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- Type of diabetes
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Just go ahead and post away to your hearts contentTerrorise as in probrally posting too much
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That's what a forum is for!
Just go ahead and post away to your hearts contentTerrorise as in probrally posting too much
X
Thank you bluetit.I echo what everyone else has said on here, @ally1 . You are one strong lady. Now you are back on the forum, don't be a stranger. We all love and respect you and you have many shoulders to cry on should you need to. Sending lots of virtual hugs. xx
What I do think should now happen, is for the neurologist, rheumatologist and ENT to interact together as to what may be interfering with each illness/disability.
Once I get over the shock of having MS, I will be on here more often, terrorising you and the mods x
So true what you have said.Ally, I don't know when you are next due to "see" any of your Consultants, but in your shoes, I would share with him your concerns about the potential for clashes, or confusion, in terms of treatment. I'd also add the Psych in there, because everything physical impacts out mind and mood too.
Now, please ignore the labels on this image, but it is how I see it all - those 3 Consultants in the mix, with the overlaps impacting one or more other condition, the the wrap around circle, in my mind is the psychological impacts.
As you well know, we have to be our own strongest advocates in all these things, but you have some great tools for that, that have been hard won and learned the hard way, over the years.
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Ally, relating to your diabetes; I can understand how and why it might have taken a back seat in recent times. Sometimes it's a bit like juggling and we can't quite manage all the balls in the air together, so sometimes something has to be dropped for a while.
Just be kind to yourself. You deserve it.
Thank you.If you haven’t already, ally, it might help to get in touch with this support organisation.
https://www.mssociety.org.uk/care-and-support/financial-help
perhaps there is a local support group, (similar to the group you used to volunteer for) or someone who will be able to assist in any applications for benefits and grants.
I would just add that your resilience and positive attitude are an inspiration, and I don’t doubt that if you did find a social group with others who have MS, you would give more support than you took.
Sorry I didn't mean to do the smileyI hope you can get support in your application, @ally1 . You now have a change in circumstance with your new diagnosis, so this should not be overlooked.
I wonder if you would find this useful?
https://www.benefitsandwork.co.uk/pip-test
A lot of people do not know that this should be taken into consideration:-
PLEASE NOTE, When you are assessing yourself, the law says that you only count as being able to do something if you can do it safely; to an acceptable standard; repeatedly and in a reasonable time period. Guidance also says that 'pain, fatigue, breathlessness, nausea and motivation' should all be taken into account.
Also, if you can only carry out an activity for some of the time, rather than always, then that needs to be considered too.
Best of luck, ally. I hope you get the PIP award you need, and that you keep as healthy and happy as possible.