No hypos for over a week

swttbsy5

Well-Known Member
Messages
48
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
I've been stable for a week now. Blood glucose levels are not moving much from 4.0 to 4.8 mostly over the day. I got some ketone strips for my freestyle libre and tested. First test before dinner was 1.1 and then 2 hours after dinner ketone levels were 2.8. I guess I've been in ketosis for over a week now? Maybe longer, since I started the diet. I'm feeling good most of the time. I'm eating I think around 30-50g of carbs per day. Definitely have had the breath/urine keto smell happening. I'm seeing the endo in a week. Interested to see what they say. The best part is, of course - no hypos for a week!
 

Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
Well done! And delighted that you are feeling better. :D

I will be interested to hear what your endo says too. Some of them are... um... reluctant to see the benefits. lol. While others think it is a very good idea, but fail to recommend it because they don't think the patient is willing to make the dietary changes.
 

swttbsy5

Well-Known Member
Messages
48
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Well done! And delighted that you are feeling better. :D

I will be interested to hear what your endo says too. Some of them are... um... reluctant to see the benefits. lol. While others think it is a very good idea, but fail to recommend it because they don't think the patient is willing to make the dietary changes.
Honestly at this point I don't feel like I need any GP/endo/dietician to tell me anything because it is clear to me that this diet has solved the problem. The years of misdiagnosis and failed attempts from one medication to the next. I mean really. It's shocking. It's been really bad for a long time.
 

Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
Honestly at this point I don't feel like I need any GP/endo/dietician to tell me anything because it is clear to me that this diet has solved the problem. The years of misdiagnosis and failed attempts from one medication to the next. I mean really. It's shocking. It's been really bad for a long time.

yes.
I totally agree with you.
And I am REALLY GLAD that you have discovered what works for you.
Keto changed my life. No exaggeration.
 

Lamont D

Oracle
Messages
15,796
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Keto definitely was a game changer for me! My endocrinologist was very reluctant for me to go into ketosis, but when he seen the results from my food diary and my weight loss and symptoms getting so much better, he encouraged my choice as long as it kept working. Which it did!

Well done and keep safe!
 

swttbsy5

Well-Known Member
Messages
48
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Just tested and overnight fasting bgl is 3.4 (seems fine) and ketones are at 1.5. Since this is working so well I'm feeling a mixture of excited and also concerned about if it's safe long term. I guess a general blood test will determine whether I'm getting any deficiencies. I want to make sure I'm getting enough of the right nutrients and I'm not really sure what I'm doing. I have found an app called 'Carb Manager' that tracks nutrients so I'll try that out today. Also a bit worried about losing too much weight as I'm a pretty thin guy already.
 

Lamont D

Oracle
Messages
15,796
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Just tested and overnight fasting bgl is 3.4 (seems fine) and ketones are at 1.5. Since this is working so well I'm feeling a mixture of excited and also concerned about if it's safe long term. I guess a general blood test will determine whether I'm getting any deficiencies. I want to make sure I'm getting enough of the right nutrients and I'm not really sure what I'm doing. I have found an app called 'Carb Manager' that tracks nutrients so I'll try that out today. Also a bit worried about losing too much weight as I'm a pretty thin guy already.

I have been in ketosis since 2013! And I have found that being in ketosis is what my body is happier with.
I would be worried as well about taking a big step like this because of the usual medical dietary advice concerning low GI or complex carbs, but I seem to thrive on it!
If you are losing too much weight, more protein and full fat foods will help, until you have found that balance, the weight will soon level off.
 

Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
I have the free version of Cronometer which is superb at tracking nutrients.
 

swttbsy5

Well-Known Member
Messages
48
Type of diabetes
Reactive hypoglycemia
Treatment type
Diet only
Well done! And delighted that you are feeling better. :D

I will be interested to hear what your endo says too. Some of them are... um... reluctant to see the benefits. lol. While others think it is a very good idea, but fail to recommend it because they don't think the patient is willing to make the dietary changes.
The endo was very helpful and supportive! She confirmed the previous diagnosis of idiopathic RH and even said that there obviously needs to be some studies done into poeple living with RH on a keto diet. She seemed very interested in the whole situation which was surprising to me. She said if the keto diet is working to manage symptoms and I don't need any meds then stick with it. Also, she said in Australia we don't need to inform any road and traffic authorities about RH - only if you have diabetes or if you're on insulin. She said that my case is very rare shows that medical science doesn't yet know eveything and more studies need to be done. Seemed like a very open minded, curious and genuinely interested medical professional. I was mentally prepared to be told I'm making it all up or just eat more low gi carbs or whatever.
 

Brunneria

Guru
Retired Moderator
Messages
21,889
Type of diabetes
Type 2
Treatment type
Diet only
The endo was very helpful and supportive! She confirmed the previous diagnosis of idiopathic RH and even said that there obviously needs to be some studies done into poeple living with RH on a keto diet. She seemed very interested in the whole situation which was surprising to me. She said if the keto diet is working to manage symptoms and I don't need any meds then stick with it. Also, she said in Australia we don't need to inform any road and traffic authorities about RH - only if you have diabetes or if you're on insulin. She said that my case is very rare shows that medical science doesn't yet know eveything and more studies need to be done. Seemed like a very open minded, curious and genuinely interested medical professional. I was mentally prepared to be told I'm making it all up or just eat more low gi carbs or whatever.

That is the most brilliant news.
Am delighted for you.
No concerns about nutrition? I know that is something that has concerned you in the past.

Can't tell you how great it is to find an experienced health care professional who listens, and lets you take a role in managing your condition.

WELL DONE!!!
 

Lamont D

Oracle
Messages
15,796
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
The endo was very helpful and supportive! She confirmed the previous diagnosis of idiopathic RH and even said that there obviously needs to be some studies done into poeple living with RH on a keto diet. She seemed very interested in the whole situation which was surprising to me. She said if the keto diet is working to manage symptoms and I don't need any meds then stick with it. Also, she said in Australia we don't need to inform any road and traffic authorities about RH - only if you have diabetes or if you're on insulin. She said that my case is very rare shows that medical science doesn't yet know eveything and more studies need to be done. Seemed like a very open minded, curious and genuinely interested medical professional. I was mentally prepared to be told I'm making it all up or just eat more low gi carbs or whatever.

This happened with my specialist endocrinologist, who was open minded enough to help with my control and how treatment by being in ketosis, he was sceptical as first and insisted that I kept trying the more complex carbs. Of course it didn't work!

There has been some research into a drug that has had some success in helping RH ers cope with some aspects of the condition. This is the drug Sitagliptin, it helps increase the amount of insulin initially when like me, the initial insulin response is very weak, it doesn't stop the hypos or the trigger but it does lower the risk of having too hard a hypo, but if you stick to Keto it is moot, but I'm sure your endocrinologist will be interested.

Keep safe