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My story do I have the dreaded TRIGEMINAL NEURALGIA ?

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Dave UK

Member
Messages
6
Started about a month ago pain in mouth & face I took pain killers it passed then returned it felt like tooth ache so of to the dentist yes a wisdom tooth had movement but x rays showed no immediate problem come back in 6 months with view to extraction Ok that explained the possible pain so kept car windows closed used a winter scarf & once more the pain returned - never had anything like it before I dont like to admit it was so bad I had to cry & could not sleep more pain killers & another trip to the dentist more x rays same result - annoyed me a bit saying if still have problems come back if you want so I consulted my mate Dr Google & read about trig neuralgia it described the pain perfect & that painkillers would not help although they made me feel worse - so eventually I went to the Doctor
Oh if Id known it was that Dr I wouldnt have gone - You have diabetes she asked, yes she wrote a prescription more painkillers I mentioned the dentist comment yes it could be she said a blood test should tell us so since I stopped taking any painkillers I started to feel better but mild attacks one side mouth to ear usually if I eat & it is about 3 hours before it goes, I had a phone call from the Doctors office book in to see diabetic nurse Oh it must be the blood glucose being high well I no longer have sugar at all I have doubled upon metformin & others about 3 months ago there was insulin mentioned before so Im guessing that will be next so do I wait & suffer or go back & say look will you please give me the anti convulsant I think I need to stop this blooming evil pain - any thoughts or advice from fellow sufferers would be appreciated
 
Do you have your blood sugar test figures please? And does the GP think it is type 1 or type 2 diabetes?
 
Dave UK said:
Started about a month ago pain in mouth & face I took pain killers it passed then returned it felt like tooth ache so of to the dentist yes a wisdom tooth had movement but x rays showed no immediate problem come back in 6 months with view to extraction Ok that explained the possible pain so kept car windows closed used a winter scarf & once more the pain returned - never had anything like it before I dont like to admit it was so bad I had to cry & could not sleep more pain killers & another trip to the dentist more x rays same result - annoyed me a bit saying if still have problems come back if you want so I consulted my mate Dr Google & read about trig neuralgia it described the pain perfect & that painkillers would not help although they made me feel worse - so eventually I went to the Doctor
Oh if Id known it was that Dr I wouldnt have gone - You have diabetes she asked, yes she wrote a prescription more painkillers I mentioned the dentist comment yes it could be she said a blood test should tell us so since I stopped taking any painkillers I started to feel better but mild attacks one side mouth to ear usually if I eat & it is about 3 hours before it goes, I had a phone call from the Doctors office book in to see diabetic nurse Oh it must be the blood glucose being high well I no longer have sugar at all I have doubled upon metformin & others about 3 months ago there was insulin mentioned before so Im guessing that will be next so do I wait & suffer or go back & say look will you please give me the anti convulsant I think I need to stop this blooming evil pain - any thoughts or advice from fellow sufferers would be appreciated
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Has anyone suggested an ear infection.. I used to get them as a kid hurt like hell and needed antibiotics to treat.
 
Dave UK said:
Started about a month ago pain in mouth & face I took pain killers it passed then returned it felt like tooth ache so of to the dentist yes a wisdom tooth had movement but x rays showed no immediate problem come back in 6 months with view to extraction Ok that explained the possible pain so kept car windows closed used a winter scarf & once more the pain returned - never had anything like it before I dont like to admit it was so bad I had to cry & could not sleep more pain killers & another trip to the dentist more x rays same result - annoyed me a bit saying if still have problems come back if you want so I consulted my mate Dr Google & read about trig neuralgia it described the pain perfect & that painkillers would not help although they made me feel worse - so eventually I went to the Doctor
Oh if Id known it was that Dr I wouldnt have gone - You have diabetes she asked, yes she wrote a prescription more painkillers I mentioned the dentist comment yes it could be she said a blood test should tell us so since I stopped taking any painkillers I started to feel better but mild attacks one side mouth to ear usually if I eat & it is about 3 hours before it goes, I had a phone call from the Doctors office book in to see diabetic nurse Oh it must be the blood glucose being high well I no longer have sugar at all I have doubled upon metformin & others about 3 months ago there was insulin mentioned before so Im guessing that will be next so do I wait & suffer or go back & say look will you please give me the anti convulsant I think I need to stop this blooming evil pain - any thoughts or advice from fellow sufferers would be appreciated
Click to expand...

Hello there - you say you have no blood sugar at all. That's unlikely, so I am assuming you mean you have healthy levels. Do you know what those are? Do you follow any sort of dietary regime?

Trigeminal neuralgia is a vile condition, and I can think of a couple of members diagnosed with this. Most recently, if I recall accurately, @lucylocket61 (hope you're well, Lucy), and @LooperCat who, again if I recall accurately, found hers went away on a keto style diet.

Typically, being sporadic, it becomes difficult to definitively diagnose, eliminate or treat.

Has anyone offered you pain relief at all?
 
No bs figures but it is type 2..............been taking ibruprophen after dumping co codamol & much better just mild to moderate pain in mouth gum area. slept well last night thank God - Im also taking magnesium & a vit B supplement ....thanks for the reply
 
DCUKMod said:
Hello there - you say you have no blood sugar at all. That's unlikely, so I am assuming you mean you have healthy levels. Do you know what those are? Do you follow any sort of dietary regime?

Trigeminal neuralgia is a vile condition, and I can think of a couple of members diagnosed with this. Most recently, if I recall accurately, @lucylocket61 (hope you're well, Lucy), and @LooperCat who, again if I recall accurately, found hers went away on a keto style diet.

Typically, being sporadic, it becomes difficult to definitively diagnose, eliminate or treat.

Has anyone offered you pain relief at all?
Click to expand...

Erm yes I meant to say I take no sugar in diet & I eat quite healthily dont smoke drink small amount red wine - I dont excercise & I am overweight also have had major depression for a long long time
The cocodomol made me much worse & horrible painfull constipation since I dithched that drug felt so much better & so happy just being able to go to the loo........
 
Dave UK said:
Erm yes I meant to say I take no sugar in diet & I eat quite healthily dont smoke drink small amount red wine - I dont excercise & I am overweight also have had major depression for a long long time
The cocodomol made me much worse & horrible painfull constipation since I dithched that drug felt so much better & so happy just being able to go to the loo........
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Has your GP looked at a possible recurring sinus infection?

Also, taking ibuprofen for longer than recommended can cause stomach issues. Going back to your GP is a good idea.

How long has the pain been going on?

I fought that lowering my carbs, not just sugar, helped a great deal.
 
Dave UK said:
Started about a month ago pain in mouth & face I took pain killers it passed then returned it felt like tooth ache so of to the dentist yes a wisdom tooth had movement but x rays showed no immediate problem come back in 6 months with view to extraction Ok that explained the possible pain so kept car windows closed used a winter scarf & once more the pain returned - never had anything like it before I dont like to admit it was so bad I had to cry & could not sleep more pain killers & another trip to the dentist more x rays same result - annoyed me a bit saying if still have problems come back if you want so I consulted my mate Dr Google & read about trig neuralgia it described the pain perfect & that painkillers would not help although they made me feel worse - so eventually I went to the Doctor
Oh if Id known it was that Dr I wouldnt have gone - You have diabetes she asked, yes she wrote a prescription more painkillers I mentioned the dentist comment yes it could be she said a blood test should tell us so since I stopped taking any painkillers I started to feel better but mild attacks one side mouth to ear usually if I eat & it is about 3 hours before it goes, I had a phone call from the Doctors office book in to see diabetic nurse Oh it must be the blood glucose being high well I no longer have sugar at all I have doubled upon metformin & others about 3 months ago there was insulin mentioned before so Im guessing that will be next so do I wait & suffer or go back & say look will you please give me the anti convulsant I think I need to stop this blooming evil pain - any thoughts or advice from fellow sufferers would be appreciated
Click to expand...
Big hugs if you are in pain like this.
I am not a sufferer but remember seeing this very interesting Doctor in the House episode on the topic:
https://www.bbc.co.uk/programmes/p0529xvr
I hope you can fiind that as Dr Chatterjee seemed to find a partial solution to the probalem. See You Tube if you can't play it here.
 
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