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Libre2 Prescription rejected

Smiter55 said:
If 3 isn't hypo I'd like to know what it is as I was just below that, couldn't stand up sweating, confused and slurred speech.
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It is. Sweating is normally the first thing that happens with me, and I'm aware.

After being prescribed Setraline (anti-depression drug) I went from sweating to being found unconscious on the floor on the concrete, outside in the freezing cold with extreme hypos by various people, twice in one week.
 
josette_bartlett said:
That is definitely not the case down in the Southwest. I get seen by my Diabetes Consultant every 6 months and he still hasn't prescribed it for me even though I went down the route of asking for a free trial from Abbott online (as that's what I was told to do by my nurse). In the 2 weeks trial I was shocked to see some things I'd never knew was happening. I have been Type 1 diabetic on insulin for 27 years. I always had great hypo alertness. While I was trialing the Libre for 2 weeks, one of the results that came back was how many hypos were registered on the Libre but I wasn't aware of the hypo until my readings got down to 2.2 with some as low as 1.8. The only thing my Consultant said about these results is that the Libre is not accurate. He even said that 3.0 isn't a hypo. Absolutely unbelievable.
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I hate to say this, but the only way I qualified for Libre2 sensors was because I had had enough after 46 years, and attempted suicide. It’s obviously NOT something I would recommend, and something that I deeply regret.
However, because my hba1c was near perfect, they wouldn’t entertain the possibility.
My point is, whatever your problems are, you need to give them the worst day you’ve ever had, over and over again.
As anyone with type 1 can tell you, a hba1c result doesn’t tell any of the story. Your average can be 6.5 repeatedly, but that could just be the middle line as it jumps up and down from 2 to 16 in a repeated cycle. A cycle that is deeply disturbing for day to day life. As for using finger prickers, I couldn’t actually feel my fingertips anymore. Keep trying and don’t give up, it took me 12 months, but I managed to get these on prescription finally. They have improved things, including my mental health. Mine were eventually given as a trial by the diabetic nurse team, not the Consultants, who if you want the truth were as useful as a chocolate fire guard, maybe ask to see a diabetic nurse for carb counting advice and work your way onto it that way? If you’ve hit a wall with the Consultant, it may be the way to go? Good luck.
 
JudiP said:
I found that the Libre reads at least two units lower than the Accuchek monitor which I was using. I now find that if I keep my bedtime reading to 10 (as I have been doing because my levels drop considerably by morning) I keep getting early morning alarms because they have dropped to around 3. I certainly don’t feel hypo at that level and I would have done with the Accuchek so it does make you wonder about the accuracy of the Libre.
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Yes, I also have found that the Libre 2 shows a difference of 1-2 units to my Glucomen meter. This is not just a one-off observation - it's experience over 12 months. I usually aimm for 11 or 12 when going to bed knowing I'll end up with 6 ready for breakfast.
 
I am still fighting the local health authority over getting one. The hospital diabetics nurse agrees I should have one as I take insulin at least 4 times a day, I test over 8 times a day, but also have bad shakes in my hand ( being tested for Parkinsons) making it difficult to finger prick. I also live on my own as my wife passed away suddenly earlier this year and she used to help me. My MP has also chased it up as he believes I shouldn’t have to self-fund. Still not got them on prescription. It is ridiculous that we have to fight for them. All we can do is keep trying.
 
JudiP said:
I found that the Libre reads at least two units lower than the Accuchek monitor which I was using. I now find that if I keep my bedtime reading to 10 (as I have been doing because my levels drop considerably by morning) I keep getting early morning alarms because they have dropped to around 3. I certainly don’t feel hypo at that level and I would have done with the Accuchek so it does make you wonder about the accuracy of the Libre.
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I have set my low alarm threshold on the lowest setting and still get woken up with false alarms. So I do a blood test and go to sleep. Libre 2 is a life changer but far from perfect!
 
I have a Freestyle Libre 2 which I have used for the last year and a half with no problems. Yesterday I got a reading at 12:45 and after that, I couldn’t get any readings. Spoke to Abbott Laboratories and I changed the sensor even though it was only 4 days old. Phoned back because I wasn’t getting anything on the new sensor either. Deleted ap and reinstalled it, still no luck. I am now told that my iPhone SE no longer supports the Freestyle Libre app and I should get the iPhone SE that4 came out this year. I am frustrated as I am not getting consistent help so am off to check iPhones tomorrow. Cross because if they have just updated the system and my phone is no longer compatilbe, why didn’t they notify me.
 
silversurfer57 said:
Type 2 diabetics are not entitled to the Libre2, or at least that's what I have been told by my clinic. Despite having a thing about pricking my fingers I am not entitled. I have paid £150 for these in the past and they work well, taking away my anguish and keeping me informed of my levels. However, I cannot afford to pay for them as I am retired and on a small pension. Well done if you get them for free.
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This seems to be at the discretion of doctors - I am type 2 and have been prescribed sensors for a few years now.
 
Echob said:
What do I have to do to get a libre
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In my case at the time. Upto my elbows in dead chicken carcasses once serving as “free range” egg machines.

“Food prep,” seemed highly inappropriate for bloodletting using a lancet in that job?
 
Stephen Bond said:
What does your MP say about this wonderful service that you have paid for?
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Haven’t got that far but my consultant says it won’t cure me. Tut tut but if I can control it I’m not a burden to the nhs I go as high as 30 sometimes am still working and don’t eat junk highs easy to manage lows a bit of a pain and I loose 2 hours recovering I’ve been on life support for 4 days and kept in hospital for 3 week’s what did that cost I wonder
 
josette_bartlett said:
That is definitely not the case down in the Southwest. I get seen by my Diabetes Consultant every 6 months and he still hasn't prescribed it for me even though I went down the route of asking for a free trial from Abbott online (as that's what I was told to do by my nurse). In the 2 weeks trial I was shocked to see some things I'd never knew was happening. I have been Type 1 diabetic on insulin for 27 years. I always had great hypo alertness. While I was trialing the Libre for 2 weeks, one of the results that came back was how many hypos were registered on the Libre but I wasn't aware of the hypo until my readings got down to 2.2 with some as low as 1.8. The only thing my Consultant said about these results is that the Libre is not accurate. He even said that 3.0 isn't a hypo. Absolutely unbelievable.
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As a type 1 diabetic, as of April this year, it is your right to be prescribed continuous glucose monitoring, regardless if where you live. Having said that it has taken me, also a type 1, until now to organise this. In the end I asked the practice manager to sort it for me and she arranged an appointment with the diabetic specialist nurse who visits the surgery. She prescribed libre 2 for me. Even the doctor didn't know where to start to be able to prescribed it. The hospital can prescribe libre 2 or dexcom one. Tell them next time you go you want one of them prescribed, all type 1s are now entitled.
 
JudiP said:
Thanks for the advice. I do have a sharps bin but it seems the local council are no longer replacing them when one is collected. Is it just the used sensor which you put in the sharps bin? The applicator would practically fill it!
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I clip all of my sharps and put them in standard rubbish bags, not ideal but they're no danger to anyone.
 
Type II - diet and meds living in Scotland
I've been trying to get the Libre II sensor on prescription since January this year. I've been getting passed from pillar to post between GP's, Diabetic nurse and practice management.
Last refusal told me that "this type of sensor is ONLY available for Type 1 and Type II on insulin".
I'll be writing to my MSP shortly to see if he can get any joy for me.
Any suggestions gratefully received.
 
gbswales said:
This seems to be at the discretion of doctors - I am type 2 and have been prescribed sensors for a few years now.
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I self fund my testing strips as I have been told by the dn that I really should not be having them on prescription as I am diet only. If I was taking meds the dn said I would get the Libre. I self fund the strips most of the time but still put a script in occasionally.
 
Bouncemeister said:
Type II - diet and meds living in Scotland
I've been trying to get the Libre II sensor on prescription since January this year. I've been getting passed from pillar to post between GP's, Diabetic nurse and practice management.
Last refusal told me that "this type of sensor is ONLY available for Type 1 and Type II on insulin".
I'll be writing to my MSP shortly to see if he can get any joy for me.
Any suggestions gratefully received.
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Unless you are on multiple daily injections of insulin you'll be very unlikely to be prescribed a Libre. It might be worth looking up what your specific Health Board in Scotland says about diabetes treatment, though from what I've read what you have been told is correct.
In my own case (in Scotland) I was only prescribed Libre when I moved from a single daily injection to multiple daily injections.
 
Lainie71 said:
My gp has to prescribe for a sharps bin and only then will the chemist supply :rolleyes: Crazy if you ask me. The local authority then collects when full as chemist have washed their hands of the service, again I roll my eyes :rolleyes:
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Same for me although I support my pharmacist.
Their shop is small and has no space for an endless supply of empty sharps containers nor space to collect full ones which are only collected weekly..
 
I was informed by my GP surgery around September that the Libre Sensor 1 was being discontinued but not to worry they would switch me over to the Libre 2. The last time I ordered was early December and I got the Libre 2 then. Could the problem you are having be something to do with this change?
 
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