasional spikes, and my levels are generally under control with good diet, exercise and medication, but I'm finding it harder and harder to continue the regular exercise when the pain levels seem to be getting worse.

I'm wondering if anyone else has experienced similar, and if there are any ways this pain can be managed or at least reduced?

Thanks.

Hi: Your story sounds similar to mine, in that I was misdiagnosed as Type 2 in 2017 (at 69), and after having a serious DKA episode in 2019, it turns out that I actually have T1. What a game changer that was. I'm on Tresiba and Humalog (rapid). And, I do low carb eating.

Because I had the stomach staples 41 years ago, food/meds don't get absorbed as they should. It's hard to regulate just how much insulin will work each meal. And, my diabetic educator wants me to run high because of my age (74). Seriously. I don't want that so I try to keep it between 5-10 after meals. Not always easy.

I've had leg cramps over the years, however, probably due to low magnesium levels. Just recently, though, I have been having leg cramps at night. Some severe, some just enough to notice. I'm not sure if it's due to T1, low magnesium, or cleaning out flowerbeds for the winter, or a combination as well as age.

It has been a roller coaster ride for sure over the past five years. Good luck and I hope you get it sorted sooner rather than later.

 

[BUTCH BRADDON]

Hi,

Been a lurker for a while, but new to join.

I was diagnosed with LADA in June of this year, after being misdiagnosed with Type 2 Diabetes from January 2018.

After; diet, exercise, Metformin, Gliclazide and Sitagliptin, I am now primarily taking Insulin and Metformin to control my levels.

Throughout this tenure (and potentially for longer), I seem to be experiencing joint pain around my hips and down the back of both of my legs, and wonder if this is connected with my LADA at all?

I have occasional spikes, and my levels are generally under control with good diet, exercise and medication, but I'm finding it harder and harder to continue the regular exercise when the pain levels seem to be getting worse.

I'm wondering if anyone else has experienced similar, and if there are any ways this pain can be managed or at least reduced?

Thanks.

I would suggest that this is due to your diet rather than meds. I had a similar experience then removed bread, rice, and other starch products from my diet as well as all seed oils and all pains gone. Its basically an inflammation problem and all the afore mentioned foods are pro inflammatory (especially seed oils)

 

[sue512]

I had same problem, not on insulin but hba1c was 71. Within a week of low carb all my back pain and a lot of inflammation with my asthma resolved enough that I could walk distances again. Steroids for a chest infection earlier in year had same affect, consolidating idea of an inflammatory condition. Now after 4 months of low carb just left with hint of lower right pain after busy day. I’m also on high fat diet so difficult to know exactly what caused improvement but might also be worth a look at diet

 

[Melgar]

I am a new Type 2 but I have a family history of autoimmune, in fact my brother has LADA. My joints swell and become inflamed. In fact it was so bad I could not make a fist with my right hand. My elbows and wrists become painful, but then it just disappears until it flares up again. I'm controlling my T2 with diet. Not over weight and active.

 

[SomeBloke]

I would suggest that this is due to your diet rather than meds. I had a similar experience then removed bread, rice, and other starch products from my diet as well as all seed oils and all pains gone. Its basically an inflammation problem and all the afore mentioned foods are pro inflammatory (especially seed oils)

Having already removed a lot of Carbohydrates, and unhealthy foods (and maintaining this for the last few years), the pain has only seemed to have come back since increasing my doses of Insulin.

I hope it's something that will settle down in time.

 

[SomeBloke]

Long time no speak!

Having; been on Insulin for nearly a year, maintaining a good diet and 2-3 hours of exercise a week, I've reduced my overall HB1AC from 114 down to 47, maintaining a stable weight for my height. Ironic that my levels have only dropped as my weight has increased. Bare in mind, when my levels were at my highest, I was nearly underweight. So effectively, a steady growth of what I rapidly burned off, having to take moving GPs to realise I was bordering DKA.

I still occasionally get the joint pain, but have found this only happens when my blood glucose levels are high (thankfully ever going as high as 15mmol when they used to reach 30!), working out which carbohydrates trigger spiked levels (even from healthy meals!), as well as the anxiety and stress of the day to day. I'm not sure whether the first Insulin doses initially contributed to the joint pain, but with what else has been considered, this was most likely coincidental.

I've found swimming to be the best exercise, for the more obvious reasons, with my personal circumstances now allowing me to better incorporate it into my routine, using the local gym equipment at the park as well. Before, I would primarily resort to aerobic and cardio-based exercises which were causing the most grief around my hips and knees.

These days, I tend to get more Hypos than Hypers, but am in regular contact with my Diabetic Nurse and adjusting my daily doses of NovoRapid and evening dose of Toujeo accordingly, give or take a unit or two, using the usual strategies to keep my levels in check.

I do sometimes get worried that I'll put more weight on, but due to the exercises I've been doing, it seems like my body is rebuilding muscle as opposed to fat, most likely recovering what was lost before the LADA diagnosis and substantial weight loss.

Just decided to plop this update here, and still lurk and may respond in between my day-to-day!