Hi,
Thanks for all your suggestions and I will definitely give it a go. I guess due to all the anxiety I feel about my RH, change it is always a hard thing to do. I have been watching a lot of YouTube stuff about Keto diets but they always talk about diabetes and the effects, never about RH. That is why I thought to come here and see how everyone was getting on.
Next time I speak to my endocrinologist I will ask about metformin and the issues with glucagon and the liver.
And thanks for the DietDoctors website suggestion, I will be checking it out.
I am on 1000mg of slow release Metformin, I can't seem to tolerate more as it affects my stomach.
I eat every 2.5 hours, so it would be nice to be able to not eat so often. If that is even possible??
I see some people even do fasting, not sure I will ever be able to do that. I can go without food overnight thank goodness.
I also have problems with exercise and can only walk 20mins max on a good day. I would love to be able to do more or at least be able to do that every day.
I feel like sometimes I'm looking for the Holy Grail with my RH. I just want to feel better and be able to do more.
I feel like I am more realistic these days and I have stopped fighting it so hard. (in a good way, I am more accepting)
But thanks for all the help and suggestions
Lisa
The holy grail or the lightbulb moment happened on my seventy two hours fasting test in hospital.
This is one of the diagnostic tests, that is indicative of RH.
If you don't go hypo from fasting over this time, then you have the condition of RH.
If you do go hypo, then it is not the condition.And more tests should follow.
As one of my opening line, said RH is a food related condition. So fasting for more than one day should be possible. And as you say you fast overnight as you sleep. So not having an early morning meal should be ok.
I was advised to eat every three hours. It is in the text books, but you still have the symptoms and Once you stop, you go hypo. I don't eat after seven o'clock in the evening, so I go to bed knowing I won't hypo.
I use intermittent fasting.
I now understand why you feel rubbish.
That is how I felt, because I was just creating too much unused insulin because I was eating all the time, carbs and having high and low blood glucose levels. This is the cause of the symptoms and why you feel rubbish.
I have to add, a lot of doctors don't understand RH, the science of it, the way it develops, and why it is a reaction to certain foods.
I did the research, the experimenting, the discussions with my endocrinologist, to persuade him to look at the treatment other than with having not to eat carbs, ten meals a day and seeing the results from my food diary.
which showed how I was able to cope with little food, no carbs, and my blood glucose levels stayed in or around normal levels........... I did not go hypo.....And my health overall improved. My endocrinologist was shocked at my weight loss and my results.
I will add, and I have said it before on this forum. My endocrinologist told me, I was very ill before diagnosis. And if I didn't change my lifestyle, I would not be here, if I carried on.
I was diagnosed twelve years ago, I'm as healthy as is possible, and it is the diet that is the treatment, I'm not on any diabetic drugs. I have plenty of energy. No symptoms, no hypos.
Keep asking.
Best wishes.