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Fayefaye1429

Fayefaye1429

Well-Known Member
Messages
809
Location
Durham
Type of diabetes
Type 1
Treatment type
Pump
Hi guys

I've been feeling blue about my diabetes recently. I know know one can rescue me with it but I hope it's ok to send this message out I to the big wide world of the net and not expect any answers but comments welcome.

I love sport more than anything! When I was diagnosed I struggled to do my usual 2 hours a day and it got cut right back to 20minutes. A few years later I did manage 2 hours by being naughty but u wasn't aware I was at the time but do now I would switch off my pump. This appears to be my only solution but I now know the risks.

The last three years or so more effects have been happening to my body unexplained consequences from my diabetes of 15years now.
I find exercise so hard. I have literally done everything from pulling back insulin carbs before after and nothing works. I either end up hypo or hyper and feeling rubbish especially the next day.
My specialist has said there is no solution for me now except a continuous blood glucose monitor and tonight I posted another comment if that experience.

I just keep finding myself so unhappy as I eat/drink more calories when it's exercise day than non exercise days as I try to exercise three times a week but end up feeling very down by it.

I've got to a point where I won't stop trying but cycle is hypos hypers tiredness and in tears because all I want to do is run swim etc but I can't

Sorry all a little depressing and I'm going to try and swim tomorrow. Different times of the day don't change the result either.

I just feel stuck and alone so I'm just wanting to send a message out that it's hard
 
you may be feeling down but you are definitely not alone --:)
keep trying to find a way to do what you love doing --

maybe post a topic in insulin pump forum or exercise forum -- there are some super athletic pumpers that may have some good advice
 
Fayefaye, there is loads of info available nowadays about sport, pumping and T1. Have you ever read Diabetic Athlete's Handbook? And what about posting on the Fitness and Sport boards here. Plenty of expertise to help you there.
 
i just want to say i understand your frustration! yesterday I had a day of shopping (which is only walking) and i went low 3 times and woke up this morning at 5am at 1.9!
It's really annoying when you just want to enjoy yourself and do exercise! x
 
Thank you for your feedback. Unfortunately I have tried the suggestions. The people have been great on here and helped so I could exercise without a hypo whilst working out but unfortunately it didn't go further but I'll try again.
 
Can you actually list what you have tried? This way perhaps more suggestions can be added for you to try. Sometimes when you are so bogged down with things the obvious is missed. Been there and done that :(
 
@Fayefaye1429, do you reduce basal insulin rate for two hours before exercising? I find that if I don't do that, any kind of cardio causes me to hypo. It's trial and error to get the right reduction. I've also find that I need a lower rate for a few hours post exercise
 
The Sporty Diabetic T1s group on FB is brilliant - full of advice, but also really really inspiring people. Also - I went to the Animas Sport weekend last year and it was completely brilliant - it is absolutely designed for people like you (and me) who are struggling with this kind of thing and it was unbelievably helpful. I don't think they're taking registrations yet for 2016, but I think the email I used to register interest was [email protected] - worth a try - it might well still work. They've been mid May for the last few years.
 
Hi miss whiplash thank you may I ask is there another way other than Facebook? I only ask as I maybe one of the few who isn't keen and therefore has not got one
 
Hi Tim yes I've tried 2, hours an hour and a half, o e hour and half an hour. Hour and a half seems to work the best but I'm in co stand swinging after. I've tried reducing by every number 2 hours after then increasing for 2 hours after that. It usually takes a bottle of Coke to get exercising even if I do t put insulin I. For food before. I'm a wee bit stuck
 
Fayefaye1429 said:
Hi miss whiplash thank you may I ask is there another way other than Facebook? I only ask as I maybe one of the few who isn't keen and therefore has not got one
Click to expand...

Team BG also have a webpage which is worth checking out.
The group is mainly FB, though.
Some people have anonymous/pseudonym accounts for that stuff if that would work for you?
The advice on the group is good, but it's partly (for me, at least) just that it's amazing to see what other people do without problems. You'd be surprised how many T1s run ultra marathons, for example
 
Hi carb rock sure ok here goes

Carb before exercise only 20-50% insulin then reducing back from 40-95%. Then reducing by 60-90% for two hours then increasing by 40-70% for two hours. I've tried every combination of the above and it's not worked. It varies from hypo before I start to hypers after with sudden lows. Each time I change the % it seems to make no difference and so what it wants.

I've tried morning to evening and it's the same so no time is different.

I've tried medium gi food to give me alo get releasing time so once I'm done I can still have some release in my body. I've done drinks and snacks to which seem to send my body really nuts after exercise.

Walking is probably the one that I can control but anything more intense my body can't handle it.

The only way I use to do it that worked which was naughty of me but in fairness at the time I didn't know it caused harm was turning my pump off completely. I found this way I could do all sorts for ages. However know I g I can't do this it seems impossible without a constant monitoring of what to do. My doctor agrees and says there is nothing they can do for me
 
I e tried reducing back 2 hours before hour and half an hour and half an hour. Hour and half seems to be the best so far
 
Just wanted to say I hope you find a solution, please don't give up on exercise, it's a sanity saver so with some trial and error you will get there, it's so easy to give up, good luck lovely x
 
aw thank you juicy! Don't worry I won't give up sounds odd but sport is the love of my life so I'm determined to break through this just how is the question
 
My dsn sent me some info on exercise and changes to try, it depends on whether the exercise is within 3 hours of a food bolus either before or after, whether it is stop/start , short sharp or endurance exercise and how intense.
I am just getting my head around it and it depends on basal settings etc being right but ...
I go swimming for 1 hour every week and it is 1 hour ish after eating, I reduce my pre swimming bolus to 80% and i reduce my basal to 80 % for 3 hours starting 1 hour before, I remove my pump for the hour that I am swimming, I don't swim that fast this is for medium intensity.
It's still really a work in progress, and I think i need to restart my basal at normal levels after swimming but this works not too bad.
 
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