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Late diagnosis

alhubb

Well-Known Member
Messages
101
Type of diabetes
Type 1
Hi,

This is for all those not diagnosed as a child and specifically diagnosed late twenties and above.

Do you any of you notice or think you constantly feel awful all the time compared to pre-diagnosis? I was diagnosed 2 years a go and very well controlled, but I constantly feel like s**t and pick up a cold every couple of weeks, once a month at least. I often feel like I'm hungover even though I don't drink very much or often at all.
 
What are your BG levels like?
When my BG levels are ok, I don't pick up on any more illness than I did before diagnosis (I was diagnosed in my 30s).
When my BG levels are running high, I am much more susceptible to colds, etc.
And, the problem is, when I get a cold, my BG rises, which emphasises my cold symptoms and makes it harder to get rid of the cold.
So, every time I feel a slight niggle, I test, test, correct, test, ...
Thankfully, no one has suggested I reduce my test strip usage as my response may suggest what they want to do with it.

Edited to add: diagnosis in 20s is not a late diagnosis. More than 50% of people with type 1 diabetes are diagnosed aged 20 and above. And that doesn't take into consideration misdiagnosis.
 
BG levels are fine, obviously a few highs every now and then, but my two recent HbA1c have been 40 and 49, and average around 8 mmol/L, including testing after food.
 
I was also diagnosed late 30's and as a mum thought that's it, lowered immunity and a child catching anything going would mean I would too, but have the flu jab every year and can honestly say I am the healthiest in the house and in fact probably healthier than before diagnosis, when the bad viruses/bugs were flying round earlier this year everyone in our house was ill except me. I have to admit if my BG levels are playing up then yes I can feel pretty rotten though.
 
Just curious, are you on MDI, and if so, which insulins? (Lots of complaints about lantus on these boards, though it suits some people fine.)
 
alhubb said:
Yes, I am on MDI, I am on Lantus and novorapid
Click to expand...
I found novorapid made me feel awful. I think there is a significant lack of doctors trying different insulin's with patients
 
I was diagnosed last year in my 40s and yes, felt awful for quite a while. I've had more colds this winter than ever before. Some of it was my metabolism adjusting, but I am one of those people who didn't get on well with lantus. I changed to Tresiba in Feb and felt a lot better within a week - muscle aches giving me restless nights have gone now.
 
helensaramay said:
Edited to add: diagnosis in 20s is not a late diagnosis. More than 50% of people with type 1 diabetes are diagnosed aged 20 and above. And that doesn't take into consideration misdiagnosis.
Click to expand...

Hi @helensaramay that's interesting, where is that from? I checked this out before (as a newly diagnosed Adult with T1) and found only a minority of T1 diagnosis occurs in Adults, about 1 in 4 I recall.

Hi @alhubb not as bad as you describe, but yes definitely worse then pre-diagnosis. Insulins, variable blood sugars and overall stress will all have an effect.
 
Draco16 said:
Hi @helensaramay that's interesting, where is that from? I checked this out before (as a newly diagnosed Adult with T1) and found only a minority of T1 diagnosis occurs in Adults, about 1 in 4 I recall.
Click to expand...
This is where I read it: https://blogs.diabetes.org.uk/?p=5184
I'm not sure what the source of the blog is but I think it is useful to highlight for people who are misdiagnosed as type 2 "because of age" or doctors who delay any diabetes diagnosis because of age and fitness.
 
i was diagnosed last year at 49 it has been a shock i often have like a foggy feeling in my head wether my bloods are high/low or in range never seems to quite go also im on lantus of a night never had any problems with it and was changed from apidra to fiasp 3 weeks ago but im finding now my levels are spiking longer so may ask to go bk on apidra
 
Diagnosed at 54. Now 58! Have felt fitter since diagnosis. Weigh a lot less, eat healthier and take exercise more seriously. I feel blessed that I have good family support and have a determined can do nature. I refuse to let this condition dictate what I can and cannot do.
I am lucky enough to be retired now and enjoy looking after my grandson, swimming and gardening with the village ‘In Bloom’ group. Moved house and am in the middle of decorating. I get low and high but just treat accordingly and move on.
 
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