• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Late diagnosis

alhubb

alhubb

Well-Known Member
Messages
101
Type of diabetes
Type 1
Hi,

This is for all those not diagnosed as a child and specifically diagnosed late twenties and above.

Do you any of you notice or think you constantly feel awful all the time compared to pre-diagnosis? I was diagnosed 2 years a go and very well controlled, but I constantly feel like s**t and pick up a cold every couple of weeks, once a month at least. I often feel like I'm hungover even though I don't drink very much or often at all.
 
What are your BG levels like?
When my BG levels are ok, I don't pick up on any more illness than I did before diagnosis (I was diagnosed in my 30s).
When my BG levels are running high, I am much more susceptible to colds, etc.
And, the problem is, when I get a cold, my BG rises, which emphasises my cold symptoms and makes it harder to get rid of the cold.
So, every time I feel a slight niggle, I test, test, correct, test, ...
Thankfully, no one has suggested I reduce my test strip usage as my response may suggest what they want to do with it.

Edited to add: diagnosis in 20s is not a late diagnosis. More than 50% of people with type 1 diabetes are diagnosed aged 20 and above. And that doesn't take into consideration misdiagnosis.
 
BG levels are fine, obviously a few highs every now and then, but my two recent HbA1c have been 40 and 49, and average around 8 mmol/L, including testing after food.
 
I was also diagnosed late 30's and as a mum thought that's it, lowered immunity and a child catching anything going would mean I would too, but have the flu jab every year and can honestly say I am the healthiest in the house and in fact probably healthier than before diagnosis, when the bad viruses/bugs were flying round earlier this year everyone in our house was ill except me. I have to admit if my BG levels are playing up then yes I can feel pretty rotten though.
 
Just curious, are you on MDI, and if so, which insulins? (Lots of complaints about lantus on these boards, though it suits some people fine.)
 
I was diagnosed last year in my 40s and yes, felt awful for quite a while. I've had more colds this winter than ever before. Some of it was my metabolism adjusting, but I am one of those people who didn't get on well with lantus. I changed to Tresiba in Feb and felt a lot better within a week - muscle aches giving me restless nights have gone now.
 
helensaramay said:
Edited to add: diagnosis in 20s is not a late diagnosis. More than 50% of people with type 1 diabetes are diagnosed aged 20 and above. And that doesn't take into consideration misdiagnosis.
Click to expand...

Hi @helensaramay that's interesting, where is that from? I checked this out before (as a newly diagnosed Adult with T1) and found only a minority of T1 diagnosis occurs in Adults, about 1 in 4 I recall.

Hi @alhubb not as bad as you describe, but yes definitely worse then pre-diagnosis. Insulins, variable blood sugars and overall stress will all have an effect.
 
Draco16 said:
Hi @helensaramay that's interesting, where is that from? I checked this out before (as a newly diagnosed Adult with T1) and found only a minority of T1 diagnosis occurs in Adults, about 1 in 4 I recall.
Click to expand...
This is where I read it: https://blogs.diabetes.org.uk/?p=5184
I'm not sure what the source of the blog is but I think it is useful to highlight for people who are misdiagnosed as type 2 "because of age" or doctors who delay any diabetes diagnosis because of age and fitness.
 
i was diagnosed last year at 49 it has been a shock i often have like a foggy feeling in my head wether my bloods are high/low or in range never seems to quite go also im on lantus of a night never had any problems with it and was changed from apidra to fiasp 3 weeks ago but im finding now my levels are spiking longer so may ask to go bk on apidra
 
Diagnosed at 54. Now 58! Have felt fitter since diagnosis. Weigh a lot less, eat healthier and take exercise more seriously. I feel blessed that I have good family support and have a determined can do nature. I refuse to let this condition dictate what I can and cannot do.
I am lucky enough to be retired now and enjoy looking after my grandson, swimming and gardening with the village ‘In Bloom’ group. Moved house and am in the middle of decorating. I get low and high but just treat accordingly and move on.
 
Back
Top