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Newly diagnosed Type 1 and miscarriage

Catherine4188

Well-Known Member
Messages
124
Type of diabetes
Type 1
Hello,

Last week I was diagnosed with type 1 diabetes, at this point I was 8.5 weeks pregnant and had symptoms from 2 weeks prior to this. I had ignore them thinking not much of the thirst and weight loss, I associated it with being pregnant. My fasting glucose was 12.4 and hb1c was 104. I had an appointment at the hospital to meet the anti natal diabetic team but started to bleed that same morning. We had a scan and were told although I was 8.5 weeks along the baby had only developed to 6 weeks and to expect a miscarriage. The refused to let me leave that day without starting insulin as I had high ketone levels. Within 2 days I miscarried.

I am absolutely devastated and struggling to come to terms with our loss never mind the diabetes diagnosis. I suppose what I want to ask is, are there others out there who have experienced the same issues of overlapping diagnosis and pregnancy? I'm so desperate to try again as soon as my body and mind are ready. What did you need to do to get yourself ready and how quickly did you get your levels under control? The doctor has already given me 5mg of folic acid to start to take as she thinks it should be in my system for months before trying again.

Thanks for any advice or support that you can offer.
 
Hi Catherine, I'm so sorry this has happened to you, the loss of your babe and the diagnosis of diabetes must be a terrible double blow to your system.
There is a fabulous Pregnancy forum on here where you will find lots of lovely friendly folk who will be able to help you through this terrible time.
Give yourself time to recuperate from the loss and assimilate the diabetic news, take care be kind to yourself, @daisy1 will no doubt post her welcoming package.
 
My goodness this is a terrible double whammy for you. I am so very sorry, that you have lost your baby, indeed.
I'm afraid I don't consider myself to have any thing to help for you. @azure is very good with people in your situation, and I'm sure will be along as soon as she can. Again, my sincerest empathy.
 
Sorry for your loss @Catherine4188 . I hope you give yourself a bit of time to recover and to get used to type 1 diabetic management before thinking about conceiving again.

It is possible that undiagnosed diabetes, and therefore uncontrolled diabetes, was a contributory factor to your miscarriage. High blood sugar levels aren't good for developing babies and do cause foetal abnormality and miscarriage.

A lady with type 1 diabetes trying to get pregnant is advised to have a hba1c under 48 before trying to conceive and there are very tight targets for blood sugar during pregnancy. It takes a bit of knowledge of your own diabetes to try and stay within any target at any point, let alone when you've got pregnancy hormones to deal with. So it would be worth getting comfortable with diabetic management, carb counting, adjusting insulin, correction doses etc before pregnancy.
 
Thanks for all the posts. I think every nurse and doctor I've spoken to so far is shocked at how unlucky I have been to have the diagnosis and miscarriage at the same time. It's been a tough week and I know from experience with miscarriage that it is just going to get worse. I'm very lucky to already have a very healthy 2 year old and a wonderful husband and family to support me. However I have been feeling quite alone as it's only me who is going through it in my family. I'm glad I've found these forums to help me feel less alone and give me some support. Thanks all. X
 
I'm so sorry to hear about your miscarriage @Catherine4188 I can't imagine how upsetting it was to have Type 1 diagnosed and then miscarry all around the same time.

My advice is to give yourself a little time to recover physically and mentally, and to get to grips with the diabetes. That will stand you in good stead for future pregnancies. It's great you've got the folic acid already, and yes, it is right that you need to take it for a few months before conceiving and during early pregnancy.

I recommend testing frequently and counting carbs. If you haven't been shown how to do that yet, push politely but firmly to have the basics explained to you. It's crucial for good control.
 
@Catherine4188

Welcome to the Forum. I am so sorry for your loss. To help you to look after the diabetes side of things, here is the basic information we give to new members as mentioned above and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 147,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why :)
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hi Catherine, so sorry for your loss :( :( I know what your going through and its tough but you will get through it.
Your story is near enough exact to mine! Last May, I had miscarriage too. The baby had stopped developing at around 7 weeks and at 9 weeks I miscarriage naturally. I started losing weight rapidly and feeling unwell for a few months, I thought it was all down to the stress of the miscarriage but when I went to the doctors I was told I was in a state of DKA and they were 100% sure I had type 1 diabetes. I was taken to hospital and kept in for a week until I was better and could inject myself. The first thing I asked the doctors was 'when can I get pregnant' I was told it was very dangerous as my blood sugars were still so high and there could again be a high risk of miscarriage. I was devasted but focused that I needed to get my blood sugars down to get pregnant. I fell pregnant again with an HBAC1 59 (roughly 3 months after I was diagnosed) which is slightly higher than they recommend but I am now 16 weeks pregnant with an HBAC1 of 42. Just remember that it will happen again for you again and to stay positive. Loads of diabetic women fall pregnant and go on to have healthy babies, your time will come. xxx :)
 
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