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Newby T2

Brian_Rudge_

Newbie
Messages
1
Type of diabetes
Type 2
Hi, my partner newly diagnosed following transplant in Jan this year. All going well until recently when he started feeling unwell, & admitted to hospital with CMV infection. His weekly trips to outpatients picked up on blood sugars raising, however,nothing done until almost a week ago. Hospitalised now for 2wks. We're aware of meds for transplant had potential for becoming diabetic. How long on insulin before his levels start to regulate? I miss the consultants going to see him because of working. Levels currently at 28+.
 
Hi @Brian_Rudge_ :)

Let me tag @daisy1 who has some basic information.

Sorry your partner's being so unwell. I would guess they're proceeding cautiously with the insulin and aiming to get his levels down gradually, adjusting as needed. It's not always easy to,stabilise people's blood sugar levels, particularly if they have other health issues or are on lots of medication.

If you miss the consultants, can you speak to someone else on the ward to get an update?
 
Hi, my partner newly diagnosed following transplant in Jan this year. All going well until recently when he started feeling unwell, & admitted to hospital with CMV infection. His weekly trips to outpatients picked up on blood sugars raising, however,nothing done until almost a week ago. Hospitalised now for 2wks. We're aware of meds for transplant had potential for becoming diabetic. How long on insulin before his levels start to regulate? I miss the consultants going to see him because of working. Levels currently at 28+.

Hi Brian. I was diagnosed Type 2 in April 2015, two months after a kidney transplant. i had been warned that the steroid I was on (prednisolone) may increase blood sugars and develop into Type 2, and, probably like your partner, I figured it was a no-brainer and that it was worth the risk (better diabetes than dialysis).

I was diagnosed when I was in for a biopsy (due to increased creatinine levels - which went down again soon enough). My level then was 21mmols, and probably hitting above that at different points in the day. It had regularly been an average of 4.5mmols prior to transplant. Had I not been tested, however, I would not have known anything as I felt quite well.

Most likely, your partner feeling terrible is solely down to his CMV infection, and I am assuming that that is why he has been hospitalized (maybe until the infection is under control..can take a few weeks sometimes... My donor kidney had a trace of it but, a year and a bit on, I seem to have escaped it). I was not place din insulin, but on Gliclazide (as metformin is not usually given to renal transplant recipients). It took a few days for my level to drop down to the low teens. Only, however, when I cut my carbohydrate intake down did my levels become manageable and dropped into the high end of the normal range. The doctors will gradually cut down any steroid he is on. I pushed to have mine cut right down to a small dose. I came off the Gliclazide to see if my levels were low without it, down solely to reduced carbs..and so I then ditched them and have been controlling my levels solely through diet - really well achievable.

The level will come down, but, for Type 2s, keeping it down in healthy areas is very much you focus on diet. The most important things to remember when he comes out - self test with a meter (buy one if you have to), research low carb diets, note what food he eats and the levels before and a couple of hours after - and you will notice, as I did, the highest reading will be a couple of hours after he has taken his steroids.

Was it a kidney or liver transplant. CMV is more common in liver transplants and normally managed by a very expensive drug called Valganciclovir (for a few weeks, maybe months). If you partner takes an anti-rejection drug called MMF, ask about staggering the times he takes it. Try not to be too worried. Once it comes down, blood sugar is definitely manageable if you reduce carbs. He'll be out soon enough. Let us know how it goes. Paul
 
@Brian_Rudge_

Hello and welcome to the forum :) Here is the information we give to new members and I hope you will find it helpful. Ask as many questions as you need to to help your partner and someone will come along and help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

LOW CARB PROGRAM:
http://www.diabetes.co.uk/low carb program


Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
@Brian_Rudge_ welcome to the forum. Im sure with time they will get his BS down to lower levels.

@Primula it would.pay to get a meter to test his levels as by the sound of it his BS may still be on the high side and without a meter it is impossible to know if you are making headway with it all. Its a.good idea to test upon waking, before meals and 2 hours after meals and from there he should be able to build a.picture of what foods affect his BS and those that he can tolerate.
 
@Brian_Rudge_ welcome to the forum. Im sure with time they will get his BS down to lower levels.

@Primula it would.pay to get a meter to test his levels as by the sound of it his BS may still be on the high side and without a meter it is impossible to know if you are making headway with it all. Its a.good idea to test upon waking, before meals and 2 hours after meals and from there he should be able to build a.picture of what foods affect his BS and those that he can tolerate.

Thank you very much Brian.
 
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