My c-peptide results

[UsmanMo96]

Hi All, my c-peptide results came back.
Dr told me I have I'm making insulin and I'm type 2.

I'm on Insulin now too, called Lantus. 10 y units a day.

I'm not getting any better on insulin my levels still high.

My genetic testing results are yet to come back but most likely those will indicate the same.

I'm really struggling to bring down my numbers and even on insulin its staying high
2 hours after meals I'm still 6 points up. Then I'm coming down after 6 hours my levels are down to 14mmol and that's the problem I'm having I'm waking up high and I'm coming down after 6-7 hours.. I haven't been able to see any low numbers at all. I guess I will take my insulin and just get on with my life since I have run out of options.

 

[Circuspony]

Sorry if I've missed previous posts but have you run through your diet on here? I'm type 1 but if I cut right back on my carb intake I need little to no insulin.

Are you speaking regularly to your Doctor? You might need to change the number of units of Lantus to help those figures too

 

[Antje77]

I'm on Insulin now too, called Lantus. 10 y units a day.

I'm not getting any better on insulin my levels still high.

It takes time to find the right dose, try to have some patience. Some people only need 4 units, others need 200 units or more. I take around 80 units of long acting insulin (your Lantus is a long acting insulin) and I add a short acting insulin at meals as well.
The only way to find out what dose you need is slowly adjusting the dose and seeing what happens. It takes time to do this safely, as you want to avoid hypo's!.

I guess I will take my insulin and just get on with my life since I have run out of options.

As written above, you've far from run out of options, you're just starting to find your way, please don't give up! I hope your doctor is still working with you to find the correct dose, you'll get there!

 

[xfieldok]

Can you tell us what your eating in a typical day?

 

[UsmanMo96]

It takes time to find the right dose, try to have some patience. Some people only need 4 units, others need 200 units or more. I take around 80 units of long acting insulin (your Lantus is a long acting insulin) and I add a short acting insulin at meals as well.
The only way to find out what dose you need is slowly adjusting the dose and seeing what happens. It takes time to do this safely, as you want to avoid hypo's!.

As written above, you've far from run out of options, you're just starting to find your way, please don't give up! I hope your doctor is still working with you to find the correct dose, you'll get there!

It's been 4 weeks since I have been on novorapid and only a week since I been on lantus.

I understand everything takes time but I'm not sure if I have time my libre tells me in past 90 days I have been 8% in target range. I really want to get my numbers down asap.

 

[UsmanMo96]

Can you tell us what your eating in a typical day?

I eat more fish and meat, than anything else. Even for breakfast now I have eggs or something that's got 5-10g of carbohydrates or less. I read the packaging now which before I never did.

 

[xfieldok]

If you have only been on insulin for 4 weeks, what does your libre say for the last 7 and 14 days?

 

[UsmanMo96]

If you have only been on insulin for 4 weeks, what does your libre say for the last 7 and 14 days?

 

[Antje77]

It's been 4 weeks since I have been on novorapid and only a week since I been on lantus.

I understand everything takes time but I'm not sure if I have time my libre tells me in past 90 days I have been 8% in target range. I really want to get my numbers down asap.

How is your consultant advising you to adjust your doses? If I remember correctly, the usual advice is to up the dose of Lantus no more often than every 3 or 4 days to find the correct dose. Is this what is happening, reviewing your dose once or twice a week after giving your consultant the day curves of your bg?

It's been 4 weeks since I have been on novorapid and only a week since I been on lantus.

I understand everything takes time but I'm not sure if I have time my libre tells me in past 90 days I have been 8% in target range. I really want to get my numbers down asap.

From an older post of yours I understand you have changed your diet too, very recently in the last couple of weeks.
Please give it some time. You've only been on insulin for a couple of weeks.

 

[UsmanMo96]

How is your consultant advising you to adjust your doses? If I remember correctly, the usual advice is to up the dose of Lantus no more often than every 3 or 4 days to find the correct dose. Is this what is happening, reviewing your dose once or twice a week after giving your consultant the day curves of your bg?

From an older post of yours I understand you have changed your diet too, very recently in the last couple of weeks.
Please give it some time. You've only been on insulin for a couple of weeks.

I have a appointment a phone call with the Diabetes nurse Thursday. But I have been seeing a weight gain too. I was told initially weight loss and then I'm now gaining weight on the insulin so it's going to have to be weight gain till I find out what I need to do to make the levels drop

 

[DCUKMod]

@UsmanMo96 - I have never used insulin, so I could never, ever be considered any kind of expert, or have personal experiences to share with you, but I have read a lot on here.

On thing I have read, fairly regularly is that if your numbers have been running significantly high for quite a while, the medics often prefer to bring them down more slowly than seems to make sense at times. This often because if blood glucose is reduced too rapidly, there can be unwanted changes in the eyes.

Again, from what I have read, those changes are more often than not, temporary, but who wants to gamble too much on that? Our eyes and sight is very precious.

I can't imagine how frustrating the whole thing is for you, but in lots of things in life, balance is the key. Sadly, to gain balance, we sometimes need to be patient, when every fibre of our bodies want to to get on with things.

I can be very impatient, so I get it, big time, but please do try to allow steady, more gentle progress than a big hit on your body.

Stick with it.

 

[Rose22]

I have a appointment a phone call with the Diabetes nurse Thursday. But I have been seeing a weight gain too. I was told initially weight loss and then I'm now gaining weight on the insulin so it's going to have to be weight gain till I find out what I need to do to make the levels drop

I was told by specialist diabetes nurse that I would gain weight at first on insulin and not to worry. I was told I was type 2 by the go for a few years despite high numbers. I had cpeptide shoeing I too was making insulin and I was put on repaglinide was fantastic, until I wasn’t making enough insulin anymore and my numbers where starting 12 and up to 24 by bed. Despite low carb and trying to up exercise. Since being on insulin it’s much better, start day 5-7 and end it around 6-8 if I’ve dosed right...still learning that part! Perhaps a chat with your consultant may help?

 

[Daibell]

Hi. What were your C-Peptide results? What is your weight/BMI currently? It sounds like your diet is sensible but if you do have some excess weight, insulin resistance could be messing with the insulin? Yes, do seek advise from the GP/DN on how to adjust the insulins. Are you carb-counting yet?

 

[UsmanMo96]

@UsmanMo96 - I have never used insulin, so I could never, ever be considered any kind of expert, or have personal experiences to share with you, but I have read a lot on here.

On thing I have read, fairly regularly is that if your numbers have been running significantly high for quite a while, the medics often prefer to bring them down more slowly than seems to make sense at times. This often because if blood glucose is reduced too rapidly, there can be unwanted changes in the eyes.

Again, from what I have read, those changes are more often than not, temporary, but who wants to gamble too much on that? Our eyes and sight is very precious.

I can't imagine how frustrating the whole thing is for you, but in lots of things in life, balance is the key. Sadly, to gain balance, we sometimes need to be patient, when every fibre of our bodies want to to get on with things.

I can be very impatient, so I get it, big time, but please do try to allow steady, more gentle progress than a big hit on your body.

Stick with it.

I shall wait and see, I have spoken to the consultant already and I have weekly chats with the diabetes nurses but I really want to know what more I can do and what other things I could get tests done on, c-peptide was the best test to get done to find my type of diabetes, but in a sense I already knew I was type 2, if I wasn't I would be probably not here anymore since my body would shut down without insulin. I will take it day by day.

 

[UsmanMo96]

I was told by specialist diabetes nurse that I would gain weight at first on insulin and not to worry. I was told I was type 2 by the go for a few years despite high numbers. I had cpeptide shoeing I too was making insulin and I was put on repaglinide was fantastic, until I wasn’t making enough insulin anymore and my numbers where starting 12 and up to 24 by bed. Despite low carb and trying to up exercise. Since being on insulin it’s much better, start day 5-7 and end it around 6-8 if I’ve dosed right...still learning that part! Perhaps a chat with your consultant may help?

Consultant told me that its most likely type 2 based on the c-peptide, I respect him because hes the best my GP says. So I already knew I was tyoe 2. But, I don't know why my blood sugars stay high for several hours after my meals and by my next meal I'm sitting around 20 and I know if I eat I'll go HI, then I will go down several hours later and I'm only going down from 20 to 15. I know people will say that's still a 5 point drop but its annoying I am on loads of medications and I thought that would help me up be within the normal range which is 5-8, 2 hours after meals I never go 2 points up I go 8-9 pints up. I still have loads to learn and I'm hoping I can turn this around.. and tell my HCP "no diabetes isn't forever"

 

[UsmanMo96]

Hi. What were your C-Peptide results? What is your weight/BMI currently? It sounds like your diet is sensible but if you do have some excess weight, insulin resistance could be messing with the insulin? Yes, do seek advise from the GP/DN on how to adjust the insulins. Are you carb-counting yet?

C-peptide test I haven't received a copy but I know the DR has told me type 2. I'm weighing in @ 70.6kg my bmi is 25.0, I have regular talks to the diabetes nurse about my readings and insulin but no matter how much I dose I still stay high and I rarely go LOW.

 

[Daibell]

C-peptide test I haven't received a copy but I know the DR has told me type 2. I'm weighing in @ 70.6kg my bmi is 25.0, I have regular talks to the diabetes nurse about my readings and insulin but no matter how much I dose I still stay high and I rarely go LOW.

I would try to find out what your C-Peptide was. If you don't yet have access to your surgery test results online it's worth getting that done as it will enable you to take more control. It's good that you were given the C-Peptide test but I'd look at the result just in case. Are you adjusting your NovoRapid dose at each meal for the carbs in that meal; called carb-counting. Also you need to check that your Lantus is balanced; it should enable your BS to remain stable when doing without food for, say, 8 to 10 hours.

 

[UsmanMo96]

I would try to find out what your C-Peptide was. If you don't yet have access to your surgery test results online it's worth getting that done as it will enable you to take more control. It's good that you were given the C-Peptide test but I'd look at the result just in case. Are you adjusting your NovoRapid dose at each meal for the carbs in that meal; called carb-counting. Also you need to check that your Lantus is balanced; it should enable your BS to remain stable when doing without food for, say, 8 to 10 hours.

I have myGP but I don't have access to blood test results which are requested by the specialist. The blood tests my GP request I have access too. I wouldn't understand the results of the c-peptide either way or maybe if you gave me the c-peptide ranges to could understand. I can call the diabetes team and request it through the phone.