1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Neuropathy extreme pain, other types of meds ect

Discussion in 'Diabetes Complications' started by MrDieselx, Sep 12, 2016.

  1. gillianwrdl

    gillianwrdl Type 2 · Member

    Messages:
    11
    Likes Received:
    5
    Trophy Points:
    43
    I have been determined to get to the bottom of this problem and find something which helps. A naturopathic chemist researching the problem recommended ALA and Chromium, which I have taken for some years, and if I run out boy do I know it!! I have arthritic problems in hands and feet as well, also have had Chemo in the past, so it is a multiple problem with uncertain specific causes. I am on Metformin ( vit B 12 is necessary with Metformin, Methylcobalamin not Cyanocobalamin) which I will not give up, Meloxicam (for inflammation), turmeric tablets, Magten magnesium, a multivitamin supplement every few days, also Effexor antidepressant which counteracts Chemo chemical muck-ups. Anti-inflammatory gell is great for the feet, and the latest on is Percutane cream which is helping. This is pretty hot so use sparingly! I rarely am troubled at night now. For hands I use my TENS machine in the mornings to unstiffen them...instant relief, and wont go anywhere without it. In cold weather I use a foot vibrating thingo with hot water and soda. Morning pain is worse, so I often take slow relief Panadol Osteo. I have had to learn to keep off my feet when possible, and not feel guilty about neglecting housework! I am 76.
    I hope this helps somebody. There is definitely no one only answer yet, but a multi tactic approach is needed.
     
    • Like Like x 1
    • Informative Informative x 1
  2. jill17

    jill17 Type 1 · Member

    Messages:
    11
    Likes Received:
    5
    Trophy Points:
    23
    I have neuropathy in my feet, such that I have lost most of the feeling and can no long drive, it is has not been as painful as yours although the cramps and pins and needles have been very troublesome in the past, disturbing sleep. But since taking duloxetine I only get the occasional cramps night.
     
  3. connie104

    connie104 Type 2 · Well-Known Member

    Messages:
    924
    Likes Received:
    2,349
    Trophy Points:
    158
    Can I ask you if you had trouble with Duloxetine when you first took it ?
    I was prescribed this for my neuropathy but after taking one tablet I felt so ill, couldn't sleep, my eyes were popping out of my head ( which was quite worrying as I have bad glaucoma) I was sick a felt dreadful for the next 2 days curled up in a ball in bed I just couldn't take another one . My doctor did say that I would know within a week if I could tolerate it but it seems it only took a day ! I've tried all the other meds amiltripline and gabpentin so this was my last hope , so dont know what else I could try.
     
  4. toncra1

    toncra1 · Active Member

    Messages:
    31
    Likes Received:
    8
    Trophy Points:
    28
    Hi Sweatpea, sorry to hear about your ongoing problems.... I was diagnosed T2 three years ago (182) and went low carb straight away. I got my HbA1c count down within the normal range within weeks and have kept it there ever since....Low Carb is the only way to keep your BG at a sensible level. No bread, no rice, no potato. no pasta, no sugary foodstuffs at all. Plenty of veg and meats/fish and as an alcohol drink only wine.... Try it, I`m sure it will be worth it to you. You had better ok things with your doctor because you will have to reduce your meds.
     
  5. toncra1

    toncra1 · Active Member

    Messages:
    31
    Likes Received:
    8
    Trophy Points:
    28
    To every one writing here, the only way to get any noticeable results is to go Low Carb.
    treat yourself to a Dr, Atkins diet book and follow the system. I did it three years ago and have kept in the normal range ever since.......I now keep my daily Carb intake to approx` 30 to 40 carbs a day plus my organic porridge for breakfast made with water and I add about one third of a teaspoon full of organic cinnamon to the porridge which is a low glycemic food and the cinnamon is known to act/assist the insulin in transporting the carbs into the cells .... Hope this helps.
     
    • Like Like x 1
  6. DerbyDave

    DerbyDave Type 2 · Newbie

    Messages:
    4
    Likes Received:
    3
    Trophy Points:
    23
    I had the exact same experience. Have tried the usual treatments and I took 2 duloxetine and refused to take another as the side effects were hideous!

    Back to square one with my feet.
     
    • Like Like x 1
  7. mgwoolgar

    mgwoolgar Type 2 · Newbie

    Messages:
    4
    Likes Received:
    6
    Trophy Points:
    43
    Hi gillianwrdl, Thanks for the complete run-down on treatments. I am T2, for about ten years now, and my feet are starting to bother me - no real pain, but feeling dead on the bottom. I try to run them over a knarly roller for 5 minutes every night, -- don't know if it helps, but I can imagine that it does. Tell us more about your vibrating thingy; what's it called and what's it like - I think that could be very useful. Also, please tell me what a TENS machine is??
     
  8. scarborough

    scarborough Type 2 · Member

    Messages:
    6
    Likes Received:
    1
    Trophy Points:
    23
    I do not know how bad is bad and to compare pain is a verbal extreme. anyway I have allowed myself to consider sensation in my legs as neuropathy it comes slowly as if have wet myself and normally goes away enough to ignore it if I move position. lately I have had I itch on my skin all over my legs but have had itchy skin all over my back for some months may be a year. it doses not fit into Ignore neuropathy but thinking now it could be.
    The answer to your question is a natual tonic called omega 48. it was offered as a semi secret herbal tonic which when first developed was through a dream this chap calle Gordon he wrote down the recipe. he found alsorts of uses one of reduceing and curing cancer. when this leeked out out of the 8 develpoers 4 of them whre killed sub from chemisty retail labs. I have been taking Omega 48 but have run out and think the reacurance of the itching is because the effects are whreing off. Iallso had pain in my shoulders enough to be prescribed stong pain killers I stopped taking them rubbing the Omega on my hands reduced the pain of rumastisam to baer minimum.
     
  9. AndBreathe

    AndBreathe I reversed my Type 2 · Expert
    Retired Moderator

    Messages:
    9,659
    Likes Received:
    15,719
    Trophy Points:
    178
    Scarborough, can I ask if you take Metformin or any other medications on a day to day basis, such as painkillers or statins?
     
  10. agavegertie

    agavegertie Type 2 · Member

    Messages:
    7
    Likes Received:
    0
    Trophy Points:
    21
    Dear MrDieselx, My Type 2 Diabetes was discovered originally because I suffered with frightful neuropathy pains in my feet. Eventually, I was sent to see a Consultant Neurologist. I have been on Duloxetine since the last treatment for the neuropathy pains stopped helping me. I take 30 mg in the morning and 60 mg in the evening. The result of this is that my brain does not register the neuropathy pain. I find that the smaller dose of this anti anxiety/depression medicine really works. As with many of this type of medicine its side effects such as a weird sleeplessness at the start of taking it do stop, after a month or so. It is like a miracle to have no pains in my feet. I used to get strong pulsing pains which were like a cross between feeling scalded and violent pins and needles. I simply could not get off to sleep because of them and needed to drop off eventually through total exhaustion. So, if you have not tried this medicine you could ask for a trial, I would start at the lower dose so as to get used to it and then your doctor can decide whether it is a good idea to up the dose later on. Best wishes
     
  11. Angusc

    Angusc Type 1 · Well-Known Member

    Messages:
    103
    Likes Received:
    52
    Trophy Points:
    88
    I have a more general pain(they not sure what atm 17years of it) problems and find that heat helps a lot and also make insulin work better, going to bed with a electric blanket and reading a good book or playing a good computer game distract from the pain and allows insulin to work as pain causes stress hormones which make you resistance to insulin.
     
    #31 Angusc, Feb 10, 2017 at 5:54 AM
    Last edited: Feb 10, 2017
  12. Angusc

    Angusc Type 1 · Well-Known Member

    Messages:
    103
    Likes Received:
    52
    Trophy Points:
    88
    • Useful Useful x 1
  13. Mrs of type 1

    Mrs of type 1 Family member · Well-Known Member

    Messages:
    62
    Likes Received:
    4
    Trophy Points:
    48
    My husband (T1) has neuropathy and fibromyalgia. He takes 100 mg of Duloxetine, Tramadol and chilli cream. He is not totally pain free but he finds the Duloxetine especially effective. Have you been to your hospital pain clinic? They are very good at our local hospital and have helped my husband greatly.
     
  14. Junior_Jones

    Junior_Jones Type 2 · Newbie

    Messages:
    4
    Likes Received:
    14
    Trophy Points:
    43
    I have a rare manifestation of diabetic neuropathy that affects the nerves in my tongue. I also get it in my on the left side of my body affecting my face and legs. Also starting to get it in my left arm. You need a specialist neurologist to diagnose you. The various medications recommend do help but you may need to consider taking up Mindfulness meditation and/or self-hypnosis to help stop you focusing on the pain. The fatigue associated with diabetes and neuropathy worsens the pain as you brain can't turn off the signals from the nerves and this in turn makes the fatigue worse; the double edged sword.
     
    • Like Like x 1
  15. Angusc

    Angusc Type 1 · Well-Known Member

    Messages:
    103
    Likes Received:
    52
    Trophy Points:
    88
    Problem with tens is I'm allergic to the pads
     
  16. Eliseanne

    Eliseanne Type 2 · Member

    Messages:
    11
    Likes Received:
    4
    Trophy Points:
    23
    Hi All - any advice for me? Was diagnosed T2 in Nov and given metformin twice a day and in February one Janouvia tablet latest blood tests show a drop of 50% blood sugar. A week ago I suddenly got dreadful pains in my legs and lower back. So bad I couldn't lie down, A visit to specialist dr yesterday suggests that this condition has been brought on by the sudden large drop in blood sugar!, It would seem it will clear up eventually but how do I carry on my demanding job and my life without sleeping! Have been given pain medication and Lyrica. So far the only things that seem to help are very hot baths and getting up and pacing up and down. Can anyone give me some tips on coping with this? I am ok during the day - pains start around midnight and carry on until my alarm goes off at 0600. What is the best position to sleep in? Cushion under legs? At this stage I will try anything!
     
    • Like Like x 1
  17. Freema

    Freema Type 2 · Expert

    Messages:
    7,177
    Likes Received:
    16,935
    Trophy Points:
    178
    Oh poor you my mother get morphine 4 times Daily and gabapeptin still she struggles to find the Best Way to get some sleep ... sometimes there is NOT a cure but if only temporarly Maybe morphine would help , it also sometimes makes People a bit indifferent towards the pain
     
  18. Angusc

    Angusc Type 1 · Well-Known Member

    Messages:
    103
    Likes Received:
    52
    Trophy Points:
    88
    try a TENS machine that helped me before I became allergic to the pads
    heat pads may help if the hotbath helps
    I sleep with electric blanket on max seems to help
     
    #38 Angusc, Apr 20, 2018 at 6:02 PM
    Last edited: Apr 20, 2018
  19. Eliseanne

    Eliseanne Type 2 · Member

    Messages:
    11
    Likes Received:
    4
    Trophy Points:
    23
    Can anyone tell me why my legs get so painful when lying down? When I get up I am stiff and sore for a bit but if I start walking the pain wears off? Although I take a strong pain killer and Lyrica plus a hot bath I only seem to get about 4 hours of sleep before the pain wakes me up .Any tips?
     
  20. Eliseanne

    Eliseanne Type 2 · Member

    Messages:
    11
    Likes Received:
    4
    Trophy Points:
    23
    Good advice! I had already instinctively used a pillow between my knees and found it helped. I will try and get some of the alpha lipoic acid. I read somewhere that it is regularly prescribed in Germany. Hopefully things will improve but if not it is just a case of learning to cope with things - the more active I am in mind and body the better it will be!
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook