Looking for help to understand what's going on

[kaylz91]

@kaylz91
we all get it !!!!!! it is hard sometimes -- I started with trouble with my eyes around age 28, but 30 years later I can still see and drive so try to be positive !!!!!!!!!

have you asked about a pump ??

I'm just fed up of my levels being ok but still having problems with my eyes my eyes really dont match my control I'm fed up of having to have injections in them x

 

[ickihun]

Any ideas on what to Have? X

Many type1s have porriage with a set amount of insulin to give them a reliable start to their challenging day.
If you use that as a basis then adjust from there. Remember if your still honeymooning you will get some wacky results til your pancreas knows what it's doing.
There is an excellent book called 'think like a pancreas'. I find it a huge help with insulin management.
Be patient with your pancreas, its struggling. Any help you give it, all helps.
I don't eat porriage for breakfast but have used it to support a hypo in poor days. I eat protein bread, toasted and a poached egg. Most mornings. However I'm the oposite to you so you need something quick to digest but tick you along. Wholemeal bread does that but fat with it can slow it down more. Be sparing with butter but butter is far healthier than processed margarine. So your eating right for a type1. Stick to same breakfast to see your naughty pancreas' s reaction.
Remember other influences out there.
Stress, heat, cold and viruses.
I'd hold as much data about your bodies reaction to your trusted foods. You will need them over and over again.
Get those food reaction working for you.
What reaction you get can be unique. Save the data to use when naughty pancreas is being difficult, to give you peace of mind. You are doing all you can.
You can tackle your naughty pancreas til it's more reliable by using insulin and food the only way you know.
This period won't last forever.

 

[ickihun]

I'm just fed up of my levels being ok but still having problems with my eyes my eyes really dont match my control I'm fed up of having to have injections in them x

When you say control due you mean hba1c or meter readings?
Both only give a sign of slices of bg levels.
I have to fill in the spaces inbetween mentally. I expect worse bgs then a good hba1c is had.
Just stick with getting breakfast nearly right, to start?

 

[himtoo]

I'm just fed up of my levels being ok but still having problems with my eyes my eyes really dont match my control I'm fed up of having to have injections in them x

awwww bless you !! injections are the sh!ts for sure-- I have had a few and they're not much fun.
are you having Lucentis or eyelea ??
have you had any improvement since having them ?
hugs too [[[hugs]]]

 

[kaylz91]

awwww bless you !! injections are the sh!ts for sure-- I have had a few and they're not much fun.
are you having Lucentis or eyelea ??
have you had any improvement since having them ?
hugs too [[[hugs]]]

Eyelea, I had 3 injections for each eye from December to February and regained 20/20 vision in my right eye then unfortunately it came back and I had to have another one in each eye, I have a check-up appointment on Tuesday x

 

[kaylz91]

Well this morning I was 6.0 pre breakfast, 4.9 2 hours post and 6.0 4 hours later this was without the peanut and cocoa spread so still a drop but not a rise after :/ x

 

[noblehead]

Well this morning I was 6.0 pre breakfast, 4.9 2 hours post and 6.0 4 hours later this was without the peanut and cocoa spread so still a drop but not a rise after :/ x

Excellent @kaylz91 , as ever it's all trial and error when it comes to food and bolusing, well done

 

[ickihun]

Well this morning I was 6.0 pre breakfast, 4.9 2 hours post and 6.0 4 hours later this was without the peanut and cocoa spread so still a drop but not a rise after :/ x

Great results!
See if you can imitate for a few mornings. A great start to brilliant bgs.

 

[kaylz91]

Not went so well at lunch today was obviously 6 pre lunch 10- 11 2 hours post and 8.8 pre dinner I usually have a couple of days like this after a hypo though! Does anyone else? X

 

[himtoo]

Not went so well at lunch today was obviously 6 pre lunch 10- 11 2 hours post and 8.8 pre dinner I usually have a couple of days like this after a hypo though! Does anyone else? X

it is really important to be kind to yourself -- if you are sure you know why you stayed a bit high -- then just make a note and move on -- none of us is perfect all the time -- I know I 'm not