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Type 1 neuropathy

J

Jamietomkinson1990

Active Member
Messages
41
Location
London
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
heights
Has anyone found anything that helps with neuropathy ? ive been to the doctors so many time and been given tablets that dont do anything , i struggle to sleep at night because my feet feel like they are on fire
currently taking 300mg pregablin

please help!!!!
 
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i'd be inclined to try for a referal for pain management clinic, which specielizes in pain relief, they can likely better than a regular gp type doctor possibly be able to prescribe something which could help with it. I take several pain meds for back pain... not neuropathy, cocktail pregabalin 300, co-codomal alonside recently added tramadol together. theres plently options which a pain management clinc would likely be able to come help you wish at least to improve matters. my sis who has other chronic pain takes oxycodone when her issue flares up (also not neuropathy). Hopefully you get some relief soon
 
grantg said:
i'd be inclined to try for a referal for pain management clinic, which specielizes in pain relief, they can likely better than a regular gp type doctor possibly be able to prescribe something which could help with it. I take several pain meds for back pain... not neuropathy, cocktail pregabalin 300, co-codomal alonside recently added tramadol together. theres plently options which a pain management clinc would likely be able to come help you wish at least to improve matters. my sis who has other chronic pain takes oxycodone when her issue flares up (also not neuropathy). Hopefully you get some relief soon

thankyou for your reply its very hard im not even sure there is anything that can help for this i asked to be refured to a neurologist and they basically told me it can take a year and never referred me
i have tried pregablin , amitriptline and orderd stuff from amazon like creams and special socks
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Jamietomkinson1990 said:
Has anyone found anything that helps with neuropathy ?
Click to expand...
Hi @Jamietomkinson1990 I understand what your going through, not getting any sleep at nights is debilitating.

I was prescribed Amitriptyline, to help me get some relief from neuropathy in my feet at nights and let me sleep. I found it worked the tables made me drowsy enough to get to sleep and mask the pain enough to let me sleep through the night.
If you haven't tried them yet it might be worth asking your Doctor.

Full disclosure I stopped taking them as I did not like the side effect, feeling hungover the next day for a few hours in the mornings. I just don't like feeling hungover.

A couple of tips that help to lessen the pain on those evening you I cant get to sleep.
Get up and move around this helps blood flow to the legs and lessens the pain in my feet.
Get a couple of hours sleep in an arm chair instead of bed. Feet on the floor not raised, again this is to increase blood flow to the legs.

There are a few articles on the internet about the benefits of exercise in lessening the effects of neuropathy, what little I have gleamed from them is they are promoting increased circulation. :bookworm:
Have you tried using an Electrical Muscle Stimulation (EMS) foot massager. I even use magnetic handwarmers, round ones to curl my toes around, to in crease circulation which helps lessen the pain.

A common side effect of my neuropathy is the feeling of ants itching or crawling over my hands the magnetic hand warmers help me so much that it takes that sensation away almost immediately. Heat increase circulation.

Sorry your having such a hard time of it just now.
:bag:
 
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There is no Spoon said:
Hi @Jamietomkinson1990 I understand what your going through, not getting any sleep at nights is debilitating.

I was prescribed Amitriptyline, to help me get some relief from neuropathy in my feet at nights and let me sleep. I fond it worked the tables made me drowsy enough to get to sleep and mask the pain enough to let me sleep through the night.
If you haven't tried them yet it might be worth asking your Doctor.

Full disclosure I stopped taking them as I did not like the side effect, feeling hungover the next day for a few hours in the mornings. I just don't like feeling hungover.

A couple of tips that help to lessen the pain on those evening you I cant get to sleep.
Get up and move around this helps blood flow to the legs and lessens the pain in my feet.
Get a couple of hours sleep in an arm chair instead of bed. Feet on the floor not raised, again this is to increase blood flow to the legs.

There are a few articles on the internet about the benefits of exercise in lessening the effects of neuropathy, what little I have gleamed from them is they are promoting increased circulation. :bookworm:
Have you tried using an Electrical Muscle Stimulation (EMS) foot massager. I even use magnetic handwarmers, round ones to curl my toes around, to in crease circulation which helps lessen the pain.

A common side effect of my neuropathy is the feeling of ants itching or crawling over my hands the magnetic hand warmers help me so much that it takes that sensation away almost immediately. Heat increase circulation.

Sorry your having such a hard time of it just now.
:bag:
Click to expand...
i have been on so many different tablets and none of them help ,also tried the EMS doesn't help me unless im using the wrong one it seems like there is nothing they can do to help , my left foot and leg swell up everyday ,im moving around everyday i make sure im going to walks and i also have a exercise bike to use its alot worse if i am under a cover but this is everynight and day im in so much pain with it and have started to give up

just seems like there is nothing anyone can do for this as when i have the diabetic foot check they tell me my pulse is fine and i can feel everything they are doing
 
Hi @Jamietomkinson1990 there are over 400 view on your post but no one seems to be answering I guess like me they don't know exactly what to say, its clear your struggling.

It sounds like you feel your concerns are falling on deaf ears with the diabetic foot check, its horrible when you don't feel listened to. I don't have any advice to give but I can emphasise with your condition and will always be willing to listen when you need to vent.
:bag:
 
It could be that an increased prescription for Pregablin or another medication would help. Likewise maybe 2 different medications together may be more effective as @grantg mentioned. If you haven't already tried that, you could maybe discuss the possibility with your GP.
 
I have neuropathy in my feet, of unknown cause as my diabetes is well controlled, still waiting for my NHS neurology appt. I went to see a private neurologist in the mean time (as NHS appt was an eleven month wait) as I was so uncomfortable at bedtime. It was suggested I went on Pregabalin which didn’t help until I reached 400mg/day 100mg am and 300mg pm, about two hours before bed. I was also taking R alpha lipoic acid before I started Pregabalin, but have stopped that now and I haven’t had any deterioration.

Edit for typo
 
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im currently on 300mg twice a day and they have told me they cannot increase anymore , even that high is not helping im a unstable tyle 1 diabetic and have been since i was 18month old im now 35 i feel like nurses now dont understand and only understand newly diagnosed diabetics
 
Jamietomkinson1990 said:
im currently on 300mg twice a day and they have told me they cannot increase anymore , even that high is not helping im a unstable tyle 1 diabetic and have been since i was 18month old im now 35 i feel like nurses now dont understand and only understand newly diagnosed diabetics
Click to expand...
If I was in your position I would ask for a referral to neurology
 
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