Newly diagnosed

[lowedb]

Do I have to tell my work I am Diabete ?

I wasn't told I had to though I did. Why would you want to withhold it though? It might be better if they know in case something happens while at work.

 

[Alison Campbell]

Do I have to tell my work I am Diabete ?

It depends on what you do for work and how it affects you and your job, whether you have to tell your manager.

It should be kept confidential and may help them understand if you need time off for appointments or ill health.

 

[London_Lady_D]

Just received a letter confirming I have diabetic maculopathy and will be referred. Just send me the appointment. Stressed to the max. I know do not stress out as this will raise everything.

Life is hard when you have to keep waiting.

 

[Dark Horse]

Just received a letter confirming I have diabetic maculopathy and will be referred. Just send me the appointment. Stressed to the max. I know do not stress out as this will raise everything.

Life is hard when you have to keep waiting.

Unless the changes seen are very marked, the referral is likely to be 'routine' which means you should be seen within 3 months or so. A screening result of 'diabetic maculopathy' does not necessarily mean that there are any significant changes - only the ophthalmology appointment will be able to tell you whether you might need treatment. The 3-month waiting period is not a bad thing - people often use the waiting time to work on their diabetic control which can mean that things improve so much that no treatment is needed.

For these reasons, the best approach is to use any worry or anxiety to motivate improvements in diabetic control.

If the maculopathy does turn out to be significant, there are effective treatments available.

 

[London_Lady_D]

Unless the changes seen are very marked, the referral is likely to be 'routine' which means you should be seen within 3 months or so. A screening result of 'diabetic maculopathy' does not necessarily mean that there are any significant changes - only the ophthalmology appointment will be able to tell you whether you might need treatment. The 3-month waiting period is not a bad thing - people often use the waiting time to work on their diabetic control which can mean that things improve so much that no treatment is needed.

For these reasons, the best approach is to use any worry or anxiety to motivate improvements in diabetic control.

If the maculopathy does turn out to be significant, there are effective treatments available.

Unless the changes seen are very marked, the referral is likely to be 'routine' which means you should be seen within 3 months or so. A screening result of 'diabetic maculopathy' does not necessarily mean that there are any significant changes - only the ophthalmology appointment will be able to tell you whether you might need treatment. The 3-month waiting period is not a bad thing - people often use the waiting time to work on their diabetic control which can mean that things improve so much that no treatment is needed.

For these reasons, the best approach is to use any worry or anxiety to motivate improvements in diabetic control.

If the maculopathy does turn out to be significant, there are effective treatments available.

I have had issues with my eyes since birth. I have had corrective surgery up until I was 14. My right eye where she said there was a problem is very week and I have always had worries about it. I can deal with knowing as you said there are options. I might ask my doctor to refer me to Moorefieds as a private patient just to put my mind at ease and to set a base line

 

[Tony337]

Hello again
Maculopathy is a different animal to retinopathy.

Maculopathy is a build up of fluid behind the eye.
Retinopathy is blood spillage.

I can only comment on what information you have posted and if you need macular laser then this is less serious than the other form of laser for retinopathy.

Maculopathy laser is also known as grid laser which means they zap the laser grid-like across your eye or eyes and because its zapping liquid thinner than blood its not as strong a laser as needed with retinopathy.

Gosh i hope i'm making sense and would hate to bore you or scare you as that is not my intention at all.

Kindest regards

Tony

 

[London_Lady_D]

Hello again
Maculopathy is a different animal to retinopathy.

Maculopathy is a build up of fluid behind the eye.
Retinopathy is blood spillage.

I can only comment on what information you have posted and if you need macular laser then this is less serious than the other form of laser for retinopathy.

Maculopathy laser is also known as grid laser which means they zap the laser grid-like across your eye or eyes and because its zapping liquid thinner than blood its not as strong a laser as needed with retinopathy.

Gosh i hope i'm making sense and would hate to bore you or scare you as that is not my intention at all.

Kindest regards

Tony

Hi tony
the letter says Maculopathy I am going today to speak to my Doctor about a referral to Moorefield to known one way or another as the stress is killing me. I am prepare to go private if I have to .

thanks

D

 

[Tony337]

Hi Lady d
I do hope i'm not making your worries worse?
As i've previously said i've had treatment on my eyes and it was successful.
This was twenty years ago and treatment and understanding have improved greatly since then.

Have faith in the NHS but i know thats easy for me to say.

Tony

 

[London_Lady_D]

Hi Tony

No you have not made it worst in fact you have helped , it is just me, had I not had any issues with my eyes before now, I do not think I would be so worried. it is good to know your experience turned out great, I am sure I am over panicking, but this is me, when I do not have all the facts my usual go to place is the worse case.

thanks again for your advise

D

 

[Dark Horse]

Hello again
Maculopathy is a different animal to retinopathy.

Maculopathy is a build up of fluid behind the eye.
Retinopathy is blood spillage.

I can only comment on what information you have posted and if you need macular laser then this is less serious than the other form of laser for retinopathy.

Maculopathy laser is also known as grid laser which means they zap the laser grid-like across your eye or eyes and because its zapping liquid thinner than blood its not as strong a laser as needed with retinopathy.

Gosh i hope i'm making sense and would hate to bore you or scare you as that is not my intention at all.

Kindest regards

Tony

Actually, maculopathy is retinopathy which occurs in the macula, the part of the retina that is used when looking directly at an object. Some types of maculopathy suggest that there might be fluid build up at the macula but it is impossible to tell this from a photograph so someone with this type of maculopathy is referred to ophthalmology for further tests. Hence this type of maculopathy is known as 'referrable diabetic maculopathy'.

If the tests at the eye clinic show that there is fluid build-up at the macula that needs treating, this is known as clinically significant macular oedema (CSMO). Another term that may be used is diabetic macular oedema (DMO). Quite often, someone may have 'referrable maculopathy' but without any significant fluid build-up so they would not need treatment.

 

[Dark Horse]

Hi tony
the letter says Maculopathy I am going today to speak to my Doctor about a referral to Moorefield to known one way or another as the stress is killing me. I am prepare to go private if I have to .

thanks

D

When you speak to your doctor, you can ask them to contact the screening programme (or you can probably do this yourself) to ask exactly what they saw to give you a diabetic maculopathy referral. One of the criteria for referral is if someone has a microaneurysm or haemorrhage close to the fovea coupled with a reduced visual acuity (the line you can read on the eye chart). It is possible that you might be being referred for this reason, as a precaution, because it is a first screening and the screening programme don't know how much your visual acuity was affected by your previous problems. Knowing this might help ease your anxiety. There are other changes, however, such as macular exudates, which require referral no matter what the visual acuity.

As @Tony337 says, if you do need treatment, the macular laser is more 'gentle' than that used to treat proliferative retinopathy. Injections may also be offered. Sometimes, it is better to monitor frequently rather than treat straight away in the hope that it will improve without treatment.

 

[Tony337]

Actually, maculopathy is retinopathy which occurs in the macula, the part of the retina that is used when looking directly at an object. Some types of maculopathy suggest that there might be fluid build up at the macula but it is impossible to tell this from a photograph so someone with this type of maculopathy is referred to ophthalmology for further tests. Hence this type of maculopathy is known as 'referrable diabetic maculopathy'.

If the tests at the eye clinic show that there is fluid build-up at the macula that needs treating, this is known as clinically significant macular oedema (CSMO). Another term that may be used is diabetic macular oedema (DMO). Quite often, someone may have 'referrable maculopathy' but without any significant fluid build-up so they would not need treatment.

I stand corrected and I do apologise.

Tony

 

[Dark Horse]

I stand corrected and I do apologise.

Tony

No problem - it is very confusing!

 

[London_Lady_D]

Hi

I have booked an appointment with a specialist at moorefilds on Thursday. My doctor is away and impossible to see another one. Good idea to try and get more information about the pictures taken

 

[London_Lady_D]

Hi every one

Not posted for a while as I was trying to process everything and I have been through quite a bit to get some answers

Firstly my eyes not an issue but I need to be monitored no leakage or damage.
Secondly my hba1c has gone down from 105 to 55 waiting for the next result. I do not think it has gone down as I have not lost ant weight for a month

Dropped 2 dress size

My weight has gone down been on diet doctor diet. Had the cold from held in June. Not back on track again

My question if anyone can help is I have up my exercise and my daily carb allowance is between 25-35g. I have not lost a single pound for a month. I am not cheating at all. I did do a 6 week keto start but I could not keep it up. Can anyone shed some light? I have tried a bit of fasting to see if I could quick start the weight lost but nothing has gone down. I would really like to loose an other stone to get my numbers down.

I have lowers my fat as a weird thing happen to me when my weight goes down my Cholesterol goes up, I am following low carb med diet with out the pulse ,rice, just having salad,fish and veg with some meat

Help or suggestions would be great. Really do not want to go on medication

D

 

[London_Lady_D]

Hi every one

Not posted for a while as I was trying to process everything and I have been through quite a bit to get some answers

Firstly my eyes not an issue but I need to be monitored no leakage or damage.
Secondly my hba1c has gone down from 105 to 55 waiting for the next result. I do not think it has gone down as I have not lost ant weight for a month

Dropped 2 dress size

My weight has gone down been on diet doctor diet. Had the cold from held in June. Not back on track again

My question if anyone can help is I have up my exercise and my daily carb allowance is between 25-35g. I have not lost a single pound for a month. I am not cheating at all. I did do a 6 week keto start but I could not keep it up. Can anyone shed some light? I have tried a bit of fasting to see if I could quick start the weight lost but nothing has gone down. I would really like to loose an other stone to get my numbers down.

I have lowers my fat as a weird thing happen to me when my weight goes down my Cholesterol goes up, I am following low carb med diet with out the pulse ,rice, just having salad,fish and veg with some meat

Help or suggestions would be great. Really do not want to go on medication

D

 

[Resurgam]

Yes - when you mobilise fat stores you need more cholesterol to carry it about - that is perfectly proper and right. It is like molecule sized tow trucks trundling along with blobs of fat to be broken down. There is no need to be concerned about having the larger sized towing fleet. Once you no longer need them your cholesterol levels should drop.

 

[London_Lady_D]

Thanks

Yes - when you mobilise fat stores you need more cholesterol to carry it about - that is perfectly proper and right. It is like molecule sized tow trucks trundling along with blobs of fat to be broken down. There is no need to be concerned about having the larger sized towing fleet. Once you no longer need them your cholesterol levels should drop.