Mounjaro possibly removed

natzmum

Member
Messages
5
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hi, I wanted to ask if anyone else has had a diabetes nurse say these things re mounjaro. I've tried many medications for my type 2. I'm 64, 5ft 4 and weighed 11 stone 2 when I started mounjaro summer 2024. My bloods were at 64 (no idea what that means) and I was taking jardiance and gliclazide. Neither of which had any effect on my bloods and made me hungrier. Then i was started on mounjaro when first available in gp surgeries. Started at 2.5 and within a few weeks with no noticeable difference I eventually was put on 10mg which suddenly worked for me. Seemed to be the magic number. Now in Jan 2025 I weigh 9 stone 10 and am within normal weight range although at the higher end. More importantly I was told last week that my sugars have gone from 64 to 45 and that, that was prediabetes levels.
I was of course very happy. For the first time in 20 years plus my sugars are under control. I suffer with depression and anxiety and am an emotional eater. Meaning It doesn't matter if hungry or not, I'll eat. Not feeling hungry wouldn't stop me because it usually wasn't about that. Nothing has ever worked to combat that. Mounjaro for some magical reason does. It completely removes the psychological desire which is astonishing to me. What is more it has vastly reduced my desire for sweet things which was a huge problem for me.

All that said, within minutes of telling me the good news she was talking about stopping it completely. Like i'd accomplished a goal and so didn't need it anymore. This is a big shock to me. I've not seen that mentioned anywhere. At worst you are put on a dosage to maintain said accomplishment. Everything i've read says you are kept on it to maintain so you don't put all the weight back on and your sugars rise again. Which will 100 percent happen with me.

She said something about them having a meeting next week to discuss what happens when people reach a weight or sugars goal. They hadn't even thought about it before putting people on it. I haven't even been on it for very long and i am absolutely sure it would all have been a colossal waste of time and money if they just remove it. What do they think will happen to people. I know at the end of the week. The last day or 2 i start feeling hungry again and begin eating. I presume as the mounjaro wears off before the next injection.
Now i don't know for sure if they will remove it but i know at the very least they will reduce it and it was only when i got to 10mg that it had any effect at all. Does anyone know what the recommendations are that during this meeting they are likely to look at and follow? Why would they not start with removing either gliclazide or jardiance to see what happens? I'm really confused and have to admit really worried. I was so excited and happy. I haven't lost a ton of weight like some have and it is still a bit of a struggle but it is a lifeline to me. Not because of weight, i don't care about that, but because my sugar levels have never been this good. None of it makes any sense to me. Anyone have any advice re this or anything like it happened to them? Many thanks.
 

natzmum

Member
Messages
5
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Thanks but its not to do with the question asked. What others have found happens when you reach a healthy weight and your sugars are lower because of mounjaro. Are people kept on it to maintain etc? Or like me are they hinting that it will just be stopped soon so that my weight and sugars will rise right back up.
 

Catlady19

Well-Known Member
Messages
671
Type of diabetes
Treatment type
Tablets (oral)
From what I can work out from other users on a Facebook Mounjaro for Diabetes page, when they have reached a lower A1c reading and weight, they work out a maintenance dose to keep it going but they stay on it.

Edit: Interesting that the speaker above says 70% of people stop taking MJ after 2 years.
 
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Numan

Well-Known Member
Messages
155
Type of diabetes
Type 2
Treatment type
Tablets (oral)
I have just started it, and was told by my nurse, that’s it, on it for life. I’m only on my first months dose, but my doctor is already reducing my Gliclazide in the morning. CGM results show a much smoother reading (before I had a sawtooth pattern meaning finger pricks could be wildly out). Well done on the drop in your levels
 

natzmum

Member
Messages
5
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
I was also taken of gliclacide. Just on Jardiance now. My Mounjaro was dropped from the 10mg to a maintenance dose of 5mg 2 weeks ago. My sugars are rising and my eating has gone right back to pre mounjaro. Nothing I can do about it because they're more interested in cost when its via the NHS. So yeah, i am on a maintenance dose but there was no discussion about it. I was just told now i'd reache 8st 7 from 11st 2and 45 re sugar from 65 that it had to be halved. Mounjaro stops you feeling hungry. It doesn't change your eating habits. I have no idea what the point was of being on it in the first place. Had a blood test again yesterday so am waiting to see but my weight is creeping up. Mounjaro is amazing. It also turns off that food noise where some like myself eat even if not hungry. Emotional eating. Nothing else has ever done that. A big gutted to be honest and have no imput into any of it. I've been on it for around 8 months. Not for a long time.
 
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