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Dazzern

Newbie
Messages
2
Hi all.... I’m 30 years old and a newly diagnosed type 1 (diagnosed about a month ago) was brought into hospital with quite bad DKA.
Since then I’ve had pretty good blood sugar control, the odd high and low readings from too little/ much novo rapid while I get used to it all.

I guess I’m looking for advice, when I started on novo rapid and lantus I started to feel so much better but have started having a few issues,
1 - I’ve been struggling with like cloudy vision and sensitivity to light since diagnosis.
2 - I’ve been waking up in the middle of the night regularly dripping in sweat but my B.S. reading are normal to high
3 - and lastly I’ve been really struggling to sleep lately because of tingling/ aching type feeling in my feet, sorry if this doesn’t make sense hard to describe it just makes me so uncomfortable when I lie down to sleep.
 
Dazzern said:
Hi all.... I’m 30 years old and a newly diagnosed type 1 (diagnosed about a month ago) was brought into hospital with quite bad DKA.
Since then I’ve had pretty good blood sugar control, the odd high and low readings from too little/ much novo rapid while I get used to it all.

I guess I’m looking for advice, when I started on novo rapid and lantus I started to feel so much better but have started having a few issues,
1 - I’ve been struggling with like cloudy vision and sensitivity to light since diagnosis.
2 - I’ve been waking up in the middle of the night regularly dripping in sweat but my B.S. reading are normal to high
3 - and lastly I’ve been really struggling to sleep lately because of tingling/ aching type feeling in my feet, sorry if this doesn’t make sense hard to describe it just makes me so uncomfortable when I lie down to sleep.
Click to expand...

Hi Dazzern and welcome to the forums.

Your body has been used to high blood glucose levels for a while and often doesn't like the adjustment back to a lower level of 'normal'.

Eyesight will most likely become less fuzzy in week or so.

The night sweats are most likely down to 'false hypo's' - again a symptom of getting used to lower glucose levels even though you're above 4.0mmol.

You may have some nerve damage but as long as it's not severe it will probably go.

Keep on top of these issues though and seek medical advice if no improvement in a couple of weeks.
 
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Knikki said:
1- Cloudy vision? not sure about that one, could be linked to you blood sugars, might be worth a trip to an options to get checked out tell them you T1 and I think (Not 100% certain) you should be able to get a check free of charge. Been T1 myself a long time and not had that issue.
Click to expand...

@Dazzern Just bear in mind that it's common for vision to be off while blood sugars are gradually normalised - don't buy new glasses now (unless you really have to) because the prescription will likely change once your body has got used to the new levels.

But talk to your medical team about it all, if only for reassurance.

Good luck, things should improve once your body gets used to having normal blood sugars again.
 
Dazzern said:
Hi all.... I’m 30 years old and a newly diagnosed type 1 (diagnosed about a month ago) was brought into hospital with quite bad DKA.
Since then I’ve had pretty good blood sugar control, the odd high and low readings from too little/ much novo rapid while I get used to it all.

I guess I’m looking for advice, when I started on novo rapid and lantus I started to feel so much better but have started having a few issues,
1 - I’ve been struggling with like cloudy vision and sensitivity to light since diagnosis.
2 - I’ve been waking up in the middle of the night regularly dripping in sweat but my B.S. reading are normal to high
3 - and lastly I’ve been really struggling to sleep lately because of tingling/ aching type feeling in my feet, sorry if this doesn’t make sense hard to describe it just makes me so uncomfortable when I lie down to sleep.
Click to expand...

Hi @Dazzern ,

Warm welcome to the forum.

I also do Lantus & novorapid for the past few years.

OK so let's looks at what's going on.

1. Could be the eyes normalising as BG come down an adjust to the new normal? However, oncoming lows with no Acrapid on board with Lantus can be a slow creeper. Some of my own symptoms of a low is light sensitivity, shimmering lower feild of vision, & dancing LED style lights flashing. There can also be a "colour blindness" where the vivid turn pastel shade.

2. I agree with @Knikki on this one. (Thanks for da tag.)
Sounds like a hypo. I'm not sure what time you inject your Lantus, @Dazzern . But if it's like me, around 11pm? Night danger zones for dropping if they occur would be around 2/3 or 5/6am?

3. Not sure about this one. Have you been more active recently since your diagnosis? Possibly a different job role on the feet & or undertaken an excersise regime? Changing how & what muscles are used can cause a little buzz at the beginning. It can nag more as one gets older. ;)

Either way, I'd advise logging every issue (time & date.) along with your BGs, meals & dosage times too.
It's quite possible you could be in the "honeymoon" phase, where your pancreas is still causing trouble before it gives up completely.
Take this data to your diabetic team, which will help them to help you.

Kind regards,

J>
 
Thanks for all the great advice and help. I’ve a feeling I’m going to use this blog a lot it’s a great source of info.
I’m due to see the diabetic team next week so I have a list made

Kinda worried about the potential hypo’s tho. @Jaylee your right with the timing of the lantus between 10-11 pm I usually take it.

The awkward thing is I do shift work and am on my feet for most of the shift so maybe that’s part of my problem too.
 
Hi
Im a newbie too. Diagnosed recently after an awful DKA
My vision was blurry by the time i was diagnosed. 6 weeks later and now getting better. Still not perfect bit a lot better.
My Gp, nurse and consultanr said ots normal and to wait for it to sort itself out, they advised me not to go to the optition.
 
@Dazzern . Welcome to the forum.
I would agree with everything that has been said so far.
It’s worth remembering that your body has been struggling/ failing due to your pancreas deciding to retire for maybe 6 months give or take. A very gradual process which can go unnoticed at first. Then all of a sudden we get diagnosed and along comes this life saving drug. It’s there and it’s working within 24 hrs. That’s a big change in a short space of time, your body will adapt/ evolve/ normalise in time. 3 months you’ll probably be feeling a lot more comfortable with everything.
One thing I will say is. Shift work, especially if you are working different hours each work can make control far more taxing. Regularity makes control easier. I used to work permanent nights 4 days a week and it took a lot of extra input to get everything balanced from work days to non work days.
Not sure if you are having to wear safety footwear ( I suspect you may be ) then it’s imperative you obtain good quality well fitting shoes/ boots/ trainers. Your employer should accommodate you on this. There’s no reason why you can’t self source footwear and get your employer to cover the costs. Just be aware you will need to ensure whatever you purchase will need to meet safety standards required by your employer.
Keep posting with us, good luck.
 
Dazzern said:
Hi all.... I’m 30 years old and a newly diagnosed type 1 (diagnosed about a month ago) was brought into hospital with quite bad DKA.
Since then I’ve had pretty good blood sugar control, the odd high and low readings from too little/ much novo rapid while I get used to it all.

I guess I’m looking for advice, when I started on novo rapid and lantus I started to feel so much better but have started having a few issues,
1 - I’ve been struggling with like cloudy vision and sensitivity to light since diagnosis.
2 - I’ve been waking up in the middle of the night regularly dripping in sweat but my B.S. reading are normal to high
3 - and lastly I’ve been really struggling to sleep lately because of tingling/ aching type feeling in my feet, sorry if this doesn’t make sense hard to describe it just makes me so uncomfortable when I lie down to sleep.
Click to expand...

Hi @Dazzern and welcome to the forum, even though you probably wish you weren't here and thank you for the tag @Knikki :).

I sweat a lot at night too, but not newly diagnosed, I also don't sleep, but not because of tingling or aching.

I would see if things gradually settle down, if not, then see your GP or speak to your DSN/diabetes team. Sometimes, it may take a little while for the symptoms to subside, after having high BS and DKA, I ended up in hospital too.
I can't think of anything else to add, as you have had some great advice and support so far. Take care, but try not to worry to much, but always be aware of what's going on in your body.
Have a good weekend :)
 
Hi @Dazzern and welcome to the forum
Brilliant info above, as always.....can't really add any more.
Any questions you have, get them on the forum and someone will be along to try and help out......
Keep us updated on what happens :)
 
Hi,
Nothing much to add to the super suggestions above.
Waves anyway...
 
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