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Need a listening ear

brcsmr

Member
Messages
6
Location
Bristol, England
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Dislikes
Nothing really
I am type2 due to me not looking after my body when I had the chance and an accident at work. I am finally getting to grips but, already I have - neuropathy in my arms, legs and feet. I am going blind in one eye. Feeling really down, possibly losing my job due to sight issues. I also have depression, low mood, IBS and much more I need help urgently.
 
None of that is good to read ... your eyesight in numero uno. Can you tell us why?
 
I’m going to tag @daisy1 who will be able to give you some great starting guidance. Please don’t fall for the media idea that diabetes is a self inflicted illness. We need the bad luck of the wrong metabolism as at least part of the equation, plenty of people that don’t look after themselves don’t get diabetes.

In the meantime tell us a bit about yourself, what are your numbers like?, are you on any meds?what sort of things do you eat? Do you test your own bloods?

Above all don’t despair. You can improve your lot. You’ve come to the right place for ideas, help and support. Read arou d the forum, ask questions.
 
What kind of help would you like from us? A listening ear? (we have plenty of them), advice about managing diabetes? (plenty of that too, starting with @daisy1 and the question if you use a meter) or a virtual hug because you feel rubbish about everything right now? (here's one from me to start with -HUG- ).

And you don't get diabetes from doing whatever. Most people will never develop diabetes, regardless of what they do or eat. You happened to have bad luck, please stop feeling guilty.
 
Hello and welcome. We're good at listening so if there is anything, anything at all you'd like to discuss then fire away.
 
@brcsmr
Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it interesting and helpful.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
I am type2 due to me not looking after my body when I had the chance and an accident at work. I am finally getting to grips but, already I have - neuropathy in my arms, legs and feet. I am going blind in one eye. Feeling really down, possibly losing my job due to sight issues. I also have depression, low mood, IBS and much more I need help urgently.
You didn't do this to yourself. Most T2's get it because they have a genetic predisposition, a co-morbidity (like PCOS, but you're not likely to have an ovarian cyst I guess. ;) ), or medication that kicked it off. If you gained weight, you didn't know why it was piling on: when you become insulin resistant, a precursor of prediabetes and diabetes, your body becomes insensitive to insulin. So rather than helping you burn glucose for fuel, it just gets stored in fat cells instead. The weight-gain is a symptom, not cause of T2! Now, seeing that practically all carbs turn to glucose once ingested (so not just straight sugars, but starches too!), and most diets focus on low fat rather than low carb... If you'd tried to lose weight the conventional way, it probably wouldn't've worked, because it was the carbs that were the problem and you didn't know that was the problem, before. (I tried regular diets under the hospital's dietician, and just got bigger. Until morbidly obese.).

You can try to control T2 with meds, but then it is a progressive condition getting ever worse with more medication required, and in the end, most likely, insulin shots. If you change your diet you could maybe stall the progression of the disease, maybe even reverse some of the damage? My bloods have been in the normal range for 2 years now, no complications, no medication... Lost 50 pounds to boot, my cholesterol is down too... Just on diet. You might want to look into a Low Carb/High Fat diet (And yes, that is rather counter intuitive after everything we've been told for decades, but it does work). Meaning you cut out carby foods like bread (or anything made with regular flour), rice, potatoes, corn, cereals, beans and fruit. Except for avocado, berries, starfruit and tomatoes, those are okay. Stick with low to no-carb foods like meat, fish, poultry, above-ground veggies/ leafy greens, eggs, cheese, nuts, cream, full fat greek yoghurt, extra dark chocolate, olives, that sort of thing. I've found cauliflower rice and broccoli rice to be excellent substitutes for potatoes, rice and pasta so far. Usually toss in bacon and cheese to bulk it up, and whatever herbs/spices take my fancy.

Check the forum's related website for low carb meal ideas, or dietdoctor.com. Maybe read Dr Jason Fung's The Diabetes Code, as it is an excellent read and contains information you never even knew you wanted to know.

As a quick-starter thugh, these foods won't spike you:

Scrambled eggs with bacon, cheese, mushrooms, tomato, maybe some high meat content sausages?
Eggs with ham, bacon and cheese
Omelet with spinach and/or smoked salmon
Omelet with cream, cinnamon, with some berries and coconut shavings
Full fat Greek yoghurt with nuts and berries
Leafy green salad with a can of tuna (oil, not brine!), mayonaise, capers, olives and avocado
Leafy green salad with (warmed goat's) cheese and bacon, maybe a nice vinaigrette?
Meat, fish or poultry with veggies. I usually go for cauliflower rice or broccoli rice, with cheese and bacon to bulk it up. Never the same meal twice in a row because of various herbs/spices.

Snacks? Pork scratchings, cheese, olives, extra dark chocolate, nuts. :)

You do need to get yourself a meter... You have so many complications already, you really need to know where you're starting from and where you're headed. (Plus, you don't have to take some random stranger on the internet on their word: you can see what your bloodsugars respond well to, yourself). Check before a meal and 2 hours after first bite. If you go up more than 2.0 mmol/l, it was carbier than you could process out again. In all likelyhood your numbers will be high when you start testing, considering the complications you already have, but the main point is the rise between meals... If that remains at 2.0 or under, the over-all level'll drop eventually too. Could be in days, could be a few weeks, but it will come down.

Also, considering your current position, I'm guessing you're on a lot of medication already...? If there's anything in there where the complications listed contain Hypoglycemia, do NOT attempt a low carb diet without help from your doc and/or a meter. If you change the way you eat drastically and don't do anything about your medication to fit the new lifestyle (and it is for life), and don't know when you are having a hypo because there's nothing to test with, you could hypo and that's not a situation you want to be in. So do be careful and don't charge in. Just learn, discuss with youe medical team, and go from there. And test, test, test! ;)

Be careful and good luck,
Jo

PS: My IBS and depression responded well to a low carb diet. When your numbers are always high and you're facing complications, certainly has a mental impact. And our guts sometimes don't like what we're putting in there either... This may make you feel better over all. Eyesight improved too...
 
As said don't beat yourself up about it you did not cause it. No one knows why some people get diabetes and others never do for most of us it is a total mystery. You will get advice about a diet here but it is not what the NHS guidelines are so you may be told different by your nurse then it will be up to you to do what you think will suit you best
 
In agreeing with the above, it's perhaps useful to understand about beta cells. These are the fellas that produce insulin for us. We have pretty much all the beta cells we are going to have by our late teens. We then start using them up. By the time we get to 60, most people have in the order of 70% of them left. Trouble is, the number we started with varies from person to person.
For most people, 70% (ish) is more than enough, so whatever they eat, no matter what weight they are, they won't become diabetic. But for those of us who were at or towards the back of the queue when the cells were handed out, 70% isn't adequate and we start to become diabetic.
So it's not your fault. A stat I always remember is that 80% of diabetics were obese/overweight at diagnosis, but 80% of obese/overweight people will never be diabetic.
Having said that, once we are on the path, we need to preserve the cells we do have left, which means eliminating blood sugar peaks, which means the sort of diets you'll see recommended on here.
 
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