Neuropathy or not?

[conniecar]

Hi all - I've got a recent diagnosis of cranial spondylitis so neck pain due to worn discs, but had a nerve study done to eliminate neuropathy and it came back fine. Since then I've been in lots of pain. I can't walk far as I get cramp in my toes and they go numb . My hands ( I've got severe Dupytrens in both ) are very sore, my wrists ache, my forearms really ache my shoulder is aching but the doctor says it's not neuropathy. I'm currently on a TENS machine for the spondylitis as the pain killers I've tried affect me badly. I've tried gabapentin, pregabalin, topiramate, amatriptiline,noratriptiline, dulloxetine and the best was topiramate - it has the least side effects anyway but didn't do much for the pain. My pain consultant thinks I've Raynaud's, too but I think it's neuropathy. Don't know where to head next.

 

[Mrmcc]

Hello, i'm in a somewhat similar situation, Since I was diagnosed a year ago I have had very weak muscles, I had an appointment with a Neurologist a couple of weeks ago and he indicated I may be suffering Neuropathy (he said my muscles are strong but just not working properly, I get nerve pain and have reduced feeling in my toes as well as shoulder problems) he is referring me for a nerve conductivity test? and had several blood tests (again) but waiting for results.

 

[conniecar]

Good luck. Hope it gets sorted for you and let me know what they say I've seen a neurologist who diagnosed spondylitis but also 'a bit of neuropathy' in my hands and feet due to me having type 1 for 41 years. Try standing on 1 leg and see if you fall over! That's a good test! Also she told me to stand up and close my eyes and I wobbled. So it was surprising when the nerve test came back negative but I've read that it can't always see the small nerves. One thing I will say is that it feels better if my sugars are in range x

 

[Mrmcc]

Good luck. Hope it gets sorted for you and let me know what they say I've seen a neurologist who diagnosed spondylitis but also 'a bit of neuropathy' in my hands and feet due to me having type 1 for 41 years. Try standing on 1 leg and see if you fall over! That's a good test! Also she told me to stand up and close my eyes and I wobbled. So it was surprising when the nerve test came back negative but I've read that it can't always see the small nerves. One thing I will say is that it feels better if my sugars are in range x

I did the stand up wobble test, it turns out I wobble slightly to the right hand side when I walk with eyes closed, my min issue is I cant stand up without using my arms to push me up.