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Newly Diagnosed LADA

Messages
2
Location
Gold Coast, Australia
Type of diabetes
LADA
Treatment type
Tablets (oral)
Hi everyone,

My name is Justine and I am a 44 year old Mum of 2 from Australia. One month ago I was formally diagnosed with LADA after the GP did the GAD test. My daughter is now 15 and was diagnosed with Type 1 at the age of 7.

At the moment my HBA1C is 7 and my GP has put me on 1000mg of slow release Metformin. This seemed to make a slight dent on my numbers but I think it's already lost it's momentum.

I am a personal trainer, I trained 6 days per week and am lean, healthy and fit. What I am just getting my head around is that I can't 'out-train' or 'out-diet' this illness. My post prandial spikes can get into 11's if I eat high GI and my morning BSL's sit between 7-9.

It's ironic that I coached my daughter for years on how to live a full life with diabetes yet I am struggling to get my head around it.

I see the endo in September and I am thinking that with numbers like this they may introduce insulin relatively quickly.

Just wanted to say hi and connect with others with this. It seems like we are a difficult bunch to manage as there is no defined course LADA takes.

Justine :)
 
Hi everyone,

My name is Justine and I am a 44 year old Mum of 2 from Australia. One month ago I was formally diagnosed with LADA after the GP did the GAD test. My daughter is now 15 and was diagnosed with Type 1 at the age of 7.

At the moment my HBA1C is 7 and my GP has put me on 1000mg of slow release Metformin. This seemed to make a slight dent on my numbers but I think it's already lost it's momentum.

I am a personal trainer, I trained 6 days per week and am lean, healthy and fit. What I am just getting my head around is that I can't 'out-train' or 'out-diet' this illness. My post prandial spikes can get into 11's if I eat high GI and my morning BSL's sit between 7-9.

It's ironic that I coached my daughter for years on how to live a full life with diabetes yet I am struggling to get my head around it.

I see the endo in September and I am thinking that with numbers like this they may introduce insulin relatively quickly.

Just wanted to say hi and connect with others with this. It seems like we are a difficult bunch to manage as there is no defined course LADA takes.

Justine :)
LADAs usually end up on insulin, after a period varying from a few months to a few years.
My endogenous insulin production fell off a cliff after 4 1/2 years and my HbA1c went from 6.2 to 11.6 within months. Those last few months before going on to insulin, I felt awful and the insulin gave me almost instant relief, although the blood sugar levels took a few weeks to normalise.
I'm guessing you'll be monitoring your blood, so you should pick up any drastic change in levels. That will be the time for insulin. I wasn't monitoring mine because I was supposedly T2 diet-controlled, and was putting my awful symptoms down to something else ! I put off going to my GP, and how I avoided DKA I don't know !
Geoff
 
@Justine_Whitchurch

Hello Justine and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful to you. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 245,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hi @Justine_Whitchurch .. and welcome
You have made a good move coming here. Since joining this forum, the folks here have given me so much info, advice and support that I am now much more confident about the journey ahead. So ask your questions and be assured that you will receive the answers that you need. It can all seem uphill to start with but, in my experience, it gets easier .. very quickly.

The key point to take on board is that managing and controlling your diabetes (or pre-diabetes) through exercise, diet and testing your Blood Glucose seems to be the best way forward for many people. For me, committing to an LCHF (Low Carb High Fat) lifestyle and testing 3-5 times a day seems to be working. I guess that you already have your test meter in place .. and you'll find that there is a wealth of info, relevant advice and positive support about LCHF on the forum ..

I see that you have already received your welcome from @ daisy1 and I suggest that you read up on the Low Carb Program in the information that she has sent you. You might also find the discussion on the Low Carb Diet forum helpful .. and the following Diet Doctor websites ...
Low Carb Intro and Information
Low Carbs in 60 Seconds

Hope this helps
 
Hi. Metformin won't do any harm and the benefits will be minimal. If your HBa1C is above where it should be then do ask for more meds. Gliclazide may help for a while but insulin will eventually be needed and it's better to start earlier rather than stay on Gliclazide for too long as I did. Although Gliclazide is not recommended for T1s, that assumes you have no beta cells left. You appear to be in the honeymoon period and you need to discuss with the doc going straight onto low shots of insulin or using Gliclazide tablets for a while and then insulin.
 
Welcome @Justine_Whitchurch :)

Although your fitness won't cure your Type 1/LADA, it will stand you in good stead :)

I agree with Daibell. If I had numbers like that, I'd be asking about introducing small doses of insulin. Early introduction of insulin can preserve your remaining beta cells longer studies suggest.
 
Hi there
LADA here now 7 years on since I got put on insulin. I am having a very long honeymoon...

You really will need to go on insulin with post meal readings like yours.

I was getting those and I never even got put on Metformin (although few years later to combat insulin resistance I was getting). Really dont get why some docs put adults with type 1 diabetes at the start as the only medicine on it to be honest and Gliclazide is nonsensical. Metaformin may help short while and you will, if not already, be feeling more fatigued due to your higher blood sugars.

I was fit and loved running pre diagnosis but getting back into it after diagnosis was a challenge as my diabetes progressed (plus I have other unrelated health probs and had 2 operations).

Nonetheless I am actually fitter and stronger now. I am currently finding running does things to my blood sugars that a Spin class doesn't. All part of the ongoing experiment!

I know some folk have specific diets however you'll know yourself what and when as you get to learn your own needs and goals.

My body needs change throughout the month so sometimes I am very sensitive to insulin other times very resistent.

As you're a female fitness instructor I'll be asking you for advice!
 
Hello @Justine_Whitchurch:)

Getting to grips with any diagnosis is tough, T1 - or any subtype - is hard to get your head around. But you'll get there, and should you need the help of the wonderful members here, they'll be happy to assist:)

You have the advantage that you'll already have a solid grasp on managing the condition on behalf of your daughter. Also, given your job, you'll be in a great state of fitness and have a good understanding of diet which really is half the battle.

We look forward to seeing you around.

Good luck and a very warm welcome.
 
Hi, I undoubtedly had LADA when I was diagnosed at age 52, in France. (so presumably far older than you) I know from self testing I had diabetes three years before that. My point tested glucose levels at diagnosis were very high and I had symptoms of DKA, rapid breathing etc but my HbA1c wasn't that high. I was hospitalised, put immediately onto insulin (long acting and rapid for meals) They tested for antibodies and continued this treatment .(diagnosis officially T1) The insulin regime was successful in lowering levels but I couldn't do any exercise without going low. (exercise for me means long hilly walks and training just to complete , not compete in a marathon)
The lows led to me being prescribed a pump which helped though didn't absolutely get rid of the problem. It's only now, thirteen years later that I don't find exercise so problematic but I have learned to forestall it.. The good thing is that for the whole time I have never had an HBA1c over 6%.
I am glad I didn't have to struggle with oral medications that wouldn't act to reduce levels or could not be adjusted according to my exercise levels at the time

If I were you I would discuss using insulin rather than oral medications
 
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