Hi, yes I have late dumping syndrome, I have not got diabetes nor had surgery. I did have intentional weight lose which I believe started this condition off.
it only happens early mornings and I have extreme hypoglycaemia suger levels drop below 3/ 2.5 etc
I have tried eating 2 -3 hourly but it doesn't work, the only thing that works is, I can't get up before 8am, I then have to sit down for breakfast, then sit for an hour. Then I can go out, if I got up before 8am and started chores or work straight away I would have full blown symptoms. I cant work during the morning so I now I only work late shift at the hospital.
its a very isolating syndrome, people dont understand that you have to eat regularly.
Im just in the process of researching tablets but there doesn't seem to much support for people like us. I would be happy to hear from others who have the same condition as me
Hi, I am based in the UK and I am 13 years post op having had a full bypass, about 4 years ago I started to feel really unwell after eating and started to sweat a lot, so instead of going on the internet with symptoms I trawled the bariatric forums looking for anyone that had my symptoms.
Found a few people with the same symptoms, so contacted a couple of them and they told me they were suffering from Late Dumping Syndrome.
The symptoms I get are a feeling of being unwell and I start sweating profusely, sometimes for hours other times for days, my last bout was over Christmas of 2022 when I sweated for 4 days solid and lost 20lbs in weight as I was not taking anything in, not even water as that made me dump too.
Initially I went to see my GP and told her about the symptoms I was having and that I was pretty sure that I was suffering from Late Dumping syndrome, she had never heard of it so she referred me to my nearest weight loss clinic, told them my thoughts and nothing was said, what they did say was that I needed various tests so that they could move forward.
I had various tests all proving negative, then the pandemic hit and all hospital appointments were cancelled, I got taken into hospital by ambulance on a number of occasions with dreadful sweating only to be told that all my vitals were reading as normal even my temperature, I did explain to the Doctors in A & E that I had had a stomach bypass some years ago, the Doctors did not know what to do so they told me to go home as there was nothing wrong with me, after the third time I gave up going to hospital and just suffered the sweating, just as a note the sweating I had was ice cold sweating and that caused my body to shiver, I have a thermometer at home and all it kept saying was that my skin temp was too low to read.
After 2 years and no further forward I started smoking weed, I also found a website that made THC liquid for Vape machines so I started smoking that and eventually it sent me mad with hallucinations and all sorts of mental things were going on, I was taken into hospital again and it took 2 weeks for me to start thinking like my old self, the other thing that happened to me was that I stopped eating for 10 weeks as I have never felt hungry since my bypass, I ended up loosing 35 lbs in weight.
The day I returned home there was a letter from the hospital waiting for me from the weight loss clinic and it told me that after all the tests and a conference of doctors and health professionals that I indeed was suffering from Late dumping Syndrome.
The treatment for this is a tablet called Acarbose, you start with 50mg 3 times a day before eating and initially the sweating stopped. After 2 weeks it came back again so the treatment is to increase the Acarbose to a maximum of 200mg 3 times a day before you eat and that is where I am at the moment, the sweating has not stopped, my consultant told me that if the tablets do not work then there are other drugs I could use with quite nasty side effects and after that a reversal of the bypass would be considered, I have multiple health problems all steming from a spinal injury sustained while I was the Armed Forces, as I am writing this at 9 in the morning I am sweating and it will go on all day in varying degrees, to say I am frustrated with it all is an understatement.