No idea....no matter how low it drops they still ''want it lower''. They don't know the cause or how to make it come down so every retest is just numbers. Given that it was 227 when they first tested it I would think the drop would be good news but it is always ''we will retest in 3 months''....no answers or reasons and very little advice on how I can change itWhat do they consider a normal ferritin level?
They just give me a number so no clue what units they measure in. It was 227 last May...it went down as low as 167 and they said they want it lower. No matter how high or low the numbers there is never any treatment or advice given as the nurse admitted today that they have no idea why it is higher than it should be or how to bring it down. That being the case there doesn't seem much point retesting it somehowWithout knowing the units you're measured in there, I couldn't comment, but it's worth finding out what they expect to be seeing,
Individuals affected with hereditary hemochromatosis may have no symptoms or signs (and have normal longevity), or they can have severe symptoms and signs of iron overload that include sexual dysfunction, heart failure, joint pains, cirrhosis of the liver, diabetes, fatigue, and darkening of skin.
She wouldn't give me the breakdown....was too busy lecturing me on what I eat. They have only done a liver scan which was normal....It is just one retest after another and getting me nowhereso did they give you the cholesterol breakdown? A total figure is a waste of time. You need the HDL and Trig levels. Demand they test these next time. High ferritin levels probably means you have a lot of iron in your body. Have they tested you for hemochromatosis
Thank you for that....I really needed it. I feel so very disillusioned and down in the dumps after seeing the nurse. I asked her if she had any idea how hard it is to do everything right....especially when there is always someone there waiting to take yet another armful of blood and beat you up with the results. Time to evaluate my situation, check where I can make improvements and start all over againHi @Gezzabelle
I've just looked at your signature box and I believe even though you need to update it, you are really doing well.
You are doing so well, that, the dsn, shouldn't deflect what you have achieved so far.
Others will help you with your ferratin levels, I have no idea.
Every time you have your check up, you end coming out of it more frustrated and there is no pat on the back well done or congratulations on what 'you' have done!
Not her, not your doctor, 'you'!
This is similar to the doctors visit, when I asked the locum, why can't I lose weight?
He said ' eat less!' Nowt about sugars, carbs, calories, alcohol,plate size, vegetables, good grains, complex carbs, nowt about fast food, or fats, low fat, fruit.
'Eat less'!
So I ate less and still put on weight!
I take most advice from GPs and dsns about dietary advice with a pinch of salt!
I was taking their advice for ten years, and kept putting on weight!
Don't take her words to heart, better and more useful advice can be had on here anytime!
Thank you for that....I really needed it. I feel so very disillusioned and down in the dumps after seeing the nurse. I asked her if she had any idea how hard it is to do everything right....especially when there is always someone there waiting to take yet another armful of blood and beat you up with the results. Time to evaluate my situation, check where I can make improvements and start all over again
Wow Amazing HbA1c....how on earth have you got it that low? I refuse to take any medication that has a likelihood of raising my BG.Hi @Gezzabelle I always have the statins 'debate' with my DSN even though it is in my records that they pushed my hba1c up from 48 to 54 and I had other side effects. My hba1c is currently 36 and total cholesterol 5.2 (HDL 1.8, LDL 3.1 and Triglycerides 0.8) and when I asked her why she was still trying to get me to take statins with 'normal' blood levels I was told that all diabetics should be 4 or under regardless of their BS levels.
I stopped taking statins which I have no intention of taking again and went low carb! When I first mentioned that my hba1c had risen at the same time as starting statins and I'd read there could be a correlation I was told not to believe all I read in the papers - her face was a picture when I told her I got it from the drug company's own website!Wow Amazing HbA1c....how on earth have you got it that low? I refuse to take any medication that has a likelihood of raising my BG.
Gezzabelle - My total cholesterol is always a talking point. I took my GP on a voyage of discovery by introducing her to Prof Ken Sikaris and others when we spoke. I called it my AB Lipids Distance Learning Module... But, over time, she has got the idea and she is now delighted with my numbers, despite the inconveniently large number which represents the meaningless total cholesterol.Just back from a review for my latest blood tests. I was tested for cholesterol and ferritin again. My FBG is 5.5....Cholesterol 5.9....and Ferritin 171. The rise for cholesterol that caused the retest was a measly point one....and so the debate about putting me on statins began. I said okay....You tell me I am Pre diabetic and at high risk of developing Type 2....I go away with no help or advice from anyone and changed the way I eat which resulted in me losing 2 stones in weight and I got my BG down into non diabetic numbers. You now want to put me on statins that would more than likely undo all of my good work and push me into diabetic status. The fact that my cholesterol had only gone up point one shows that how I am eating ( LCHF) is working. She said I MUST NOT eat butter, extra virgin olive oil, cream, pork scratchings, cream etc.....I pointed out that NOT eating them would result in even more weight loss and higher numbers on everything including my BG. She actually listened to me and finally agreed that I am in an impossible situation.....if I don't eat a little saturated fat I will lose ridiculous amounts of weight and not be able to stop it and if I take statins I will end up diabetic. I have to be retested again in 3 months.....for ferritin and a full blood check if they bother sending for me. The have no clue why my ferritin is high so it seems pointless as they never do anything no matter how high it goes. The doctor said that as long as I am aware of the risks of not taking statins then it's fine for me to refuse them. At least I won the battle this time....as for what I am supposed to eat now...who knows....I am at my wits end from trying to please them. She asked if I had got a diet sheet....I said Ohhh you mean the one that tells me to eat all that ''healthy'' brown bread, rice and pasta and copious amounts of high carb veggies?....she said ...''yes...the one with all the wrong advice on it'' and shook her head and as I left she said....''think positive and keep your chin up''.....easier said than done was my reply as I closed the door behind me.
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