Yeah there is no DAFNE over here. the best you get is the Carb lesson from the Dietican. who loves the starchy carbs with every meal.
i was only dx in July and i know your frustration with no getting a response!! i was calling them all the time but hardly ever heard back.
I'm afraid i've given up on them. I thought DR Khan was one of the enlightened ones who wanted the patient to be involved and a lo carb advocate but after my last meeting with him on the 12th december i've given up all hope of proper treatment to be honest.
I've just had to go back to doing exactly as i am told and not thinking for myself. because when you go it appears they already have in their heads what they want to tell you and nothing you say will make them change from the script. like my "i'm on metformin, my hair is staring to fall out, i feel sick all the time, my numbers are not good regulary going into the high teens, my arms and legs getting massive pains and throbbing if i walk anywhere, i have chest pain and back pain, and generally feel like poop, when i was using insulin (not that i ever want to go back on that stuff) i felt fantastic and didn't feel half as poo as i do now. could it be the tablets making me feel under the weather?" doc- "no its cant possibly be the tablets- cue lecture on losing weight (even though am barely eating and trying to excercise but teh exhaustion is killing me.)
i've just had to give up.
But of tools!!!!
i was only dx in July and i know your frustration with no getting a response!! i was calling them all the time but hardly ever heard back.
I'm afraid i've given up on them. I thought DR Khan was one of the enlightened ones who wanted the patient to be involved and a lo carb advocate but after my last meeting with him on the 12th december i've given up all hope of proper treatment to be honest.
I've just had to go back to doing exactly as i am told and not thinking for myself. because when you go it appears they already have in their heads what they want to tell you and nothing you say will make them change from the script. like my "i'm on metformin, my hair is staring to fall out, i feel sick all the time, my numbers are not good regulary going into the high teens, my arms and legs getting massive pains and throbbing if i walk anywhere, i have chest pain and back pain, and generally feel like poop, when i was using insulin (not that i ever want to go back on that stuff) i felt fantastic and didn't feel half as poo as i do now. could it be the tablets making me feel under the weather?" doc- "no its cant possibly be the tablets- cue lecture on losing weight (even though am barely eating and trying to excercise but teh exhaustion is killing me.)
i've just had to give up.
But of tools!!!!