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Meds

Samm38

Active Member
Messages
26
Location
Huddersfield
Type of diabetes
Treatment type
Tablets (oral)
Dislikes
People spitting. People thinking there better than me.
I was wondering if anybody can help me please. I've tried metformin, victoza, vildagliptin, glicazide, now I'm on slow release metformin. Nothing works my sugar levels when I get up are 12.3 then during the day it goes up & up. Would anybody suggest that I go insulin. But the docs won't listen.
I'm really frustrated now. Sorry forgot to say I've been told I'm type 2 diabetic.

Thanks
Sam
 
Hi SAM

Sorry you are hsving a bad time with the medications ...

I wonder how long you hsve been on the SR. metformin for ....it usually takes about 3 months to work ...

Insulin should really be from the advise of your GP .....
 
Hi Sam and welcome to the forum, hopefully @daisy will be along shortly with her advice to new members of the forum.
 
Hi @Samm38 and welcome to the forum.

Nobody here can advise about medication but may be able to help you get your blood sugars down.

Tell us what you are eating on a daily basis, what your last HBA1c was, are you overweight and do you have any other medical conditions?

@daisy will be along to give you the basic advice for newly diagnosed which may be of help to you.
 
I think with T2, diet is 80%..drugs and exercise 20%
ask your Dr, I think the 12 of a morning could be dawn phenomenon from insulin resistance / metabolic syndrome
the rise and fall during the day could be from what you are eating and maybe the first set of numbers you can fix.

it’s a long page and a few good video’s
http://www.dietdoctor.com/lchf
For me, the more carbs we eat the more carbs we want. they don’t give up easy
http://lowcarbdiets.about.com/od/lowcarb101/a/firstweek.htm
 
I have either toast or cornflakes in the morning. Then dinner I have a sandwich. Then I have a cooked meal for tea. They got my hbc up at 68 I think they said.
The highest levels I have had were 24.3. X
 
I feel tired all the time. My ankles have started to swell. Don't mean to be rude. But down below is really itchy. I forgot to say I have high blood pressure. Also I have that little bug that lives in your stomach the helicobactor bug. X
 
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I had to cut all grain, grain product including bread pasta..starch veg, potato/corn and sugary stuff including fruit/juice
there is lots left to eat on the LCHigherF diet
My blood numbers are back to normal and I have lost 13kg..I'm also on metformin.

see your Dr
the yeast/fungal infection may be from high sugar numbers..I got a nappy rash zinc/antifungal [better than just an antifungal for me] and a hydrocortisone cream
nizoral hair shampoo [antifungal]
peroxide or vinegar can also help in the early stages..google for instructions
 
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I have either toast or cornflakes in the morning. Then dinner I have a sandwich. Then I have a cooked meal for tea. They got my hbc up at 68 I think they said.
The highest levels I have had were 24.3. X
Hate to say it Samm but all of those are full of sugar and/or carbohydrates and no good to you as a diabetic. The meds aren't a silver bullet where you can carry on eating as before and expect to manage your blood glucose. If you want to get your BGs down and reduce medication in due course (in consultation with your GP/DNS) then you need to reduce your carbs. Have a read of the item linked first in my sig below and ask any questions.
 
So I have to change my diet. Somebody has told me to eat gluten free food. Is that true. I'm sorry to be a pain but I don't get any info from my doctors or my diabetic nurse. X
 
You're not being a pain at all Samm, we're here to help. Unfortunately standard NHS food advice to diabetics is ****. Treat all carbs as if they were sugar. Try and stick to foods with less than 10g total carbs per 100g. Try a cooked breakfast (eggs, bacon, mushrooms) instead of cornflakes and toast; salad or salami/cheese etc for lunch; dinner without potatoes rice or pasta.

I can recommend Trudi Deakin's book linked below, also the www.dietdoctor.com/LCHF website.
 
Hi and welcome, Samm

The diet advice you are getting is spot on.
Unfortunately, whenever we eat starchy, carby foods, they digest down (just like sugar) into glucose in the bloodstream. So that explains why cereal, sandwich and dinner are sending your blood glucose up.

@jack412 's comment about how managing type 2 is 80% diet is spot on. But it is something the medical profession don't seem to get their heads around...

Different people have different tolerances for carby foods, so they have different drugs prescribed. But we regularly find that people who cut their carbs tell us they are also able to cut their medication.

Have a read around the forum, especially the low carb section, and you will see that there is a huge range of delicious food choices available. And I think I eat far better, more interestingly, and mor nutritiously, than I did before low carb.
 
@Samm38

Hello Samm and welcome to the forum :)

Here is the information we give to new members and I hope you will find it helps you with your problems. Ask all the questions you like and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 130,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
I think with T2, diet is 80%..drugs and exercise 20%
ask your Dr, I think the 12 of a morning could be dawn phenomenon from insulin resistance / metabolic syndrome
the rise and fall during the day could be from what you are eating and maybe the first set of numbers you can fix.

it’s a long page and a few good video’s
http://www.dietdoctor.com/lchf
For me, the more carbs we eat the more carbs we want. they don’t give up easy
http://lowcarbdiets.about.com/od/lowcarb101/a/firstweek.htm
Dear Sam,

Jack is right and I second every word.

I fear that for T2s diet is the only real solution. It sounds to me as if you need insulin in the short term, but reducing carbs alone *can* and will lower your BG. I got mine down from 16 (A1c 120) to 6 (A1c 49) by cutting out starchy carbs (no drugs) from the day I was diagnosed. It wasn't hard actually, as when I looked at bread/potatoes/rice/pasta/desserts I saw *toxic* for me, and I wanted to be well.

I don't think there's any escape from this. The good side is that low carb food is great, and you have so much scope to explore lovely new things. Low carb works so much better than any medication.

I turned out to be a late-onset Type 1 in the end and now I take insulin, but in the first few months diet alone did it. See if it might work for you?

And Metformin is a drug in a class of its own. If you can tolerate it (some just can't), it cuts insulin resistance and does exactly what exercise does: opens up ports for insulin to work on our cell surfaces. It seems to be protective in several different ways and after 30/40 years seems to be a genuinely benign drug. There aren't many of those! It's worth all the others put together.

Good luck anyway. Please ignore anything that isn't relevant to you.
 
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I was wondering if anybody can help me please. I've tried metformin, victoza, vildagliptin, glicazide, now I'm on slow release metformin. Nothing works my sugar levels when I get up are 12.3 then during the day it goes up & up. Would anybody suggest that I go insulin. But the docs won't listen.
I'm really frustrated now. Sorry forgot to say I've been told I'm type 2 diabetic.
Thanks
Sam

Hi Sam,
sorry to hear of your diagnosis, looks like you've tried a cocktail of drugs, all of which work differently, some requiring informing the DVLA and testing BG before driving, some not.
Metformin is often the first drug prescribed to type IIs because it helps the body use the insulin that you are producing. In my case it caused the most awful diarrhea, the sort I wouldn't wish on my worst enemy, although maybe one. If only they had told me to reduce my carbs because that actually would have lessened the effect. They will now prescribe SR (sustained or slow release) and XR (extended release) which I think I'm right in saying contains some sort of gum to slow things down. It's more expensive, by a lot, so not the first choice.
Victoza encourages the pancreas to produce more insulin as does Gliclazide and Vildagliptin. I took Gliclazide for a long time but I was able to stop because I cut my carbs. For me and I emphasise "for me", cutting carbs was a godsend, despite the current advice still being handed out by the NHS. For me, cutting out pasta/rice/potato/bread was easy and better still costs nothing. I eat a lot more vegetable, well above my five a day, so at least I am following some dietary advice The other benefit was that it helped lower my total cholesterol so I was able to ditch the statin as well.
The other thing that will work wonders for BG is walking, it's affect on BG is a lot greater than you'd think. Any exercise is good.

I have either toast or cornflakes in the morning. Then dinner I have a sandwich. Then I have a cooked meal for tea. They got my hbc up at 68 I think they said.
The highest levels I have had were 24.3.

Bread, by weight is about 50% carb, so 2 slices about 100gms, therefore 50 gms of carb. Most people will eat about 250 gms carb a day, I cut mine to less than 100gms although I still have toast with my eggs once a week. I will eat more eggs, just not with toast.

I feel tired all the time. My ankles have started to swell. Don't mean to be rude. But down below is really itchy. I forgot to say I have high blood pressure. Also I have that little bug that lives in your stomach the helicobactor bug.

Swollen ankles, fluid retention, high blood pressure, they're related, perhaps you're already on meds, maybe not a diuretic. I have lymphodema and my legs used to be like elephant trunks, fluid retention is still a problem and I'm not immune to swollen ankles but a simpler diet avoiding processed foods (loads of salt) has improved the situation. As for feeling tired, it goes with the diabetes really. Helicobacter pylori is the little ****** that can cause ulcers and is usually treated with antibiotics and very effectively treated as well.

So I have to change my diet. Somebody has told me to eat gluten free food. Is that true. I'm sorry to be a pain but I don't get any info from my doctors or my diabetic nurse.

Gluten free isn't really enough, for a lot of people on this forum, not everyone, low carb has brought about a lot of benefits. Just try it for a day or two and see what difference it makes. That's probably worth mentioning, apologies if someone else has, use the meter to see what effect different carbs have. It's a lengthy process, but worth it in the end.BTW, your nurse and GP will only be able to follow guidelines. A lot of people on this forum have had to ignore those guidelines.

I think it might even be worth consulting a properly qualified Nutritional Therapist, I'm not sure if there are any NHS NTs (definitely not to be confused with dieticians or nutritionists, but somebody who has studied nutritional medicine and is properly certificated).

All the best
Graham
 
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Hi. You've had some very good advice from the posters. Diet is the key for many of us. If you are overweight then Metformin will helpa bit with the insulin resistance that comes with T2. Many T2s have too much insulin floating around which the body can't use, so some medications such as Gliclazide, Gliptins and insulin may not relevant whilst overweight as they add insulin in the body. Victoza is often used when overweight so I'm surprised this didn't work but obviously I'm making generalisations. So, focus on the low carb diet to get your BMI into the right region and see what your blood sugar is then. BTW gluten intolerance has little to do with diabetes but some people can, course, have both conditions.
 
Thank you everybody for your help I appreciate it. Now I know there's somebody out there I can talk to. Before my breakfast today my levels are 13.0. That really isn't normal is it?. Thank you all. Lol x
 
Thank you everybody for your help I appreciate it. Now I know there's somebody out there I can talk to. Before my breakfast today my levels are 13.0. That really isn't normal is it?. Thank you all. Lol x
No: it's not good for you. Your goal should really be 5.5 or so. (Forgive me if this sounds like a preach.) That may seem a long way off, but it's achievable. You have so much to gain! Good health - agility, not being tired all the time, safe eyesight, good heart health.

Have a try? The Diet Doctor site is a very good place to start.

I really don't mean to be annoying, but a number of us have been fortunate enough to do it with diet. It usually works.

Enough from me now.
 
Thank you everybody for your help I appreciate it. Now I know there's somebody out there I can talk to. Before my breakfast today my levels are 13.0. That really isn't normal is it?. Thank you all. Lol x


Hi @Samm38,
Don't be in a hurry to learn how to control your diabetes. Think of blood sugar numbers as educational rather than good or bad and remember that this is a marathon and not a sprint. It will take a few weeks to assimilate all the information available and answers to the questions that you may need to ask.
Take care,

CC
 
Yes, it is a marathon not a sprint but the quicker you start, the sooner you'll see the results. The biggest and quickest benefit will be a reduction in carbs. Your BG levels will soon come down. Yes, there is a lot of information to take on board and it can seem a little overwhelming at times but you will get there.
 
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