It really is enough to say I've got T1 diabetes and a fellow sufferer nods and says "yeah", smiles and we know we understand each other.Great thread guys.
No one understands T1 diabetes like a T1 diabetic no matter who they are, how much research they've done, studies undertaken and information gathered.
My mantra is ( apologies for repeating myself here) Diabetes control.
80% mental/ emotional
15% medication
5% just winging it.
I've found on meeting and talking to fellow T1's that we don't necessarily have to complain about where we are at. We just know. You tell me that you're a T1 and I just know and understand your life.
Best medication............Positivity.
A winner badge just isn't enough for you!! I think I might have been tempted to smack her.... verbally of courseThis is the best I ever heard I was speaking to a lady one day and the conversation came up about diabetes and I said I'm diabetic .This was her reply oh it must be your hair colour there are two people living beside me same hair colour both are diabetics well I couldn't even be bothered to reply just thought you f...... idot. Must admit thought of something a lot worse to say.
That's the real thing really @Mel dCP , it's just not being able to totally switch off. Sometimes I think I'd just like to get rat ***** and go to bed and sleep.I’d like a day off from having to make complicated dosing calculations with a potentially fatal drug and not having to make life or death clinical decisions Every. Single. Day.
Just one day off. Please?
How long have you had T1 @NoKindOfSusie ?Be happy. I would much rather have got it when I was 2. If I could take a pill to forget what life was like before, I'd do it in a second.
Making lists is useful. Everyone has too much to remember but there's absolutely no reason to think that you'll make a major mistake. That's just you compounding a little issue. Lighten up and write it down and take the strain off your brain @NoKindOfSusieThis is what really scares me to death from a work perspective, I have a job where I have to remember to do a lot of things, one day soon I will make a major mistake because everything you ever do is just overridden by worrying about what the last test was, what the next test will say, how you're doing today, this week, this month. Human beings were not meant to have to have this in their heads all the time, even people who were in this situation years and years ago just did stuff a couple of times a day.
It's a disease @NoKindOfSusie and everyone else. I agree, you can't fight it really but you can address the bad sides and kick them into line. It doesn't have to get into your head unless you let it. I'm not doing that.You do realise that you completely negated what your own point?
I should fight like Ripley in Aliens, except you can't do what Ripley in Aliens did. Well done. I don't think that's what you mean to say, but what you actually said is right because THAT IS THE WHOLE POINT you cannot win, there is no way to fight it, it never sleeps, it never stops messing with you.
I think I can come up with a better James Cameron quote.
I bet you wish you hadn't gone there, now, don't you.
Does it become automatic?
I know that this is a very popular attitude on this forum but please do not project that on everyone else. I think you must have been an amazingly unambitious person if that is true.personally I think I'm a better person for being a T1
Hey, she said, "Personally". And, no need to be rude.I know that this is a very popular attitude on this forum but please do not project that on everyone else. I think you must have been an amazingly unambitious person if that is true.
Oh yes, because everyone's been lovely to me.Hey, she said, "Personally". And, no need to be rude.
That's so awful!!!I’m not a better person as a result. I lost my science career as a result of it and I feel really bitter about that.
We reap what we sow.Oh yes, because everyone's been lovely to me.
I know that this is a very popular attitude on this forum but please do not project that on everyone else. I think you must have been an amazingly unambitious person if that is true.
I’m not a better person as a result. I lost my science career as a result of it and I feel really bitter about that.
The way you are thinking is so increadibly mature, it is almost a bit uncomfortable. I wish I could see things like you do and maybe some time in the future I will. I think the point is that how we think leads us into worse or better place and thinking t1 sucks, that it takes something away from you, leads you into being grumpy and bitter. It is hard not to (for me) but at least I can try..But have you learnt and taken other directions and on alongsr term basis, this may not be the loss of a science career but a step in a different direction.
This is a strange comparison but I hope that you will see that we can choose to see things negatively or look at the positives from negativity...
My husband and I took vitamin tablets for decades.. many for good heart health. At 51 he suddenly died of aorticdissection,just 9 weeks ago. My first thoughts were to give up tsking vitamins,as they didnt do any goid for him..however, thinking logically...they may well have kept him healthier for longer...so seeing the positive about a negative can be gained..
Also, my hubby got badly neglected when taken in to A&E...it was dire.really bad. However, looking at the positive.. the death rate for this problem is high and recovery is not good.... so the neglect may well have actually been a kindness in some way. No way would my hubby have wanted to be ill on a long term basis at just 51. Full recovery is rare and this may well have been the best outcome for him. He would not have wanted to be ill longterm or short term.... so asmuch as I am devastated... and cannot believe the dire state of hospital care (none) but perhaps looking at things positively it may have actually been kindness in a strange way that events happened as they did.
Oh and I do love to moan... at my dog, at the state of the tv progeammes (dont watch it at all since hubby died).. at decisions hospital people make etc and yes, when I almost lost my licence thru diabetes etc but no longer about having diabetes... I really see the positives that I am, whom I am. Theres a good book I am reading currently and enjoying "the subtle art of not giving a f*ck"...
The way you are thinking is so increadibly mature, it is almost a bit uncomfortable. I wish I could see things like you do and maybe some time in the future I will. I think the point is that how we think leads us into worse or better place and thinking t1 sucks, that it takes something away from you, leads you into being grumpy and bitter. It is hard not to (for me) but at least I can try..
You are one brave lady.Believe me, I have been grumpy and bitter at times but I think its only now I have lost my soul mate and having survived this ill ess, complicated colon &stomach and 2 breast removaks that I realise that life isnt all about sadness and gloom...
Every minute of joy counts...
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