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Newly diagnosed 21 month old daughter <3

Emmadiamummy

Emmadiamummy

Newbie
Messages
3
Type of diabetes
Type 1
Treatment type
I do not have diabetes
Hello everyone.

My name is Emma and my beautiful little girl Darcy was diagnosed with T1 on the 1st of April.

We are now back at home and starting to deal with everything to do with her condition.

She is currently on 4 injections a day (3 novorapid and 1 levemir before bed time) as well as 7 blood tests a day.


My partner has been off work since she was diagnosed but returns to work on Monday and I'm feeling very uncertain of everything. I know I can do her injections and blood tests without help but it seems much scarier having to do it all on my own.

I spend most of my day whist she's awake feeling in control and happy that i'm helping to keep her healthy but in the evenings once she's in bed I do find that i'm getting really upset. I suppose this is normal but just wondering if anyone has any ways that they've found of trying to keep upbeat?

Hope that everyone is having a good day today.

Love from Me and Darcy x
 
It is a big shock and how you are feeling is quite understandable. If you are on Facebook there are some great groups where help is on hand from many other parents of T1's.

Parents of children with diabetes in the uk
CWD (children with diabetes)
The Insulin Gang
What mums and dads with type 1 children need to know

To name but a few, all fab with 24 hour support - as we never get a full nights sleep!!

My son was diagnosed in May and I still have down days, it is a grief process and you need to allow yourself time to grieve for your life before T1 came to call.

Just think how far you have come already - you are doing fab! It is a club no one wants to join, but our kids are our heroes and they need us to be strong for them x
 
Some of this will be sheffing relief for your child who has a lot to contend with, but the parents do take on the angst hugely as they feel that an injection hurts, have I done it right, does it hurt etc....

New parents make sure you claim DLA or whatever its called nowadays (PIP??). Your DSN's should have advised you on this.

It is a grieving process from what is effectively a normal life to one that needs injections and testing....But this is natural for child and parent.

You'll be fine, although it **** difficult at times!!!
 
Thank you everyone :)

We haven't looked into DLA yet. I didn't realise we'd be eligible?

We've had a good two days with decent readings and we've been out of the house to a shopping centre and to my mums for Easter today. Trying to keep things relatively normal and just add the injections etc into what we're doing. It's working as she seems less bothered by her jabs when we are out of the house which is nice :)

Hope you all had a lovely easter :)
 
You have to ensure injections n tests etc are done to ensure your child has a good future. So make sure you claim. You will have sleepless nights and calls from schools etc... So take wvery penny and claim whilst you can....
 
Emma this post made me well up, although we have been chatting for a few days I just wanted to say (I know) I to feel the same at nights after spending all day being strong! It's normal I think to be able to move on, we have so much to process. Hope today went well with partner at work xxx
 
Hi Emma
bless you , your little girl Darcy and your partner. ( made me well up as well )
you have had a tremendous change in all your lives the last few days and have a lot to cope with.
just be safe in the knowledge that you can deal with this and there are lots of us here that want to help in any way we can , so ask away with any questions.

it is tough at first worrying at night because you will think you don't have complete control but over time this will lessen with more nights under your belt -- the important thing to do is try in the early days to get a routine established and try to stick to this.
change can be introduced as time goes by but regular testing , injections , meal times , snacks etc will help build the confidence.
 
Thank you so much all of you lovely people. We are now one week and one day past diagnosis. I'm feeling so much better.

We have a routine now and it's working well for us. Darcy is a trooper. She holds her meter whilst I do her tests etc and cheers when I tell her it's all done.

I'm a very proud mummy :) I've got the forms for her dla now... But they look very intimidating. So many pages :o
 
Morning, just wanted to send you a big ((((((((HUG)))))))) to you and Darcy. You could ask Darcy's ( beautiful name btw) DSN, or get in touch with CAB or go on line as I'm sure there will be information about filling in the form. My granddaughter was diagnosed at 2 1/2 years and it was very, very upsetting and worrying, but kids are tough little cookies and I'm sure she will flourish and have a happy and a rewarding childhood.

Good luck and all the best for the future,

RRB x :)
 
Glad you have the DLA forms. Yes, they are long winded. Important things is that you have to get up during the night to test and to be able to establish long term good health but constant monitoring and preparation of food and hospital visits/phone call etc.
Don't under estimate the care and attention that is necessary.

My neighbours children like to guestimate my blood levels and work out the difference to the bg of 6.0 that I should have.
It is amazing at the ages of 6 and 8 that they know whether I should eat or inject etc.

Juds are very adapatable. Uts the adults that take the strain initially..
 
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