New to forum, its been a long time waiting:) Type 1 Diabetic, 20 years old. Hope for some feedback.

Type1John:)

Member
Messages
19
Type of diabetes
Type 1
Hey guys my name is John and ive just joined the forum today. I am 20 years old and have type 1 diabetes and have had for the past 15 years. I use Novomix30 twice a day at 14 units a shot to cover breakfast and tea time, and set an alarm 2 hours before waking up to correct for dawn phenomenon. if im active and my blood sugar is doing as id hope i usually have a snack around 2.5 hours after my both doses to keep sugars from dropping too low. I snack as low carb as i can through the day when peckish and use Novorapid for corrections. My control is a lot better than it ever has been really, i was never brought up very well and my diabetes management was rather a 'hope for the best' situation. Since i had no real knowledge on the risks i didn't really wake up and start taking care of myself until last year. I have recently lost my job which has caused me a bit of hassle with higher blood-sugars as im not as active and dont have a strict routine. My control is anything but good really, i dont really have very frequent hypos although when i do have them they can feel really bad and i have very little hypo awareness, my spikes are always after my meals (breakfast and tea) which is an annoyance but i will go for a walk or inject corrective if necessary to bring it down to normal range. I will everyday spike over 10mmol after meals usually, the morning meal seems to be the hardest to control (even when i was walking to work id still spike). I know i should carb count to see how much carbs i need but dont at the minute. I did for a little period but not for long enough. It seems as though i may have to start doing that though because some meals are ideal for me whereas others send my blood-sugars crazy high. I am very interested in converting to low carb to help have a better balance and predictable glucose levels but am extremely concerned as ive had my condition for a very long time and fear it may make things a lot harder to control. I used to skateboard a lot in my teenage years with no concern for blood-sugars (if i was low id slug half a bottle of lucozade if i was high id inject novorapid - all uncontrolled and very risky) i did this for years and its amazing i am where i am to be honest. I do miss the skateboarding but if i was to do as i used to id have erratic readings and be putting myself at risk, id like to be able to be spontaneous and go skating everyday but cant do that safely with my current regime. If i do go skating ill wait 4 hours after my first morning dose, make sure my level is around 9 - 10 then eat 20g carbs and go for 4 - 5 hours until im ready to eat. Then ill inject less insulin to cover my tea as my insulin sensitivity will be up from the exersise. All still too risky for my liking. Another reason why lowcarb sounds great is that you can exercise regularly with little glucose levels staying steady and predictable. I think my top priority is to keep pushing for a CGM and start carb counting and slowing reducing my carbs. I do.. wait for it... over 30 blood sugar readings a day because of extreme anxiety surrounding my hypo unawareness and generally want to know how my body is acting at all times, im hoping my current application for CGM comes through because its starting to get difficult to deal with. In summary i'd like to start carb counting, reduce my carbs and insulin, eventually if possible go lowcarb, exercise and become more spontaneous and get out of this rut of serious anxiety. I know i can write an essay and i do apologise, expect a million more hehe;) This is my first message but hey why hold back, this is me and im glad to finally be a part of the community. Thank-you those who have read this, any advice, info, greetings, experiences will be such appreciated. Also my blood-sugar at the moment is 7.4:))) 7 hours after my tea so hopefully i should be ok overnight. Much much love, brother of earth John:) <3 Oh and apologies for the lack of paragraphs i just wrote this as i was thinking... I will make a much better attempt next time.
 

BrianInMidlands

Active Member
Messages
28
Type of diabetes
Type 1
Treatment type
Insulin
Hi John
Skimmed through your post and just wanted to say ....you can do it....I've been T1 for 20 years but really don't claim any special knowledge - at the end of the day I know what (usually) works for me. Hopefully you can find a path for you that allows you to continue skateboarding - it's good to do something you love and keeps you active !
Take care
 
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noblehead

Guru
Retired Moderator
Messages
23,618
Type of diabetes
Type 1
Treatment type
Pump
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Disrespectful people
Welcome to the forum John :)

Probably changing to a basal/bolus insulin regime would suit you better as you can be more flexible with your meals, so basically you can adjust your insulin to the carbs in your food, on a carb counting course they do go into how you can adjust your insulin on a basal/bolus insulin regime for exercise and such.

Good luck.
 
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Daibell

Master
Messages
12,674
Type of diabetes
LADA
Treatment type
Insulin
Hi and welcome. I agree with Noblehead. Using NovoRapid with Novomix is quite unusual as the mix will also contain some rapid. If it works for you then fine and there may be a good medical reason, but Basal/Bolus should give you more flexibility and correction doses will be needed less frequently. Also with Basal/Bolus carb-counting is the norm and almost essential if you are to have eating flexibility.
 
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Messages
7
Type of diabetes
Type 1
Treatment type
Insulin
Hi John, welcome to the forum, I'm a newbie here myself. It's a shame you feel that you can't skateboard anymore. I've not done much skateboarding but I spent two years in France snowboarding, now I live in the UK I've switched to wakeboarding and love it :) I try to avoid hypos when boarding either with a high GI 20g carb snack every hour or reducing my previous meal bolus dose by 50% (or a bit of both). Like you, I also started out on Novomix but after a year I switched to Novorapid and Lantus which gives me much so more flexibility with my lifestyle and for exercise in particular. The problem with Novomix is that you cannot adjust your bolus dose (without also also adjusting your basal) so you are stuck with having a fixed number of carbs at fixed times of day. So it's not great for spontaneity. Also when exercising on Novomix the only option to avoid hypos is by regular carb snacking.