1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Long term complications - how many have them, how many don't?

Discussion in 'Type 1 Diabetes' started by Loliz, Jan 23, 2016.

  1. Loliz

    Loliz Type 1 · Member

    Messages:
    18
    Likes Received:
    8
    Trophy Points:
    23
    I don't know. If I did, perhaps it would be easier to do something about it. Everything seems to affect my control - being hot, cold, worried, stressed, happy, sad, concentrating... and sometimes the aforementioned send me high, at other times, low. So hard to predict.

    If you look at the graphs from my pump, they are all over the place, no patterns, yet I work from home and do and eat almost exactly the same things every day.

    Having said that, some progress has been made by the new 640 pump as because my unexpected lows are headed off, i don't rebound upwards, which means less time both low and high.
     
  2. Loliz

    Loliz Type 1 · Member

    Messages:
    18
    Likes Received:
    8
    Trophy Points:
    23
    It's almost impossible to tell what is going to happen, but the sound of it, sorry to hear about your eyes, richy.
     
    • Like Like x 2
  3. LucySW

    LucySW Type 1 · Well-Known Member

    Messages:
    1,928
    Likes Received:
    2,812
    Trophy Points:
    198
    How fantastic to hear from you! You're an inspiration and model for us all.
     
    • Like Like x 4
  4. jackie4617

    jackie4617 Type 1 · Member

    Messages:
    20
    Likes Received:
    0
    Trophy Points:
    41
    hi loliz,
    i no exactly how u feel, i also ave diabetic chieropathy which is rarely discussed i think also ave neuropathy, bin diabetic 40yrs cum april & on 5 jags a day 3 short acting 2 long actin, blood sugars continuously up & down no matter wot i do & no longer ave ne awareness of hypos or hypers
     
  5. bambee3

    bambee3 Type 1 · Well-Known Member

    Messages:
    46
    Likes Received:
    34
    Trophy Points:
    58
    Hi,
    I am ? t1 ?t2 they can't make their minds up. I have been ? diabetic since I was 16yrs and 9mths old. No treatment or confirmation of diabetes until I was 35yrs old. I am now 55.
    I had my large bowel removed in 1999 which they now are sure is related to Autonomic nervous system dysfunction diagnosed a couple of years ago. My bowel would contract and not work. When this happened they were ? my autonomic system back then but nobody mentioned this to me. I have lost control over my blood pressure and heart rate due to the autonomic nervous system dysfunction which means my heart rate has been as high as 150 + beats/min and my BP has crashed as low as 40/50 this is the lowest recorded we know of. I am prone to passing out with little or no warning and have to be careful. I also have dupuytrens in both hands, so far not progressing much since diagnosed a couple of years ago. Due to having no large bowel I have to keep my fibre intake low. My eyes thank God are still reasonably ok. some minor changes only. I have glasses for distance and have for years now. I have also been told years ago by a Diab Ed that I am Carbohydrate sensitive as i was having to take such large amounts of insulin for a meal. This has since been halved since being on an Insulin Pump - best move ever. Also diagnosed with mild to mod sleep apnoea. Have a heart murmer, also when they did the tests that diagnosed autonomic nervous system dysfunction they listed +/- inappropriate sinus tachycardia. But hey it could be worse.
     
    • Like Like x 2
  6. CarbsRok

    CarbsRok Type 1 · Well-Known Member

    Messages:
    4,696
    Likes Received:
    5,290
    Trophy Points:
    178
    Funny enough I was exactly the same except I didn't go above 10 very often, it got to the stage at one point where I was having 56 hypos a month................ diagnoses Addison's disease still had problems due to my basal not matching any insulin on the market.
    Changed to a pump and it used to be a case of chasing my tail every few days because the basal changed so often, then it changed to every 2 weeks when a change needed to be made then 6 weeks and now it's almost four months where just a very tiny tweak needs to be made.
    It worked out to be a sinus infection eating into my bones that's now fixed, the infection had made my autoimmune system attack some part of my spinal cord sheath causing an inflammatory lesion now its starting to resolve the improvement is massive.

    So for me it was a case of constant basal tweaking :( which was a royal pain in the you know what which kept me in range most of the time I also found not eating to much protein also helps no end as never could fathom the dosage or predictability of results.

    You have probably already done so but have you tried going right back to basics and setting a brand new basal profile and building from there? Many of us also found the book pumping insulin a great help as well.
     
  7. barbarapreston

    barbarapreston Type 1 · Member

    Messages:
    22
    Likes Received:
    62
    Trophy Points:
    53
    Thanks Loliz and Lucy SW,No ,to be honest I am not that well controlled my BS can range from 2.5 upto 19 in any one day.But I then either eat jelly babies or have an additional shot of Novorapid.Nothing seems to have any effect on my body.I never get any other health problems and feel well the majority of the time.I don`t count carbs and eat what I want within reason.I have been married three times(divorced then widowed) and have been happily married for 33 years. I reckon I have been very lucky but am certainly not a role model for diabetics.
     
  8. cathayb

    cathayb Type 1 · Member

    Messages:
    6
    Likes Received:
    0
    Trophy Points:
    21
    MY LEGS WHICH I HAVE lymphedema. in are continiually leaking water soaking my socks and my bed and anywhere i go.does anyone know how this can be managed??i cant take anymore duritics other than frusimide as my kidney function is not good.the leaking is driving me mad.how can i stop it??
     
    #28 cathayb, Jun 28, 2016 at 8:23 PM
    Last edited by a moderator: Jun 28, 2016
  9. NurseDee

    NurseDee Type 2 · Well-Known Member

    Messages:
    129
    Likes Received:
    268
    Trophy Points:
    103
    Hi cathayb. Sorry to hear the problems with your legs. I understand why diuretics are not suitable if your kidneys are not doibg so great.

    I would get in touch with my GP as they can check your legs and rule out infection first then send you round to their treatment room nurse. She will be able to dress your legs and it may be that you will be given a doppler and compression bandaging depending on your doppler result. Some GP practices also have Lymphedema nurse specialists on site who will be able to help too. Hope this helps.

    Sent from my SM-A500FU using Diabetes.co.uk Forum mobile app
     
  10. cathayb

    cathayb Type 1 · Member

    Messages:
    6
    Likes Received:
    0
    Trophy Points:
    21
    thank you very much.we live in a rural area so not sure they will have anyone that can do this but will try.
     
  11. cathayb

    cathayb Type 1 · Member

    Messages:
    6
    Likes Received:
    0
    Trophy Points:
    21
    can you tell me what a doppler is?i have no idea??
     
  12. NurseDee

    NurseDee Type 2 · Well-Known Member

    Messages:
    129
    Likes Received:
    268
    Trophy Points:
    103
    A doppler is a mini ultrasound scan to measure blood flow/pulses and circulation in your legs. Hopefully they have a trained nurse to do this for you.

    Sent from my SM-A500FU using Diabetes.co.uk Forum mobile app
     
  13. cathayb

    cathayb Type 1 · Member

    Messages:
    6
    Likes Received:
    0
    Trophy Points:
    21
    we went to the doctors today and apparently i have another dose of cellulitis but it has shown itself with different symptons for the first time in my life so i missed that is what it is.now on a course and antibiotic injections.apparently the terrible back pain i am having confining me to a wheelchair is all part of it and is causing muscles spasms in my back.so i feel i have got somewhere with the GP today.tomorrow i see my endreocologist at the hospital and my kidney function has dropped to 31 but i am hoping now they have stopped one of the duritics they will be recovering soon.thank you for your help.
     
  14. NurseDee

    NurseDee Type 2 · Well-Known Member

    Messages:
    129
    Likes Received:
    268
    Trophy Points:
    103
  15. Dark Horse

    Dark Horse · Well-Known Member

    Messages:
    1,656
    Likes Received:
    916
    Trophy Points:
    133
    Is this a possibility? http://www.diabetes.co.uk/hypo-alert-dogs.html
     
  16. Gaztheoldpunk

    Gaztheoldpunk Type 1 · Active Member

    Messages:
    33
    Likes Received:
    31
    Trophy Points:
    38
    Hi, Im aged 50 and been diagnosed T1 for 32 years.. The only complications I have is neuropathy in my feet which I've had from day 1 tho the circulation to them is fine!! And also macular degeneration which I'm being treated for and have been for the past 20 years... I can still walk (and run) and my sight is relatively ok. Bearing in mind for the first 10 years I was in total denial of my condition I think I've been lucky... It could have been a lot worse!!


    Sent from my iPhone using DCUK Forum
     
  17. cathayb

    cathayb Type 1 · Member

    Messages:
    6
    Likes Received:
    0
    Trophy Points:
    21
    now in hospital.started seeing people that werent there and didnt recognise mum or husband even though thery were right beside me.i have had a catherter fitted and they are measuring fliuid and intak onlu all 1500ml per day.having trouble eating as my mouth is full of ulcers.my kidney function down to 25 and i have dangerously low potaasuim and sodiem.feeling quite concerned about myself now.cam in late thurs day night and i am on strong doses of antibiotics for the cellulitus,heporim and i dont know what else.taking orimorph for pains in back and legs.let you know when i get home(if i do)
     
    • Hug Hug x 1
  18. ann34+

    ann34+ Type 1 · Well-Known Member

    Messages:
    392
    Likes Received:
    411
    Trophy Points:
    103
    Hi. Loliz. I would not say it is easy getting older as a Type one - some may be lucky but a lot of people who do not have Type one get other health issues in their late 60's - the problem is, what happens when a type one gets similar problems? In my experience, type one complicates things, and may even make these issues a lot worse for a number of reasons. If you were to get these problems in the years after transplant, how would your body cope with anti rejection drugs as well? Maybe you could look into things in more detail. ask more questions....look at your family health history? Agree re Hypurin, i use it but it is the slowest porcine insulin i have used, and i have used a number of them in the past - strange that the faster ones, especially pork velosulin, were taken out and only the slowest porcine left. I am in a somewhat similar position as you - though still on Hypurin at present - I need to have a faster insulin due to problems taking ages to bring highs down and the effect of more prolonged high glucose on the conditions i now have. (which themselves may or may not be somewhat related to diabetes, but they certainly make diabetes more difficult to manage) .Have you ever tried, or considered trying, or ever asked if you could try, Hypurin in the pump but analogue insulin just for boluses to correct?
     
    #38 ann34+, Jul 3, 2016 at 4:43 AM
    Last edited by a moderator: Jul 3, 2016
  19. David1963

    David1963 Type 1 · Member

    Messages:
    5
    Likes Received:
    7
    Trophy Points:
    43
    I had bleeding and spots/lines in front of my eyes back in the mid 1990s, and have had a lot of lazer since then, with sometimes more complicated interventions but my eyes are fine. Loss of peripheral vision means I havent been able to drive for a while but I can still do all the reading, cinema going etc I want etc. I suppose I'm saying that there may be problems but they can be overcome, and a quarter of a century ago terchnology was not as advanced in this area. Make sure you get to see an eye doctor regularly.
     
  20. SugarBuzz

    SugarBuzz Type 1 · Well-Known Member

    Messages:
    97
    Likes Received:
    37
    Trophy Points:
    58
    I'm not close to the age group you're wanting to ask....but regarding the 'slight changes' letter. When did you receive your last letter? As I'm aware they seem to have changed the wording of these sometime within the last couple of years.

    As I got the 'slight changes' letter several times in a row and was thinking, ***? surely several years of slight changes means more than a slight change?

    The last letter I received around 18 months ago didn't mention slight changes.
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook