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NHS Data grab/GPDPR

Discussion in 'Diabetes Soapbox - Have Your Say' started by urbanracer, May 31, 2021.

  1. Jaylee

    Jaylee Type 1 · Moderator
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    Hmmm, One thought keeps popping into my mind. & I don't do conspiracies either.

    Also gearing up to prospectively cater for an American model health care system?

    Nah, shurely not.
     
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  2. Grant_Vicat

    Grant_Vicat Don't have diabetes · Well-Known Member

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  3. Grant_Vicat

    Grant_Vicat Don't have diabetes · Well-Known Member

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    I hope so! My wife first became alerted via Twitter, and not from any Government posting either.
     
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  4. MrsA2

    MrsA2 Type 2 · Well-Known Member

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    Thank you.that was a much simpler process than any I had tried following from news stories etc. I was beginning to think they were making it difficult on purpose
     
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  5. becca59

    becca59 Type 1 · Well-Known Member

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    Opted out in 2014 when this was first mooted, but not subsequently implemented. Apparently my initial letter is still on file and still counts.
     
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  6. Andydragon

    Andydragon Type 2 · Moderator
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    Well, one form to fill in online and one you have to fill in paperwork wise that they haven’t exactly advertised and originally needed to be in in a matter of weeks

    So… might not use the word difficult but certainly doing something on purpose
     
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  7. MrsA2

    MrsA2 Type 2 · Well-Known Member

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    So where do I get the paper form from?
     
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  8. bulkbiker

    bulkbiker Type 2 · Oracle

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  9. zand

    zand Type 2 · Expert

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    Guys, I am confused. I have read this and the other thread a few times, but my brain just won't retain the info.
    I have printed out the form. So do I have to do this online too, and where? Sorry to be dense, post covid brain strikes again. :arghh:
     
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  10. bulkbiker

    bulkbiker Type 2 · Oracle

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    The online opt out is on this age
    https://digital.nhs.uk/data-and-inf...ice-data-for-planning-and-research#opting-out

    And then click on this bit where it says "national data opt-out" which is the online part.
    Screenshot 2021-06-13 at 08.15.29.png
     
  11. Goonergal

    Goonergal Type 2 · Moderator
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    Quick note. There were two threads on the same topic. One of the thread starters suggested a merge; the other agreed, so now there is one thread - no need for anyone to believe they’ve lost their marbles if they’re looking for one they previously replied to and can’t see it!

    Have changed the thread title to reflect the titles of both threads.
     
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  12. lucylocket61

    lucylocket61 Type 2 · Expert

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    In Wales this is not happening. I believe it is only in England.
     
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  13. bulkbiker

    bulkbiker Type 2 · Oracle

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    Yet?
     
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  14. bulkbiker

    bulkbiker Type 2 · Oracle

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  15. bulkbiker

    bulkbiker Type 2 · Oracle

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  16. Dark Horse

    Dark Horse · Well-Known Member

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  17. Jaylee

    Jaylee Type 1 · Moderator
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    Yep, then there's taking my mum for a CT scan a few years back & the feeling of walking into Virgin records? ;)
    & the documentary "The great NHS heist," too.. As a tenuous reference. Or maybe not? o_O
     
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  18. AndBreathe

    AndBreathe I reversed my Type 2 · Expert
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    We have both completed the Type 1 Opt Out forms, and the action has been recorded on our medical records. I have also "Managed" my sharing rules, on the surgery website, to the state where anyone wanting access to my data has to contact me directly. This can be by text message, with a code.

    Interestingly, I have just become a subject in a very exciting (to me anyway") research study, lasting 5 years, where, as well as benchmarking data, there were bloods taken for inclusion in the UK Biobank, for the study and other research. I have consented to that, but need to do a little more digging into the detail of the Biobank activities.
     
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  19. MrsA2

    MrsA2 Type 2 · Well-Known Member

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    @zand I'm very confused too, and I don't have the post covid excuse either! And I used to be an IT professional but this jargon has me beat
     
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  20. Andydragon

    Andydragon Type 2 · Moderator
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    Opt out type 1 forms need to be completed and delivered to your doctor
    The other one can be done online (relates to hospital and other data I believe)

    Although some doctors are doing the type 1 online

    Anyone would think they are trying to make it harder to do the type 1 opt-out...
     
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