I've just been diagnosed as T1D. Felt thirsty a lot over Christmas so went to the GP. HbA1c of 97 confirmed at the end of Jan. There were concerns I had pancreatic cancer so I was on that stream and didn't get any support with my very high blood sugar until I pushed the GP for some. Saw the diabetes team on 12/02 and given insulin pens and a meter. Tested at home that evening and blood sugar was higher than the meter could read with ketones of 3.1 so off to A&E I went with ?DKA. Ended up in Resus for 14 hours while they took loads of bloods and finger pricks to get everything roughly back to normal. Another 4 days in hospital and then off home with all the kit. 55 units of long acting in the morning with 4 units of fast acting if over 10 before meals and 15 at any time. It's taken a bit of getting used to. I was expecting T2D when I went to the GP given I'm slightly chunky and in my mid-50s so T1D was a real surprise. Cancer has been ruled out now which is great. Just have an atrophied pancreas. Loving the CGM sensor but still getting used to when they differ a lot from the meter.
Newly Diagnosed T1D
- Thread starter Dave Metric
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Hi @Dave Metric and welcome to the forums from a fellow T1. Unfortunately though many people get T1 when older (remember Theresa May?) a lot of GPs still assume it's a young person's illness. I'm a bit shocked that the diabetes team sent you home without you testing your bgs there, because I would guess that you were already developing DKA when you went there.
Very glad that cancer has been ruled out and hope that you get on top of it all soon. Cgms are wonderful things but they do have their limitations.
Once more, welcome.
Very glad that cancer has been ruled out and hope that you get on top of it all soon. Cgms are wonderful things but they do have their limitations.
Once more, welcome.
Thanks, @EllieM . The team were pretty good to be honest. Took BG and ketones and decided I was ok to go home and gave me really good guidelines about when to go to A&E which I think kept me from real harm. A&E were good too as I was in Resus within 15 minutes of coming through the door.
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I don't really want to add to the confusion, but if you have an atrophied pancreas this sounds more like T3C than T1, T1 is autoimmune and doesn't cause damage to the pancreas (except for the insulin producing cells).
Treatment is much the same so all information on T1 is still relevant, but with T3C you may need digestive enzymes to make up for other parts of your pancreas not working.
In time, you'll learn to adjust your doses to the food (mainly carbs) you eat, but this is a marathon, not a sprint, there is plenty of time to learn.
Start out with enough knowledge to stay out of immediate danger with your current regime, which sounds pretty sensible to me. And then learn more about your personal patterns and finetuning.
Ask away if you have any questions!
I had samples taken for the Fecal Elastase Test to see if that enzyme is still present but haven't had the results yet. I know it takes a while to come back but it's been 6 weeks now. I must work out which consultant to chase as the management is a bit confused. I've got my first 'proper' appointment with the consultant endocrinologist on the 14th April so I'll bring it up then. They've not prescribed creon so far, so who knows.
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I would chase them up on the FET my hubby had the test and he got his results 1 day after the second blood test. He’s not diabetic but has been diagnosed with BAM
