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newly diagnosed

cr70me

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2
My son was diagnosed with diabetes last Thursday so this is all ver new for us. To be honest I feel like I've been hit by an express train.

Thankfully he's taken to the finger prick test and injections really well his problem is definitely more food related. He has a ridiculously sweet tooth and previously was always grazing and now I'm stuck! Our diabetic nurse has got me keeping a food diary which is fine but it's constantly trying to find different snacks???

Any advice would be welcome
 
hi - first of all he should be seeing a dietitian - if he is a child a specilaist paediatric diabetes dietitian - kids have very different needs to adults and are still growing.

keeping the food diary is a good idea and try to write down what he used to eat too - if he hasnt seen a dietitian phone the nurse this morning and ask to see one asap.

kids are often better at this than their parents but you will get thro it .
 
Sorry to hear that. It is devastating to know you've got a disease for life, & especially when its your child. We talk about "sweet tooth" but is it a real craving, or is there a "boredom factor?" We snack because its easy, & social, like smoking used to be.

Changes to diet are forced on us. It will be beneficial to all the family to adopt the same diet. I used to eat significant quantities of biscuits. Now I keep a Quality Street tin full of nuts. Fruit - NOT fruit juices - is also a good idea. You can make desserts from gelatine, custard powder, etc, sweetened with saccharin or other non-sugar sweeteners - NOT fruit sugar.

My daughter-in-law kindly provides me with a "diabetic" Christmas package each year - diabetic chocolate, jam, jelly. etc. These take a very long time to eat, as the diabetic sweeteners are effective laxatives & all carbohydrate ingredients are digested to blood sugar. I wish she wouldn't, but I wouldn't offend such kindly thoughts & actions. Diabetic foods are not recommended by any diabetics.
 
hi i was diagnosed on monday as having type 2 diabetis.I have loads of questions im dreading the diabetic clinic i eat a health diet anyway so what stuff they going to tell me to stop eating :|
Also do i have to do a blood sugar count every day? cause i am terrible with blood however small a drop i faint.Will the diabetic clinic send me an appt or should i of done that? i knw it could b worse but this id defo the end of my life as i knw it and i knw im not going to cope with this atall.:(
 
Thanks for all the advice. The diabetic nurse did say something about a dietician but I have been bombarded with so much information of late I'm not quite sure when/where. At the moment I'm making phonecalls at teatime to find out my son's next insulin dose so when she phones back I will ask.

My Godson is also diabetic and the nurse said to speak to his mum as she lives with it everyday and knows more about what to eat/avoid. Although I'm finding that info is conflicting too nurse says a flapjack is ok or quaker oat cereal bar no just the computer but my friend says "no!" too. I'm sure it will all slip into place eventually but at the moment it's a living nightmare!!

IanD I've been warned about the 'diabetic' lines available lol I bet you dread Christmas?

Shazl1 you'll probably find the thing that will do you is the 'hidden sugar' in things. I'm sure if you eat a realtively healthy diet you'll be okay not like my young nibbler here who is constantly grazing!

Thanks again!
 
hi - not sure how old your son is but the first thing u need is the dietitian - so nag them. diet is the key to diabetes and as a dietitian myself I was the first person parents saw when I worked in the paediatric dept. She , I say that as they are mainly!, can help you with carbs and food so you realy need an appt asap. Where in th uk are you. Also alot of kids depts have groups for kids andorganise weekends too help them become independant.
 
Hi shazl 1
You are more likely to be told to eat a high carb diet than anything else. look at the Success story thread and you'll see that most of us don't. Also finger pricking. We T2s here would like to have the equipment to do it daily, but can't get it. You are most likely to be told that it's not necessary. We here think that's a money saving, not a patient health saving policy..
For anything else. Get back to us with any questions you hav e after your clinic visit and we'll attempt to answer them. i suggest you take a notebook and pencil with you, because you'll get information overload.
Good Luck and Good Health to you
Hana
 
hana - if he is a youngster the you need to take into account growth and low carbing is not appropriate - not sure how old - there is so much more to take into account .
 
Stabilisation of blood sugars, avoidance of hypoglycaemia and avoidance of long term complications are also very important. All of these things can be vastly improved by a restricted carb diet. This need not be draconian. Learning how to carb count is very helpful too.

At the moment you will just be trying to keep all the balls in the air. When you are feeling up to it you could undertake a carb counting course online.

Here are the three sites that I think are a good help.

Online courses

comprehensive and covers just about everything.
http://www.dsolve.com

carb counting (menus provide lots of practice at carb counting and are not even attempting a "healthy diet")
http://www.bdec-e-learning.com

blood sugar management. Aimed at pump users but covers all the insulin basics and is very helpful for pen users too. The US blood sugar levels can be converted to UK (Canada and Australia too) by dividing by 18.
https://pumpschool.minimed.com
 
Dear cr70me, how old is your son? My son is 4 and was diagnosed in March. His main snacks are fruit to be honest. You could try a cereal bar but check the labels because some are still quite high in sugar. I normally have the alpen bars. You could also try carrot sticks or peppers and cucumber. A typical day for him would be cereal for breakfast and a pice of fruit mid-morning. Lunch is a sandwich or crackers and he also has peppers, cucumber and tomatoes. He occasionally has a cheese string and also has a frube. He then has fruit after that. He will have a piece of fruit mid afternoon. And then tea time he will have a cooked dinner with fruit after maybe occasionally a small bowl of icecream or choc ice. My son is a fruit addict and does have at least 4 pieces a day. As regards to a sweet tooth there really is nothing you can do to compensate for that as sweets are just really not a good idea. If he is on 4 injections a day you can be more flexible with what he eats because he will be have his bolus injection with meals to compensate for it. It is all so confusing when they are first diagnosed. I am surprised you haven't seen a dietitician as we saw one before we even left hospital. You really do need to chase that up. Hopefully if you have a good diabetes nurse they be able to give you lots of advice. I know it seems so daunting at the moment but you do get your head roung it eventually.

Hope I haven't managed to confuse you even more!!
 
shazl1 said:
hi i was diagnosed on monday as having type 2 diabetis.I have loads of questions im dreading the diabetic clinic i eat a health diet anyway so what stuff they going to tell me to stop eating :|
Also do i have to do a blood sugar count every day? cause i am terrible with blood however small a drop i faint.Will the diabetic clinic send me an appt or should i of done that? i knw it could b worse but this id defo the end of my life as i knw it and i knw im not going to cope with this atall.:(

Hi shazl1

You're me a year ago, and I'm still here :wink: The first thing to remember is that diabetes is a very individual disease: it's different for everyone. As hanadr said, take pen and paper (and someone to hold your hand if you want to) with you to the diabetic clinic.

Everyone's idea of a healthy diet is different - mine is wholefood vegetarian plus lean meat. Talk (and listen) to the dietician, but take what they say as a starting point, not as "this is how it must be". It might be an idea to keep a food diary for a while, making notes of how you feel after different foods. Of course, if you're in the lucky position of having enough testing strips, you can also check which foods raise or lower your blood sugar. There's something about my beef stew recipe, in which I use pearl barley, that almost guarantees a lower than average blood sugar reading the next morning... But one thing I can guarantee you about diabetes and diet: two diabetics, three opinions! :lol:

Testing strips: I don't know whether it's because I live in Wales, or because I have another long-term health issue (HIV), but my GP automatially gives me a pack of fifty strips a month. At first I used to sit in front of the computer monitor with my thumb poised over the "go" button of the finger pricker for long, long minutes at a time. Now I barely think about it. You just get used to it.

Your doctor, if s/he's doing the job properly will already have forwarded your details to the diabetic clinic, so just sit back and wait for "the call". Reminds me - I must make an appointment for my Hba1c test tomorrow. That's the test that averages out what your blood sugar has been like for the past couple of months. You might like to try and get an appointment with a dietician sooner rather than later.

I don't think I'm breaking any confidences if I tell you a little about me and the two other diabetics I know of in our little village (only about a hundred people live here). I'm in my (very - you don't know how important that "very" is!) early fifties, on permanent sick because of the HIV thing. I keep pretty active, partly because I've got two lovely rottweilers who need exercise, and partly because I'm the village's "guy who knows about computers". There's a farmer's wife, a few years younger than me, who's very involved with eisteddfod matters, and when she isn't, she's up to her knees in muck thanks to this weather, sorting out the animals. And then there's a dear, dotty old lady, thin as a rake, who can talk the hind leg off a donkey, who likes to sneak the odd chocolate bar behind the doctor's back. All of us probably older than you, but with different lifestyles and different approaches to diabetes, and we're all managing.

For what it's worth, every week I have an evening when diet gets as far as the window but doesn't quite get out of the window. Twice a week I eat with friends and we take it in turns to cook. I make food that I consider to be good for diabetes, high blood pressure and so on on Sunday nights, and then on Wednesday nights Louise turns out something fabulous that is rarely that different to what I'd make if I had her recipe book. And Louise isn't thinking "diabetes, diabetes, Steve's got diabetes", just "good healthy food".

Stop worrying - and if you can't stop worrying, at least share your wories with us: chances are at least one of us knows precisely what you mean!

take care

Steve
 
thanks every1 for ur advice,Steve i think i am going to adopt u to be my own personal advisor u have made me feel a whole lot better :)
 
In this area, a T2 won't get a call from the diabetic clinic unless things are going VERY BADLY wrong or they are put on insulin. I have been T2 for 5 years and only ever seen my GP and DSN. Luckily both are lovely and I do what I feel is right with their blessing. SSo don't wait for a call, it might be the same in your area.
Whoever you see, the more you learn for yourself the better. Diabetes is definitely a condition to be managed by he patient. I refuse to call it a disease. I am not ill!
 
I am from the US, I hope that it's okay to post on this website. I was diagnosed 2 weeks ago as being pre-diabetic but my fasting bloodwork was 125, my doc said he wasn't going to officially diagnose me in my records because of the insurance, etc. Since he feels I can possibly manage it on my own with diet and exercise, if I want to do that, he wants to keep it as it is. His reasoning is... if my DH ever is laid off, etc and we have to get new insurance or if his current employer changes insurance companies, then I may have a problem getting insurance. The funny thing is... 3 weeks before I was diagnosed DH was also diagnosed at pre-diabetic. He has a family history of it but I do not, NO diabetics that I know of in my family. (is it diabetes by marriage????). As long as the test strips stay within a reasonable amount, I guess we both can just ride it out.

How often do you all test, he suggested in the morning and in the evening, if I remember it. But he said, in the morning for sure to get a fasting glucose.

Thank you for your information. Any information that you can pass on to me, I will appreciate it. I use to think that there weren't many diabetics in the world but the past few years (DH has been pre-diabetic for about 2 years, but the doc hasn't wanted to make a call on it) I've noticed more and more.

Also, do you all notice whether low carb diets help control your diabetes? I'm thinking of doing Atkins or South Beach. I've lost 14 pounds since January (I also have hypothyroidism, high bp, high cholesterol, athma) and I have about 52 more to go. Remember, I'm in the US so that is in pounds. Thank you to all.

To the person that started this thread, I hope that your child gets control of their diabetes. I can't imagine being a parent. I'm 52 in a month from today, so I'm older, so I pray that things work out for you. If I'm confused and upset, I can't imagine how you're feeling. God bless you, sweetie. And your child too.
 
My partner was diagnosed with Type 1 diabetes whilst we were living in France a few years ago, the care and advice they gave him was great although he sometimes doesn't take as much care as he should, I have spent a lot of time researching what foods he can and cannot eat as he is constantly hungry. A few months ago I discovered a product called Z Sweet which is exactly like sugar but has no glycaemic impact, you can use it on cereals or even to bake cakes which when using something like Splenda, tend to turn out disgusting (in my experience). So far I have made cakes and apple pies with Z Sweet and even tested my colleagues, none of them could tell that it was made using artificial sweetener. It also looks and feels exactly like sugar - bonus. The company that makes it is a small family company based in Dublin who have experience of diabetes in their family. The product is not currently being marketed due to marketing costs and the level of finance within the company and the product is more expensive than other sweeteners, however, I think the quality and usefulness of the product far outweighs the cost, it allows my partner to eat sweet treats which he has previously had to avoid, it will just mean a lot more time spent in the kitchen baking. Happy snacking xx

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